Re: CBN-700 club 12-9-09 Dr Gray, Fabry family Mold story

[Guest guest]

What is the 700 club new?

On Dec 8, 2009, at 10:56 PM, a Townsend wrote:

> To All,

> I'm so excited,, the Fabry family who moved here to AZ a year ago

> to seek treatment and answers like so many of us for Sick building

> Syndrome from mold exposure. There story is being aired tomorrow

> on the 700 club news. You'll get a chance to see Dr Gray who

> also got to be a part of this..

>

> Praise God

> a

>

> PS, To my family and friends,

> This is one of the Dr's that saved Mine and Aurora's life

>

>

[Guest guest]

I found it. The video is available to view on the CBN site. Anne

On Dec 9, 2009, at 8:09 AM, Anne Reach wrote:

> What is the 700 club new?

> On Dec 8, 2009, at 10:56 PM, a Townsend wrote:

>

> > To All,

> > I'm so excited,, the Fabry family who moved here to AZ a year ago

> > to seek treatment and answers like so many of us for Sick building

> > Syndrome from mold exposure. There story is being aired tomorrow

> > on the 700 club news. You'll get a chance to see Dr Gray who

> > also got to be a part of this..

> >

> > Praise God

> > a

> >

> > PS, To my family and friends,

> > This is one of the Dr's that saved Mine and Aurora's life

> >

> >

[Guest guest]

I initially found it by looking up CBN news and then DR. Gray and

mold. They said if I wanted to view the video I had to download a

Flash player, which I did. Then I could no longer find the video,

only the story. You can find the story by googling CBN news and Dr.

Gray mold. Maybe others had better luck with the video or know when

it will be on television. I couldn't figure out that part.

On Dec 9, 2009, at 11:14 AM, sue wrote:

> can you please send the link to the video. We just saw Dr. Gray a

> month

> ago, are implementing his protocol slowly, so far my son has no

> improvement, but I am hopeful...we need some good now luck after

> nearly

> 4 yrs of misery....

>

> thanks, sue

>

> >I found it. The video is available to view on the CBN site. Anne

>

[Guest guest]

Sue,

can you give me some idea of Dr. Gray's protocol? Much appreciated.

Anne

On Dec 9, 2009, at 11:24 AM, a Townsend wrote:

> Sue,For most people It takes longer than a month to start feeling

> better. If you have been sick for 4 yrs it may take longer, I was

> sick 4 months before treatment and 2 yrs later, some improvement

> but I am not back to normal and I see Gray. It takes a long time

>

[Guest guest]

can you please send the link to the video. We just saw Dr. Gray a month

ago, are implementing his protocol slowly, so far my son has no

improvement, but I am hopeful...we need some good now luck after nearly

4 yrs of misery....

thanks, sue

>I found it. The video is available to view on the CBN site. Anne

>

>On Dec 9, 2009, at 8:09 AM, Anne Reach wrote:

>> What is the 700 club new?

>

>>

[Guest guest]

Sue,For most people  It takes longer than a month to start feeling better.  If

you have been sick for 4 yrs it may take longer,  I was sick 4 months before

treatment  and 2 yrs later, some improvement but I am not back to normal and I

see Gray.  It takes a long time

From: sue <svican@...>

Subject: Re: [] CBN-700 club 12-9-09 Dr Gray, Fabry family Mold

story

Date: Wednesday, December 9, 2009, 7:14 AM

can you please send the link to the video. We just saw Dr. Gray a month

ago, are implementing his protocol slowly, so far my son has no

improvement, but I am hopeful...we need some good now luck after nearly

4 yrs of misery....

thanks, sue

[Guest guest]

HI , that's the good and the bad news, huh?? It's my son, not

me, I am healthy and count my blessings for that, but I am a prisoner of

my son's situation, none of us come out unscathed.... I think I may

have spoken with you, I spoke with a about a month ago who Dr.

Gray gave me the contact info for, is that you? Dr. Gray set us up with

the expectation that my son should start to feel some improvement w/i 3

months, 2 yrs to fully detox, but probably on the sequestering agents

for life, given his inability to detox. I sure hope we'll start to see

some improvement in that time frame.

Best, Sue

>>

>Sue,For most people  It takes longer than a month to start feeling

>better.  If you have been sick for 4 yrs it may take longer,  I was sick

>4 months before treatment  and 2 yrs later, some improvement but I am

>not back to normal and I see Gray.  It takes a long time

[Guest guest]

Sue, the B12 nasal spray sounds interesting. Is that a prescription or

something you have to buy. I've never heard of it before on the B12 injections.

