Re: cerebrolysin - Any ideas?

[Guest guest]

I haven't heard of it before, so googled it and read that it is still waiting

for US approval. Too bad, when someone has a terminal illness, they can't at

least try it, but it doesn't work that way.

Is she on any of the three meds usually given - Aricept, Excelon, or Razadyne,

and also Namenda, which is usually used with one of those three? None are a

cure, but can stabilize for awhile and increase some cogninance for some.

It will be interesting to see how this med works out when it's finally gone

through its testing stages. My husband was in the test study for Alzhemed, but

we had to discontinue it, as he broke his shoulder on one of our trips to the

testing city, and I could no longer travel with him. However, the medicine did

not pan out as hoped for, so it is available only as a supplement, whatever that

means.

Good luck with your mother.

June C.

>

> Subject: cerebrolysin - Any ideas?

> To: LBDcaregivers

> Date: Tuesday, July 15, 2008, 6:20 PM

> Hi All,

>  

> My mother who is 83 has LBD. Although she was doing fine

> until 2 months ago, suddenly her ilness started to decline.

>  

> She cannot handle Serequal or Laporex as they increase her

> dellusions. I've heard the Cerebrolysin injection from

> Alzhemier Forum site.

> http://www.alzforum.org/drg/drc/detail.asp?id=39

>  

> Has anybody have any feedback on this medicine? I know it

> is yet to be approved in the USA but it has been approved

> 44 countries (dont know which ones).

>  

> Thanks in advance

>

> Selma

>

>

>

>

>

>

[Guest guest]

i have emailed ashley the founder of the LBS in United Kingdom to see if she

knows. havent heard back from her yet.  hugs. sharon

> From: Selma Karadurak <selmakaradurak@ yahoo.com>

> Subject: cerebrolysin - Any ideas?

> To: LBDcaregivers@ yahoogroups. com

> Date: Tuesday, July 15, 2008, 6:20 PM

> Hi All,

>  

> My mother who is 83 has LBD. Although she was doing fine

> until 2 months ago, suddenly her ilness started to decline.

>  

> She cannot handle Serequal or Laporex as they increase her

> dellusions. I've heard the Cerebrolysin injection from

> Alzhemier Forum site.

> http://www.alzforum .org/drg/ drc/detail. asp?id=39

>  

> Has anybody have any feedback on this medicine? I know it

> is yet to be approved in the USA but it has been approved

> 44 countries (dont know which ones).

>  

> Thanks in advance

>

> Selma

>

>

>

>

>

>

[Guest guest]

Many thanks Sharon. Please let me know if you hear anything.

 

Since Cerebrolysin is used for over 10 years in some countries for other

neurologic ilness, I hope we can say the drug is safe to use ( I have checked

with my mother's doctors as well). However it would be great if I can get

feedback before moving forward.

 

Thanks

Selma

 

> From: Selma Karadurak <selmakaradurak@ yahoo.com>

> Subject: cerebrolysin - Any ideas?

> To: LBDcaregivers@ yahoogroups. com

> Date: Tuesday, July 15, 2008, 6:20 PM

> Hi All,

>  

> My mother who is 83 has LBD. Although she was doing fine

> until 2 months ago, suddenly her ilness started to decline.

>  

> She cannot handle Serequal or Laporex as they increase her

> dellusions. I've heard the Cerebrolysin injection from

> Alzhemier Forum site.

> http://www.alzforum .org/drg/ drc/detail. asp?id=39

>  

> Has anybody have any feedback on this medicine? I know it

> is yet to be approved in the USA but it has been approved

> 44 countries (dont know which ones).

>  

> Thanks in advance

>

> Selma

>

>

>

>

>

>

[Guest guest]

Hi June,

 

Thanks for your reply. My mum is on Exelon (6mg), Ebixa, Omega 3, Turmeric,

Co-Enzyme 10. She was diagnosed as having AD in 2003. However last year after

finding out this group I realised that my mother has most of the LBD symptoms

rather than AD. Her doctor was agreed with me as well since she cannot tolerate

Serequal, Zeldox etc..

 

Like Alzemed, it seems most of the trial medicines are becoming supplement in

the end. Very frustrating indeed. However I am trying Turmeric and Co-Enzyme 10.

