OT:

[Guest guest]

Veri,

Do we even know what normal is outside our world? What seems normal to some isn't to others know what I mean? I just hope Larry does the right thing by that precious little girl. Keeping her out of the spot light.

RobbinSee what's free at AOL.com.

[Guest guest]

I think if he is truly given the chance he will be a great dad and keep her from public scrutiny...DonnaSee what's free at AOL.com.

[Guest guest]

Sad thing is that child will probably never know what normal is.

Veri

Re: OT:

Donna,

That's right lolol. and I said that baby looks like him. He is a cutie lololol. I hope all goes well for him though. Maybe he will move back to Louisville and raise the girl in a Normal enviroment.

Robbin

See what's free at AOL.com.

AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com.

[Guest guest]

,

as humans, and mom who want the best for our children, we all reach our breaking

point, those moments of desperation, often many times over, but each time, we

have to pick ourselves up and look at our child, and put our hope and faith out

there again...I must admit, some times take longer than others, though I work

hard at not allowing to see my discouragement. But, she is my precious

child, I am her mom....doesn't that say it all?

I hope you get answers at the Cleveland Clinic. Is it a far trip for you? Keep

us posted and safe travels to you.

()

Widner <nurse0300@...> wrote: you

are so right nancy us moms just can not give up! We are taking a trip here in 2

weeks to help us find answers its surreal though you thiink what if this does

not give us any answers and then you ask is there any answers to get, then you

put your mom hat back on and your christian side and just pray to GOD to help us

through this and to please give us answers of at least the treatment to help our

children!

Keeping up the hopes and prayers

nancy barnes <nancyb315@...> wrote:

did have the g. occipital nerve block yesterday...it will be a

few days to know if it helped...if no success there, back to the drawing board.

But we as Mom's cannot give up searching for answers, right?

Thanks for the prayers .

toivonen4 <toivonen4@...> wrote: - Thanks for the update! I am

sorry too that things did not go

well. Don't give up hope! Someone out there knows what is going on

and I pray that you find answers to help feel better.

& Grant(11, PA, Uveitis)

>

>

> I am so sorry to hear that it did not go well. Was really hoping

you would get some answers.

> It does sound like this new doctor you have locally may be of

help...hope that he has finally figured things out and gets

on her way to feeling better.

> Please take care of yourselves and get some rest after your ordeal!

> and Rob 18 JAS

>

> Re: OT: Michigan & Migraines

>

>

> > Well, 's trip to the head & neuro treatment hospital was

> > disappointing, to say the least. Both the neurologist and

> > rheumatologist heard such good things about the program.

> > Their first protocol had to be discontinued as the medication

> > was harsh and inflammatory to 's veins and she could

> > not maintain IV access. The remaining protocols gave no

> > relief. Their pain dr feels she has some arthritis in her

> > neck and therefore she was given a cervical epidural with

> > steroid - that seemed to be the only thing that offered her

> > relief and for a few days her pain level came down enough to go

> > outside one day and build a snowgirl with her roommate's husband

> > (he did the core of the work but it was great " therapy " for her -

> > it was the first time she ever built a snow " man " , I might add)

> >

> > Early every morning, the doctor holds rounds with each patient,

> > including his team of various doctors, PA's, nurses, about 12

> > people in all. One morning, when her pain levels had shot

> > back up, they announced to us that they were discharging her in

> > 2 days...her arthritis and cvid meds and her " clotting problem "

> > (still don't get that - she has no " clotting " problem) prevent

> > them from trying any other meds (what they had tried was a

> > joke...), and the Enbrel her rheumatologist had phoned and said

> > she would be starting should help her headaches

> > (?!?!?!???). The next morning at rounds I confronted the

> > director/dr about how they misled us, the premature discharge,

> > and how Enbrel can cause a facial headache as a side effect, but

> > is not intended as a cure or preventative for headaches!