Thanks, Sue

Sue,

thank you for the info. Never heard of the charcoal cleanse soap.

I'll have to look that up. How do you use all the sequestering

agents along with the supplements? Can't see how there's enough

time in the day to take all the sequestering agents, leaving enough

time between them and the oral supplements? Or do you rotate them? Anne

On Dec 9, 2009, at 5:46 PM, sue wrote:

[Guest guest]

Sue,

thank you for the info. Never heard of the charcoal cleanse soap.

I'll have to look that up. How do you use all the sequestering

agents along with the supplements? Can't see how there's enough

time in the day to take all the sequestering agents, leaving enough

time between them and the oral supplements? Or do you rotate them? Anne

On Dec 9, 2009, at 5:46 PM, sue wrote:

> Anne,

>

> I can't say it's the same for everyone, but my son's protocol

> includes a

> combo of sequestering agents (cholestyramine, activated charcoal and

> bentonite clay, Dr. Gray says he uses a combo because each pulls

> different stuff out), Grace Ziem nutritional aupport which includes

> nebulized glutathione with hydroxy B-12, glutathione nose spray,

> hydroxy

> B-12 nose spray, various oral supplements; nebulized chromalyn sodium

> and a bronchodilator for small airways obstructive disease, and

> collective wellbeing charcoal cleanse soap, antifungal shampoo for

> cleansing the body... It is extensive, expensive and a lot of work.

> Also, depending on how his stool and nasal swab cultures come back

> after

> 8 weeks of culturing, he may be put on voraconazole or another oral

> antifungal.

>

> Best, Sue

>

[Guest guest]

Anne,

I can't say it's the same for everyone, but my son's protocol includes a

combo of sequestering agents (cholestyramine, activated charcoal and

bentonite clay, Dr. Gray says he uses a combo because each pulls

different stuff out), Grace Ziem nutritional aupport which includes

nebulized glutathione with hydroxy B-12, glutathione nose spray, hydroxy

B-12 nose spray, various oral supplements; nebulized chromalyn sodium

and a bronchodilator for small airways obstructive disease, and

collective wellbeing charcoal cleanse soap, antifungal shampoo for

cleansing the body... It is extensive, expensive and a lot of work.

Also, depending on how his stool and nasal swab cultures come back after

8 weeks of culturing, he may be put on voraconazole or another oral

antifungal.

Best, Sue

>Sue,

>can you give me some idea of Dr. Gray's protocol? Much appreciated.

>Anne

>On Dec 9, 2009, at 11:24 AM, a Townsend wrote:

>

>> Sue,For most people It takes longer than a month to start feeling

>> better. If you have been sick for 4 yrs it may take longer, I was

>> sick 4 months before treatment and 2 yrs later, some improvement

>> but I am not back to normal and I see Gray. It takes a long time

>>

[Guest guest]

I'm a little surprised that they put the dog down. Do you know if that was

because the dog was so sick? It wasn't part of the 'avoidance', was it, because

you'd think dog could be shaved or eventually would shed the toxins off and

could be just temporarily kept elsewhere.

[Guest guest]

It sounded like it was an avoidance thing, which is amazing to me, why

can't the dogs be washed same as people. But, expanding beyond this

particular case, I have been noodling on this whole idea of shedding all

possessions because of mold toxicity. I would like to hear what others

have done, and did it help, and was this at the suggestion of

environmental consultants, doctors, or what?

But what I've mostly been puzzling over are the ramifications of this

whole idea, I get the idea of leaving the moldy damp sofa behind, etc.

but if toxic mold can come in on any little item and contaminate your

space even w/o water intrusion, then it must be everywhere, just look at

the flow of items from one home to another, with money being a prime

example, think about antiques and used stuff transferred from one home

to another, think about friends and family coming to visit, etc. etc....

I'm afraid I don't completely get it...

Sue V.

>I'm a little surprised that they put the dog down. Do you know if that

>was because the dog was so sick? It wasn't part of the 'avoidance', was

>it, because you'd think dog could be shaved or eventually would shed the

>toxins off and could be just temporarily kept elsewhere.

>

>

>

[Guest guest]

Anne,

>Sue,

>thank you for the info. Never heard of the charcoal cleanse soap.

>I'll have to look that up.

Charcoal cleanse soap: <http://www.collectivewellbeing.com/index.php?

option=com_virtuemart & page=shop.browse & category_id=13 & Itemid=78>

>How do you use all the sequestering

>agents along with the supplements?

Dr. Gray told us that the supplements and meds should be at least 2 hrs

apart each direction, it sounds like Dr. Shoemaker does it a bit

differently. On the web I find different advise on different websites

about how far away from meds the CSM should be...

