Re: Re: Bad Reaction to Washed Clothing (and our story)

[Guest guest]

Mike, I could say many things here but the most important thing you need to know

is www.policyholdersofamerica.org. Melinda is a member here and started her

orginazation after dealing with her own situation. If she knows you are a member

here and sick from mold she offers you extra help. Before you go any further

with the insurance company try to find out what you can from her.

I am not a lawyer so I will not give legal advice but sufice it to say there are

other avenues availiable from your insurance other than just what they are

willing to pay to repair water damage, mold etc.

Anyway, check that page out rite away.

 

Chris...

    

 

 

 

 

 

 

   

 Freedom is the emancipation from the arbitrary rule of other men   :Mortimer

Adler

From: White <michaelwhite@...>

Subject: [] Re: Bad Reaction to Washed Clothing (and our story)

Date: Sunday, July 19, 2009, 9:42 PM

 

Wow, where to begin. I guess thanks for welcoming me to the club I really

appreciate all of the support we've received so far. It has helped a great deal.

To clarify a bit, both my wife and I have the metallic taste, numb tongue and

burning throat. Our oldest daughter (3) seems to be symptom free. Our youngest,

on the other hand, seems to have some symptoms but it is very hard to tell. She

is only 7 months old. She has a hoarse voice most of the time and is allergic to

dairy products (who knows if that was mold related or not). I've had many health

issues over the years, so I think I'm more sensitive than the rest of the

family. I guess the burning mouth could be a blessing in disguise as it forced

us out of the home. I've read many stories over the last few days, and each one

has been heartwrenching.

I guess we're OK with leaving the past behind at this point. We had too much

" stuff " anyway. The worst part is the cross contamination of our parents'

houses. That one is going to be tough. The grandparents are going to take it

pretty hard, but we'll get through it in the end. It sounds like others are in

that boat as well. I guess we'll have to plan outings at neutral locations

instead of sleepovers. Oh well ...

The main question on my mind right now is how to handle all of this finanically.

Our house was right at 30 years old so we can't exactly go after our builder. I

think most of our problems stem from renovation work that was done prior to

having lived in the house (responsible for the CO/CO2 and the water intrusion)

but that might be a lost cause. Our insurance has a $5,000 cap on Mold related

claims as well. I have yet to contact them for fear of limiting our coverage.

Some of our damage was due to a leaky dishwasher a year back that was fixed, but

resulted in subfloor damage (under the kitchen cabinets of course). One of the

remediation companies suggested that I contact them about that first to see if

they'll cover the water damage in the kitchen seperately from the mold, but I

have my doubts.

I've contacted a few remediation companies ( http://www.remedics .com and

http://www.thefresh aircompanies. com/ ). They were the two highest rated firms

on Angie's List for our area, but most of the ratings were for simple crawlspace

cleanups etc. Both firms appear to do things the right way (e.g. water

penitration fix, whole house HEPA scrubbers, dry ice / soda blasting in the

crawl, dehumidification, complete wipe downs in a clean environment, carpet

removal, paper and clothing removal and disposal (porus furniture as well)).

Needless to say, none of this comes cheap, and I doubt we'll be able to move

back into the house after the remediation (based on our current sensitivities to

very very small amounts of spores). We'll probably have to considering selling

for a loss, or possibly renting out for a few years until our bodies have a

chance to recover.

Ugh, so much to think about. We checked out some apartments today and looked in

to furniture rental. Our cars are getting to us as well as some of the

belongings in the room (my daughter's teddy bear is the only reminant from the

old house, we've washed it about 20 times but I still notice the " taste " ...

prying that from her hands is going to take some tact

Oh well, time to head back to the hotel room. Thanks again for the help!

--Mike

P.S. - , once I get my head wrapped around all of this, I'd love to chat a

bit more about our situations. Barely have 30 mins of free time a day right now,

but hopefully that will change soon.

> >get that metallic taste in my mouth

>

> Such a taste is common for a few ailments. Mold hypersensitivity is

> one of them.

> It means there is one mold species, out of 500,000 to 1,500,000 species that

> you are reacting too, likely due to chronic exposure level, that any normal

> person could tolerate for several days, without notice, but most all

> people after

> several weeks will start symptoms, they think are something else, and after

> a month or two, they will be chronically ill, doctors will misdiagnose them

> as they can not " see " the mold, and some 90 to 98% of the people in the world

> would be suffer like you. Only a few are immune to the long term effects,

> and there is no predicting who.

>

> So, you are aware of mold " following you " around, on your possessions,

> and found cleaning them is hard, cheaper to toss it all and buy new, and

> this has been known for over 30 years by the medical community, not at

> large, but those doctors that seek and retain knowledge.

>

> The metal taste will stay as long as you are mold exposed, to even 2-3

> molecules a day of it. Once the exposure is over, the taste takes several

> weeks to months to slowly go away. You'll notice the change when it comes.

> And when it comes back you will have to find what caused it and toss it out,

> or never go back there.

>

> Mold hypersensitivity has a cure... no exposure for 1-2 years. None.

> The immune MAST cell has saturated binding sites that must all be

> freed, and until then, symptoms can come back in minutes. You can

> google on these key words, or read my posts several months back.

> Getting such a long period with no exposure is difficult if you keep

> any possessions, or go back to your parents' home. Sad, but true.

> I know. It happened that way for me.