> > (he tried more than once deflecting with a personal attack but I

> > am very proud to say I did not let it sway me one bit and I

> > stood my ground). He said we were welcome to return if the

> > Enbrel did

> > not help....rofl.....upon discharge, they told us to be

> > sure and schedule our 3 month follow-up - again, rofl....but

> > seriously, they discharged with NO medication to take

> > except for a muscle relaxer and promethazine for

> > nausea/vomiting.....so poor thing has been suffering...oh - they

> > did try another epidural the day before discharge, but with no

> > chance to rest, travel, the flu, and her mentrual migraine, if

> > there was any benefit, it was overshadowed by all else.

> >

> > So, her neurologist squeezed her in last week - clearly, no meds

> > really help he says...this is true. With all tests, meds

> > and things done, he believes (he is a new dr to us) the cause

> > might likely be her greater occipital nerve. He is going

> > to try a greater occipital nerve block, less invasive than the

> > epidural, though steroid is injected there also. She sees

> > the rheumy Friday, but it is unlikely she will be healthy enough

> > to start the Enbrel (as was the case before we left for Michigan

> > - she has been on antibiotics 24 days now...).

> >

> > Anyway, I wish I had better things to report. I do thank

> > all of you who offered words of support, sent cards and called -

> > you really made a tough time tolerable. I believe too her

> > roommate was handpicked...we were tentative at first, but she

> > and her husband were wonderful medicine for 's

> > spirits. Don't know what I would do without this group!

> >

> > (, 17, poly, cvid, migraines)

> >

> >

> > ---------------------------------

> > Be a better friend, newshound, and know-it-all with

> > Mobile. Try it now.

> >

> >

[Guest guest]

its 6 hours on the road! I am a terrible rider LOl so this will be a very

exciting trip LOL. And I am not sure how Caleb is going to do with the long car

ride.

nancy barnes <nancyb315@...> wrote:

,

as humans, and mom who want the best for our children, we all reach our breaking

point, those moments of desperation, often many times over, but each time, we

have to pick ourselves up and look at our child, and put our hope and faith out

there again...I must admit, some times take longer than others, though I work

hard at not allowing to see my discouragement. But, she is my precious

child, I am her mom....doesn't that say it all?

I hope you get answers at the Cleveland Clinic. Is it a far trip for you? Keep

us posted and safe travels to you.

()

Widner <nurse0300@...> wrote: you are so right nancy us moms just

can not give up! We are taking a trip here in 2 weeks to help us find answers

its surreal though you thiink what if this does not give us any answers and then

you ask is there any answers to get, then you put your mom hat back on and your

christian side and just pray to GOD to help us through this and to please give

us answers of at least the treatment to help our children!

Keeping up the hopes and prayers

nancy barnes <nancyb315@...> wrote:

did have the g. occipital nerve block yesterday...it will be a few days

to know if it helped...if no success there, back to the drawing board. But we as

Mom's cannot give up searching for answers, right?

Thanks for the prayers .

toivonen4 <toivonen4@...> wrote: - Thanks for the update! I am sorry

too that things did not go

well. Don't give up hope! Someone out there knows what is going on

and I pray that you find answers to help feel better.

& Grant(11, PA, Uveitis)

>

>

> I am so sorry to hear that it did not go well. Was really hoping

you would get some answers.

> It does sound like this new doctor you have locally may be of

help...hope that he has finally figured things out and gets

on her way to feeling better.

> Please take care of yourselves and get some rest after your ordeal!

> and Rob 18 JAS

>

> Re: OT: Michigan & Migraines

>

>

> > Well, 's trip to the head & neuro treatment hospital was

> > disappointing, to say the least. Both the neurologist and

> > rheumatologist heard such good things about the program.