>Can't see how there's enough

>time in the day to take all the sequestering agents, leaving enough

>time between them and the oral supplements?

It is challenging in our situation because my son does nothing on his

own and his sleep schedule is all over the place, so I just do as much

of the protocol as I can, which is more when we are both awake during

the same hours and less when he is completely flipped around sleep

wise. For example, he just fell asleep after being awake for approx. 27

hours before I could give him the second dose of sequestering agents

today. If you are taking them on your own, it shouldn't be a problem,

depending on how many meds you take and how many times a day.

Or do you rotate them?

No that is not the idea.

Anne

[Guest guest]

Prescription, and from what I can tell, Dr. Gray does a modification to

the Grace Ziem protocol for nutritional supplements for chemical sensitivity:

<http://www.mcs-america.org/ziempall.pdf>

and these are compounded

prescriptions thru Key Pharmacy in Kent, Washington:

<http://www.keynutritionrx.com/

Let me know if you have more questions, but you can't just buy this

stuff off the shelf, and then even what we got from the pharmacy we then

had to do some mixing of different stuff to make the nose sprays, drops

and nebulized solutions that Dr. Gray wants him doing. But, if you are

interested and not near Arizona to see Dr. Gray, perhaps you could call

the pharmacy and ask for doctors in your area who might be able to

prescribe some of the Key Pharmacy Grace Ziem stuff.

Best of luck, sue v.

>

>Sue, the B12 nasal spray sounds interesting. Is that a prescription or

>something you have to buy. I've never heard of it before on the B12

>injections.

>

>Thanks, Sue

>

[Guest guest]

> Sue, the B12 nasal spray sounds interesting. Is that a prescription

> or something you have to buy.

I buy OH-B12 drops and dilute them to a nasal spray concentration. OH-B12 turns

into aquo-B12 at physiological pH and is the best form of B12 for NO scavenging

(PMID: 8781445). It allowed me to cut my Neurontin dose in half, since they both

reduce glutamate secretion.

http://www.holisticheal.com/supplements/b12-products/hydroxy-12-mega-drops.html

[Guest guest]

That's interesting to know, I'm not sure if that's the same thing my son

is taking or not as I'm not that educated about this, he does a couple

nasal sprays, a diluted hydroxy B-12 and a diluted glutathione nasal

spray with a drop of the hydroxy B-12 in it also, and then there's an

antifungal nasal spray and he takes a hydroxy B-12 w/folic acid diluted

under the tongue...

>

>

>

>> Sue, the B12 nasal spray sounds interesting. Is that a prescription

>> or something you have to buy.

>

>I buy OH-B12 drops and dilute them to a nasal spray concentration. OH-

>B12 turns into aquo-B12 at physiological pH and is the best form of B12

>for NO scavenging (PMID: 8781445). It allowed me to cut my Neurontin

>dose in half, since they both reduce glutamate secretion.

>

>http://www.holisticheal.com/supplements/b12-products/hydroxy-2-mega-drops.html

>

[Guest guest]

I just want to comment on Gray's protocol. I have worked with Dr. Gray since

approximately 1986. I highly recommend him and have sent many patienes

including the Fabry family to him. Dr. Gray does a complete diagnostic series

on each and every patient. He does this only after he has obtained a complete

health history and environmental history. Once his analysis is completed he

then puts each patient on a treatment and supplement program. Therefore, to

start discussing his treatment program and assuming that it will work for

everyone else is not appropriate. For example, depending upon the results of

the diagnostics he may or may not put a patient on anti-fungals.

Jack-Dwayne: Thrasher, Ph.D.

Toxicologist/Immunotoxicologist/Fetaltoxicologist

www.drthrasher.org

toxicologist1@...

Off: 916-745-4703

Cell: 575-937-1150

L. Crawley, M.ED., LADC

Trauma Specialist

sandracrawley@...

916-745-4703 - Off

775-309-3994 - Cell

This message and any attachments forwarded with it is to be considered

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[Guest guest]

When I was at Rea's clinic I was told to have someone get rid of

everything in my home (which I sold and never went back to) that

couldn't be properly washed. All furniture, bedding, clothes,

everything. I had both mold and chemical issues. I know a lot of

people at the clinic who walked away from everything except glass and

metal, with some exceptions. Often, people coming to the clinic

aren't aware that the clothes they bring with them are contaminated

and they have to go out and buy all new clothes and throw out

everything they brought from home. Then, when they start detoxing,

molds get into their new clothes and they have to periodically throw

those things away as well. Anne

On Dec 9, 2009, at 9:14 PM, sue wrote:

> It sounded like it was an avoidance thing, which is amazing to me, why

> can't the dogs be washed same as people.