>

> CO poisoning needs high flow oxygen protocol for treatment and you have

> a good chance, not 100%, or even 90%, of a full recovery. Go to

> http://mcsrr. org for the treatment protocol. You can measure the

> arterial O2 level and compare it to the venous O2 level, where the

> ratio determines the treatment is needed.

>

> http://carbonomonxi de.org is not up to date, but it does link to the

> most expert web sites, and you should be able to get any doctor

> to call these other doctors to assist with chronic CO poisoning,

> which is so very much different from acute CO poisoning.

>

> As we have so much in common, mold and CO brought us to this list,

> we should keep in touch. I want to know what works for you. I've

> done the mold hypersensitivity treatment, and still have some MCS

> from the CO poisoning, and must start the O2 treatment again.

> It was " delayed " due to chronic sewer gas exposure preventing it

> from working.

>

[Guest guest]

When I was exposed to mold, at school I had a horrible dirt like taste in

my mouth. It was like I had gone outside and eaten mud! I didn't have the

metal taste but the dirt like taste went away after medication and staying

out of the building.

Sue

have the metal taste at the present time. I also had it years ago when I

was first became ill. But I have had several moldy places. Are you sure

sometimes it isn't from your fillings. That was what I was thinking my problem

is or perhaps the candida/yeast. Right now my tongue is bothing me also

from the yeast. But I have had the candida for years. Also allergic to the

yeast. Lately I guess I haven't been strict on my diet and food is too tangy

or tart when I eat some foods. Like I said I have done this for years. Done

the diet, anti fungles, etc. My sister is dealing with breast cancer right

now and she has the yeast problem also. My neighbor gave me some yogurt the

other day and it wasn't too bad. Are there any suggestions as to what

yogart is good to get. My sister said she used Activia and it helped her.

**************What's for dinner tonight? Find quick and easy dinner ideas

for any occasion.

(http://food.aol.com/dinner-tonight?ncid=emlcntusfood00000008)

[Guest guest]

The THREE inspections never showed it but it probably was. It was in

horrible condition with a long list of molds and it was just air samples!! No

actual testing of carpet, rotten baseboards, ceiling tiles, etc. But the air

samples alone had quite a list.

I had that dirt taste also Sue. Did your building have stachy?? D

**************What's for dinner tonight? Find quick and easy dinner ideas

for any occasion.

(http://food.aol.com/dinner-tonight?ncid=emlcntusfood00000008)

[Guest guest]

, You just said something that might make sense. A while back I had one of

my dogs in the vet because she kept scratching her ear. The doc asked me if she

licked her front paws alot. I said yes, she also licks like you just put a

spoonful of peanut butter (dumb thing to do in light of peanut info) on the roof

of her mouth, as if to say something did not taste good in her mouth.

Turns out she had a yeast infection in her ear (never heard of that one) But

when that happens they lick like that to get rid of the taste in their mouth.

Now who is to say what taste that is but sure makes sense to me. Especially in

light of your comments bellow. I wonder if there is anything to this that we

humans can learn from as well???

 

Great post

I have the metal taste at the present time. I also had it years ago when I was

first became ill. But I have had several moldy places. Are you sure sometimes it

isn't from your fillings.

[Guest guest]

At 09:42 AM 7/22/2009, you wrote:

>

> >I had a burnt taste in my mouth when I was exposed to mold in my

> car. For days after a long ride I tasted what I imagined smoking

> alot would taste like-the most awful burnt taste.

>I've also had the metal taste but that was after a bad trip to the dentist.

>Both tastes eventually disappeared-the metal taste took the

>longest-easily 2 months after the exposure so I think you have to be

>very patient with exposures and their after effects. Our bodies take

>a long time to heal themselves and unfortunately there is not much

>to do about it.

I found the metal taste disappears within 24 to 48 hours after the exposure

is over. Meaning any fumes coming off the shirt, items brought into the

home that continues the exposure, also have to stop, and then 2 days

later the metal taste is gone.

Anyone else have feedback, references, thoughts, anecdotal information on how

long a taste lasts?

It's important, as re-establishing a safe home means fewer symptom days.

[Guest guest]

Hi,

    Sorry about what your family is going threw. I just wanted o say one of my

first mycotoxin, mold symptoms was hoarse voice.  I progressed quickly after

that.  I believe it is called vocal cod dysfunction.  As soon as I left my voive

came back, like in seconds, when I reintroduced it was gone in seconds.

 

God Bless !!

dragonflymcs

Mayleen

________________________________

From: White <michaelwhite@...>

 

Wow, where to begin. I guess thanks for welcoming me to the club I really

appreciate all of the support we've received so far. It has helped a great deal.

[Guest guest]

At 02:06 PM 7/25/2009, you wrote:

> Sorry about what your family is going threw. I just wanted o

> say one of my first mycotoxin, mold symptoms was hoarse voice. I

> progressed quickly after that. I believe it is called vocal cod

> dysfunction. As soon as I left my voive came back, like in

> seconds, when I reintroduced it was gone in seconds.

>

The speed of both the reaction and it's healing sounds like a pinched

nerve from swelling.

I found out from the doctor who diagnosed my nose pain, that the nose

smell sensing

organ can swell rapidly, 15 seconds, and this will pinch it's nerve

that transmits smell

information to the brain. My sense of smell did not come for several

hours. Meaning

the swollen organ did not clear it's exposure, and removed the

swelling substances

for that amount of time.

I'd research the nerve fiber bundles that control the voice, and where those

nerves are in the body, and see if there is an organ there that can swell

rapidly. Likely the cords themselves has the nerve exposed.

Lucky you the " cure " was easy.