Guest guest Posted May 21, 2009 Report Share Posted May 21, 2009 Thanks for the brettleake.com site. He would be terrific to have at a CMT conference or even at a support group, depending on his fees. Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2009 Report Share Posted September 23, 2009 ; EXACTLY!!! Yeah...just what I have been saying! Thank you God someone that understands! Without one thinking they are better then another. but the need to pull together and make a difference! Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2009 Report Share Posted September 23, 2009 I went to this sight and it is pretty much what I have been saying " in a nut shell " http://www.fpg.unc.edu/~ncodh/orchid/pages/journey.cfm Amazing! Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2009 Report Share Posted September 24, 2009 Hi Geri,  I’m so glad you liked the website. I thought that’s what you were trying to say!  Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2009 Report Share Posted September 25, 2009 My daughter has also never considered herself different from anyone else. was diagnosed with CMT when she was 6. People have told her that she should get SSI that she would be able to get it right away. She refused to listen to these people. Sure her feet bother her every morning and her back aches a lot too, but she has been riding horses since she was 7; and at 28 and the mother of 3 she is not only riding she is training her horse. She also just got hired and will start her new job on Mon. Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2009 Report Share Posted September 25, 2009 , I can't understand why some people didnt get what I was saying! Thanks Geri Quote Link to comment Share on other sites More sharing options...
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