I am thinking of trying ALA (Alpha-Lipoic Acid) but I hope I dont overdue all

these supplements and make her situation worse.

 

Good luck with your husband.

 

Cheers

 

Selma

 

 

> From: Selma Karadurak <selmakaradurak@ yahoo.com>

> Subject: cerebrolysin - Any ideas?

> To: LBDcaregivers@ yahoogroups. com

> Date: Tuesday, July 15, 2008, 6:20 PM

> Hi All,

>  

> My mother who is 83 has LBD. Although she was doing fine

> until 2 months ago, suddenly her ilness started to decline.

>  

> She cannot handle Serequal or Laporex as they increase her

> dellusions. I've heard the Cerebrolysin injection from

> Alzhemier Forum site.

> http://www.alzforum .org/drg/ drc/detail. asp?id=39

>  

> Has anybody have any feedback on this medicine? I know it

> is yet to be approved in the USA but it has been approved

> 44 countries (dont know which ones).

>  

> Thanks in advance

>

> Selma

>

>

>

>

>

>

[Guest guest]

He is deceased now. We tried about everything that was available early-on -

Vitamin E, Ginko, Aricept of course, Namenda, Vitamin B, Omega 3 for a short

time, and nothing can or will stop the disease. Some may delay it, but at this

point, it's just a matter of trying to slow down the symptoms, or in some cases

maybe some improvement. He lasted about 7 years from the time of dx with

Alzheimer's in 1999. He had both AD and LBD as well as a possible stroke.

Other than Ebixa, which I don't know what that is for, none of the others should

be harmful, and many really think COQ10 really helps.

June C.

>

> > From: Selma Karadurak <selmakaradurak@

> yahoo.com>

> > Subject: cerebrolysin - Any ideas?

> > To: LBDcaregivers@ yahoogroups. com

> > Date: Tuesday, July 15, 2008, 6:20 PM

> > Hi All,

> >  

> > My mother who is 83 has LBD. Although she was doing

> fine

> > until 2 months ago, suddenly her ilness started to

> decline.

> >  

> > She cannot handle Serequal or Laporex as they increase

> her

> > dellusions. I've heard the Cerebrolysin injection

> from

> > Alzhemier Forum site.

> > http://www.alzforum .org/drg/ drc/detail. asp?id=39

> >  

> > Has anybody have any feedback on this medicine? I know

> it

> > is yet to be approved in the USA but it has been

> approved

> > 44 countries (dont know which ones).

> >  

> > Thanks in advance

> >

> > Selma

> >

> >

> >

> >

> >

> >

[Guest guest]

hi selma,

i smile when i see your name, as my dads mom name was selma as well and she died

and waited for daddy for almost 1 month and they crossed the bridge together,

she was from sweden  her hubby my grandpa was from denmark and then my mom was

from finland so i am alot viking plus i am a taurus bull so i warn everyone to

beware as i have two sets of horns, viking and bull lol 

i am not sure if ashley is out of town she usually answers me, i will let you

know as soon as i here from her. 

but please remember IF you do try something new, or drop another medicine

remember the #1 rule about medication go low *as in dosages* and go slow, as in

changes. lbd'ers dont do wel with any change, medication, environment etc, so we

treat them like a total low and slow.  hugs, sharon a-m

> From: Selma Karadurak <selmakaradurak@ yahoo.com>

> Subject: cerebrolysin - Any ideas?

> To: LBDcaregivers@ yahoogroups. com

> Date: Tuesday, July 15, 2008, 6:20 PM

> Hi All,

>  

> My mother who is 83 has LBD. Although she was doing fine

> until 2 months ago, suddenly her ilness started to decline.

>  

> She cannot handle Serequal or Laporex as they increase her

> dellusions. I've heard the Cerebrolysin injection from

> Alzhemier Forum site.

> http://www.alzforum .org/drg/ drc/detail. asp?id=39

>  

> Has anybody have any feedback on this medicine? I know it

> is yet to be approved in the USA but it has been approved

> 44 countries (dont know which ones).

>  

> Thanks in advance

>

> Selma

>

>

>

>

>

>