> > Their first protocol had to be discontinued as the medication

> > was harsh and inflammatory to 's veins and she could

> > not maintain IV access. The remaining protocols gave no

> > relief. Their pain dr feels she has some arthritis in her

> > neck and therefore she was given a cervical epidural with

> > steroid - that seemed to be the only thing that offered her

> > relief and for a few days her pain level came down enough to go

> > outside one day and build a snowgirl with her roommate's husband

> > (he did the core of the work but it was great " therapy " for her -

> > it was the first time she ever built a snow " man " , I might add)

> >

> > Early every morning, the doctor holds rounds with each patient,

> > including his team of various doctors, PA's, nurses, about 12

> > people in all. One morning, when her pain levels had shot

> > back up, they announced to us that they were discharging her in

> > 2 days...her arthritis and cvid meds and her " clotting problem "

> > (still don't get that - she has no " clotting " problem) prevent

> > them from trying any other meds (what they had tried was a

> > joke...), and the Enbrel her rheumatologist had phoned and said

> > she would be starting should help her headaches

> > (?!?!?!???). The next morning at rounds I confronted the

> > director/dr about how they misled us, the premature discharge,

> > and how Enbrel can cause a facial headache as a side effect, but

> > is not intended as a cure or preventative for headaches!

> > (he tried more than once deflecting with a personal attack but I

> > am very proud to say I did not let it sway me one bit and I

> > stood my ground). He said we were welcome to return if the

> > Enbrel did

> > not help....rofl.....upon discharge, they told us to be

> > sure and schedule our 3 month follow-up - again, rofl....but

> > seriously, they discharged with NO medication to take

> > except for a muscle relaxer and promethazine for

> > nausea/vomiting.....so poor thing has been suffering...oh - they

> > did try another epidural the day before discharge, but with no

> > chance to rest, travel, the flu, and her mentrual migraine, if

> > there was any benefit, it was overshadowed by all else.

> >

> > So, her neurologist squeezed her in last week - clearly, no meds

> > really help he says...this is true. With all tests, meds

> > and things done, he believes (he is a new dr to us) the cause

> > might likely be her greater occipital nerve. He is going

> > to try a greater occipital nerve block, less invasive than the

> > epidural, though steroid is injected there also. She sees

> > the rheumy Friday, but it is unlikely she will be healthy enough

> > to start the Enbrel (as was the case before we left for Michigan

> > - she has been on antibiotics 24 days now...).

> >

> > Anyway, I wish I had better things to report. I do thank

> > all of you who offered words of support, sent cards and called -

> > you really made a tough time tolerable. I believe too her

> > roommate was handpicked...we were tentative at first, but she

> > and her husband were wonderful medicine for 's

> > spirits. Don't know what I would do without this group!

> >

> > (, 17, poly, cvid, migraines)

> >

> >

> > ---------------------------------

> > Be a better friend, newshound, and know-it-all with

> > Mobile. Try it now.

> >

> >

[Guest guest]

Thank you so much for the prayers for my dad. He still has his sense of humor, which I think will see him through

Hannah is very excited to get her new kitty. The story was on the news a few months ago and it was just heart wrenching. So many of the cats had to be destroyed. We know this will be good for Hannah and we hope our 7 year old cat will be accepting of his "new sister". I'll keep you updated on all.

Sending prayers & happy thoughts,

Beth :-)

OT: prayer request & unrelated upate @group s.com> Hi everyone:> First let me ask for prayers once again for my dad. He was > admitted to the hospital last Tuesday for extreme > weakness. He is unable to support himself standing right > now and has developed post-chemo tremors. He is also > fighting a lung infection and is on oxygen 24/7. He most > likely will be sent to a rehab facility in the next week or two > for PT/OT until he can get around by himself again.> > Second, I had an appt with a new internist on Friday. She > is very young, but I like her alot. She says my old doc is >

doing the right things so far med wise. She is however, > running some labs that were not done and she ordered an > EMG. Has anyone had a EMG before and can you tell me what > to expect? She is thinking that some of the pain in my > hands might actually be from my neck. I have three areas > in my neck that are showing degenerative disk disease and all my > hand xrays so far, have been normal. Anyone have > experience with this?> > On a side note, Hannah and I went to visit a litter of 5 week > old kittens today and will be adopting a little girl in a few > weeks. It's a very sad story. There was a home that > had over 100 cats that were found abandoned. Some were too > ill to be saved, some were already dead and ther rest they are > trying to get adopted. The mother of the littler of >

