Guest guest Posted April 16, 2003 Report Share Posted April 16, 2003 thats what we are all here for. shawna thanks to the group > I just would like to thank Charlene, Diane, Joan, , Marina, > a, Donna, and Sara (did I forget anyone?) for the > responces to my post. > You all are straight down to the matter and great help to me and > my little . > Now I have a lot to do, thanks to you. > With appreciation, > Deva, mom to , 21 months > > > > > > -------------------------------------------------- > Checkout our homepage for information, bookmarks, and photos of our kids. Share favorite bookmarks, ideas, and other information by including them. Don't forget, messages are a permanent record of the archives for our list. > -------------------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2009 Report Share Posted January 14, 2009 I am sorry I took so long to reply to the group, my computer was down a while. I want to take some time and really thank all of you for the information and support. I know I am not alone and others like us have overcome so much and continue the fight. Out of my whole experience with about 15 doctors only Hanger Orhtotics actually would see me more then once and told me they will try to help and hopefull that something can be done. I was fitted for Blue Rocker AFOs and so far I like them. The pair before were plastic custom made ones I had for over 15 years now and have grown completely dependent on them but the Blue Rocker seems to be a much better option for me even though they are not truly custom made. I will focus on the positive with that experience so no other doctor (Neurologist, MDA, PT, OPT, Orthopedic, Pain Management, etc) have ever helped me. New Jersey is not a great place for any care for CMT patients. Well again thank you all for your continued support. Andy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2009 Report Share Posted January 14, 2009 Andy: I'm telling you, go to New York City, Manhatten, Upper West Side....Colombia Presbyterian Hospital, their neurology department. Quote Link to comment Share on other sites More sharing options...
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