Re: Scary future

[Guest guest]

Andy,

Andy,

Go where you have to go to see the right people. A 2 hour drive is certainly

worth it, whether it be in New York where recommends or to s

Hopkins in Baltimore, MD. Sometimes you have to go in with research in hand and

ask them what they think. I had a fabulous doctor, very renowned, at s

Hopkins, but I would still go in with copies of braces that have been

recommended from here and he would then write me the prescription.

I have also been told that a physiatrist (a rehab specialist) is a great person

to see as they can coordinate the orthotics, OT and PT properly. Use this group

for you knowledge, print off things that you think will help you and then take

with you to the doctor.

Again, look into your state Department of Vocational Rehab. You will be

surprised at the type of expensive equipment they will buy for you to keep you

working. They will also come out to your office to evaluate and order equipment

that they think will help you. Their primary goal is to keep people working and

off of disability.

Believe me, I understand your plight. I was a single parent for 18 years

starting from the time my son was 5 months old and could have never survived on

disability so I kept plugging along and using my resources. Of course, I was

very lucky having my son's father active in his life and a wonderful support

system of friends and family, and I give gratitude for that everyday. Good luck

and please keep us informed and keep asking questions till you get what you

need.

Jackie

[Guest guest]

Jackie:

Thank you for reassuring Andy on how to solve his CMT issues.