kittens is with the cats and is really friendly and very > healthy. She was one of the lucky ones. We heard the > story ! on the n ews several week ago and started talking about > adopting one of the healthy cats. A co-workers friend > happens to be fostering the mom & kittens so that's how we found > them. Hannah is very excited. We are hoping a new > kitten will give her something to focus on instead of pain for a > change > > Sending prayers & happy thoughts,> Beth :-)

[Guest guest]

Hi :

We were just reading about this for cats. The new kitten (tentatively to be named Sky) will spend her first several days in Hannah's room until we know Max will be accepting. We have to bring her home in a carrier so we will use the one we've used for Max. It has a fleece blanket in it that I know has Max's scent all over it. Hannah put another blanket in her room in a box and after a few days we will swap them out, so each can get used to the others scent.

Thanks again for your prayers for my dad. I would also like to hear your experience with your EMG and what they found. A friend from work had one and she said it felt strange, but was not painful. I really did not ask what the next step would be if she finds the pain is from my neck and is affecting my hands (maybe I don't want to know..LOL)

Sending prayers & happy thoughts,

Beth :-)

OT: prayer request & unrelated upate @group s.com> Hi everyone:> First let me ask for prayers once again for my dad. He was > admitted to the hospital last Tuesday for extreme > weakness. He is unable to support himself standing right > now and has developed post-chemo tremors. He is also > fighting a lung infection and is on oxygen 24/7. He most > likely will be sent to a rehab facility in the next week or two > for PT/OT until he can get around by himself again.> > Second, I had an appt with a new internist on Friday. She > is very young, but I like her alot. She says my old doc is

> doing the right things so far med wise. She is however, > running some labs that were not done and she ordered an > EMG. Has anyone had a EMG before and can you tell me what > to expect? She is thinking that some of the pain in my > hands might actually be from my neck. I have three areas > in my neck that are showing degenerative disk disease and all my > hand xrays so far, have been normal. Anyone have > experience with this?> > On a side note, Hannah and I went to visit a litter of 5 week > old kittens today and will be adopting a little girl in a few > weeks. It's a very sad story. There was a home that > had over 100 cats that were found abandoned. Some were too > ill to be saved, some were already dead and ther rest they are > trying to get adopted. The mother of the littler of

> kittens is with the cats and is really friendly and very > healthy. She was one of the lucky ones. We heard the > story ! on the n ews several week ago and started talking about > adopting one of the healthy cats. A co-workers friend > happens to be fostering the mom & kittens so that's how we found > them. Hannah is very excited. We are hoping a new > kitten will give her something to focus on instead of pain for a > change > > Sending prayers & happy thoughts,> Beth :-)

[Guest guest]

Thanks for the laugh.? I would have loved to have been a fly on the wall for

that episode.? I am also glad to know I am not the only female in the world that

cannot coordinate outfits!? If the outfit is not together at the store, I don't

buy it.? I can't figure out how to put stuff together (thank goodness for a

creative daughter).

Anyways, you came out of the day unscathed, colonoscopy, encounter and all.?

Life goes on....

Have a good week!

Vickie

OT:

Hey Vickie,

I went to Catholic schools, which means uniforms. So if I'm not

wearing navy blue and white, I have a real hard time coordinating any

outfits. Not the first time I've been thought to be a bag lady, or " Le

Femme du Sacque " as they say in French.

Being a private club, you can't buy someone dinner, a member has to do

that. And of course I wouldn't belong to a club that would have me as a

member.

I did manage to give him and his friends some laughs, so that was my

goal met.

Yeah, , I am surprised some Southern hospitality did not come into

play here.? After all if you looked like a bag lady with " nasty bed hair

and no make-up " , he could have at least bought you a meal, right?? But

then again, he may have thought you were a hospital escapee with all that

plus the bandages and thought he should be calling security!