[Guest guest]

Dr. Rea never recommended putting down dogs. They aren't allowed in

his safe housing, but that's another matter. I've taken my dog with

me everywhere ever since I got sick. Anne

On Dec 10, 2009, at 8:58 AM, barb b w wrote:

> Re: dog. I can see throwing away stuffed animals but real animals I can't see.

They could be washed with the detox soap and then they

> will shed their fur eventually, or at least try to find a no kill

> shelter or new home. Hopefully they tried these things first.

[Guest guest]

Re: dog. I can see throwing away stuffed animals but real animals I can't see.

They could be washed with the detox soap and then they will shed their fur

eventually, or at least try to find a no kill shelter or new home. Hopefully

they tried these things first.

>

> > It sounded like it was an avoidance thing, which is amazing to me, why

> > can't the dogs be washed same as people.

>

[Guest guest]

Sue,

rest a sure, your on the good stuff.  Make sure your son gets his 2 csm shakes

a day.  really helps with inflamation

K

From: sue <svican@...>

Subject: Re: [] Re: CBN-700 club 12-9-09 Dr Gray, Fabry family Mold

story

Date: Wednesday, December 9, 2009, 7:17 PM

That's interesting to know, I'm not sure if that's the same thing my son

is taking or not as I'm not that educated about this, he does a couple

nasal sprays, a diluted hydroxy B-12 and a diluted glutathione nasal

spray with a drop of the hydroxy B-12 in it also, and then there's an

antifungal nasal spray and he takes a hydroxy B-12 w/folic acid diluted

under the tongue...

[Guest guest]

It is a scrip. I think the Key Pharmacy in Washington state is one place that

makes it. I have a friend who has done it and had alot of good response with it.

If I remember correctly she was taking it both in a nebulised form as she did

with glutathione. I think you can take it other ways too, not sure.

Sam

Sue, the B12 nasal spray sounds interesting. Is that a prescription or

something you have to buy. I've never heard of it before on the B12 injections.

Thanks, Sue

[Guest guest]

I hate to see people be totally screwed by these expenses. The Grace Ziem

therapy can be started for about $200 a month, more for the supplements, she has

it all on her web site, all you need is a GP who is willing to prescribe. The

nebulizer can be paid for by insurance, as can be the dr's appointment.

Organizing the supplements takes some work on your part, and are another once a

month money pit. The cholestrymine script can sometimes be paid for by insurance

also, I can get the generic for $10 a month, but It irritates my throat too

much. Dr Gray I am sure is a great Dr, but also very expensive

> >> Sue, the B12 nasal spray sounds interesting. Is that a prescription

> >> or something you have to buy.

> >

> >I buy OH-B12 drops and dilute them to a nasal spray concentration. OH-

> >B12 turns into aquo-B12 at physiological pH and is the best form of B12

> >for NO scavenging (PMID: 8781445). It allowed me to cut my Neurontin

> >dose in half, since they both reduce glutamate secretion.

> >

>

>http://www.holisticheal.com/supplements/b12-products/hydroxy-2-mega-drops.html

> >

>

[Guest guest]

nasal B-12 goes stragiht into the brain.. great stuff for migraines.  helps my

headaches in seconds..    you can get that from any compounding pharmacy, its

the glutithione thats nebulized thats has to come from a compounding pharmacy

with a special hood like Key pharmacy

From: Sam <yaddayadda53@...>

Subject: Re: [] CBN-700 club 12-9-09 Dr Gray, Fabry family Mold

story

Date: Thursday, December 10, 2009, 5:46 AM

It is a scrip. I think the Key Pharmacy in Washington state is one place

that makes it. I have a friend who has done it and had alot of good response

with it. If I remember correctly she was taking it both in a nebulised form as

she did with glutathione. I think you can take it other ways too, not sure.

Sam

[Guest guest]

Thanks, a. I didn't realize the powerful efficasy of the B-12 nasal spray

in being able to go right to the brain. But I did also talk with one doctor who

said that sometimes he adds b-12 to the mixture of glutathione for nebulizing

for some patients. I think he said it was for those who might have had trouble

doing the glutathione by itself.  I don't know if this mixture is also a part of

the Zeim/Pall protocols or just his own approach. Have you heard of this?

Sam

 

nasal B-12 goes stragiht into the brain.. great stuff for migraines.  helps my

headaches in seconds..    you can get that from any compounding pharmacy, its

the glutithione thats nebulized thats has to come from a compounding pharmacy

with a special hood like Key pharmacy

portions of this message have been removed]