Guest guest Posted October 18, 2004 Report Share Posted October 18, 2004 : I am so sorry. But in answer to your statements about : Yes, indeed I have seen exactly the behaviors that you describe. We had a foster son this past winter into summer who was doing the things that youdescribe plus screaming full thoroated screams for hours at a time. behaviors came out of no where. We began to believe that he was hearing voices. His medicaation was Straattera and Remiron. Then it was changed to Strattera twice a day (at a total of 60 mg a day) plus Trazadone in the evening. HE was not sedated by this. But the behaviors resurfaced and he had to be hospitalized. Our other children were all very leary of this child when he went off. So was I! Sara - Choose to make lemonade, not complain about the lemons. > >Reply-To: >To: >Subject: depakote >Date: Tue, 19 Oct 2004 01:08:38 -0000 > > > >Well it has been several weeks since I have read messages. We have >had on a new medication due to his increasingly aggressive >behaviors. He has also become more self injurious. We are now off >buspar completely and weened off the geodone and now we are on >depakote. It is our third week and he is very lethargic. We are >going to see Dr. capone again in Dec. is only seven years >old has anyone else seen self injurious and aggressive behaviors >this early? hits his head into doors, tables and people if >you get close enough. He is pulling hair and banging his feet so >hard on our hardwoods it makes them red and swell. His outburst >have increased and I wander about seizures because it seems to come >out of no where. Although he seems to always throw a fit when we >have to be a siblings activity or something he does not enjoy. We >have seen behavior specialist, Dr. Capone, developmental >pediatricians and therapist. We feel helpless at times. Our threee >old twins are actually scared of at imes and our 11 year old >embarassed. > >Any suggestions or anyone who has used depakote with success I would >appreciate any feedback. > >Thanks > Zahn > > > > > > >-------------------------------------------------- >Checkout our homepage for information, bookmarks, and photos of >our kids. Share favorite bookmarks, ideas, and other information by >including them. Don't forget, messages are a permanent record of the >archives for our list. http://groups.yahoo.com/group/ >-------------------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2004 Report Share Posted October 19, 2004 It was when nahtan was little he had horrible self injurious behaviors, head banging, biting himself and others, his poor arms we use to have to wrap them, they looked horrible. thankfully he outgrew them. shawna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2004 Report Share Posted October 19, 2004 , is on depakote for behaviors. It seems to take the edge off of things and we've documented that his behaviors increase when he's due for a dose or it hasn't kicked in yet. We tried to increase it, but the behaviors got much worse. We have seen some self injurous behaviors - this summer and when school started, he wrapped a string/cord around his neck on 2-3 occasions, which left ligature marks. He has a high tolerance to pain. He chews his finger, but I'm not concerned about that (he has a callous - never blood drawn). He likes to run and fall hard on the floor - scares the teacher, but so far, he's never gotten himself hurt. The side effects we see is gastrointestinal related - alot of gas! It has gotten better with time. We also saw weight gain - and that seems to have leveled off for now. He also drinks alot - he loves milk and orange juice. He can down a quart of Orange Juice in no time- so we have to be careful and watch how much he consumes. Of all the medications he has taken for behaviors, I think the depakote has done the most good. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2008 Report Share Posted May 16, 2008 Donna, We had a similar experience with depakote. It changed a seizure pattern for the worse many years ago. Seizures have continued in this more severe pattern. However, we've discovered that most of the seizure activity is triggered by gluten and casein. We see some neuro irritability with other foods also. I don't think that my daughter could take enough anticonvulsant to prevent frequent seizures if she was still eating gluten and casein. After one week on Depakote, she had a severe regression > and even after stopping the drug she is worse off now than ever > before. In fact, her seizures were made much worse by the depakote. I > don't have the reference handy, but I know there is published research > discussing valproate's ability to enhance measles replication also. Or > was it just the mito poisoning? > > > Donna > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2009 Report Share Posted January 7, 2009 I can put you in touch with a sort of " seizure information club " if you email me. Depakote can cause aggression, dementia, OCD, autism, suicidality, homicidality and leukoencephalopathy like that seen in Alzheimers. Check the files section for the article " Chemo Brain " or I can send it to you. Sorry to be the bearer of bad news-- really. I repeat the info on Depakote a lot on this list because so few people have heard of the side effects. Neurologists suck but there might be a few who are slightly less evil. > > This is all so depressing! I have a 16-year old son with autism who > developed seizures about 3 years ago. > He was first put on Depakote about 2 and a half years ago. Since increasing > the dosage over the last 2 years, his behavior has been very unpredictable. > He goes into rages at home with this glazed over look and can get very > physical with me. Coincidentally, I've been thinking recently that it might be > the Depakote that is causing this. He'd never been like this before and the > rages come on so suddenly for no particular reason. Afterwards there's usually > a lot of remorse. His nature has always been such a sweet happy kid, when > he gets in these states it's like he's someone else. Completely out of > character for him. > > Does this sound like a side effect from Depakote? Does anyone have any > experience with this? Any suggestions are very appreciated. (I'm looking for a > new neurologist since his neurologist told us on his last visit that seizures > are no big deal, we can just add more meds. Also not to try and do any more > chelation or supplements. Just go home and grieve him and the loss I feel > from his autism and get on with my life.) > > > Carla > **************New year...new news. Be the first to know what is making > headlines. (http://www.aol.com/?ncid=emlcntaolcom00000026) > Quote Link to comment Share on other sites More sharing options...
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