Vickie

Implanted 3/10/08

Activated 4/16/08

__________________________________________________________

Want a great salary and great benefits? Click here to start a criminal justice

career.

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[Guest guest]

I am so bummed out about the death of . It is tempting to eat ice cream to drwon iout my sorrow. I've been up to the Apollo Theater twice over the past few days to pay my respects.

Any support is appreciated.

Jag

[Guest guest]

Death is such a sting and often we try to find a salve to ease the pain. Maybe

this is where reflection and spirituality comes in with life?

A belief in a Creator that knew him better than us all, an understanding that he

no longer suffers and the fact that his mother is a spiritual woman that was

close to him and his children may all be ingredients in a salve. It never

'cures' the pain only lessens the sting. Then reflection helps too, listening to

Dr Chopra talk about their friendship and time together one realizes the turmoil

MJ was in.

The real issue behind his death I see as something needs to be done about these

Drs that are writing scripts for these narcotics that people are getting hooked

on and dying from. Ann , Heath Ledger, Elvis, lin Monroe all had

Drs suppling them with dangerous

amounts of drugs. These people were destroyed by prescription drugs.

's prescription bill was made public when the Pharmacy sued for

non-payment the bill was unbelievable (broken down to 2,000 a day).

That is why they are 'investigating' and extensive toxicology reports of brain

and lung etc will be valuable. Like Dr Chopra said his Dr's need to be looked

at. Also, his Dr did CPR on his bed? What? Even I know CPR must be done on a

hard surface. The doctors that have gotten rich even Millionaires off supplying

drugs to celebrities must be held accountable. Maybe in your grief you can

transfer the energy to getting involved in the movement to stop these Drs from

getting away with murder. Just a few thoughts. Most of all Time is the ultimate

salve. Sorry for your pain Jag.

>

> I am so bummed out about the death of . It is tempting to eat

ice cream to drwon iout my sorrow. I've been up to the Apollo Theater twice over

the past few days to pay my respects.

>

> Any support is appreciated.

>

> Jag

>

>

>

>

[Guest guest]

brilliant, thank you.

gracia

meggitube wrote:

>

>

> Death is such a sting and often we try to find a salve to ease the

> pain. Maybe this is where reflection and spirituality comes in with life?

> A belief in a Creator that knew him better than us all, an

> understanding that he no longer suffers and the fact that his mother

> is a spiritual woman that was close to him and his children may all be

> ingredients in a salve. It never 'cures' the pain only lessens the

> sting. Then reflection helps too, listening to Dr Chopra talk about

> their friendship and time together one realizes the turmoil MJ was in.

> The real issue behind his death I see as something needs to be done

> about these Drs that are writing scripts for these narcotics that

> people are getting hooked on and dying from. Ann , Heath

> Ledger, Elvis, lin Monroe all had Drs suppling them with dangerous

> amounts of drugs. These people were destroyed by prescription drugs.

> 's prescription bill was made public when the Pharmacy sued for

> non-payment the bill was unbelievable (broken down to 2,000 a day).

> That is why they are 'investigating' and extensive toxicology reports

> of brain and lung etc will be valuable. Like Dr Chopra said his Dr's

> need to be looked at. Also, his Dr did CPR on his bed? What? Even I

> know CPR must be done on a hard surface. The doctors that have gotten

> rich even Millionaires off supplying drugs to celebrities must be held

> accountable. Maybe in your grief you can transfer the energy to

> getting involved in the movement to stop these Drs from getting away

> with murder. Just a few thoughts. Most of all Time is the ultimate

> salve. Sorry for your pain Jag.

>

>

> >

> > I am so bummed out about the death of . It is

> tempting to eat ice cream to drwon iout my sorrow. I've been up to the

> Apollo Theater twice over the past few days to pay my respects.

> >

> > Any support is appreciated.

> >

> > Jag

> >

> >

> >

> >

>

>

[Guest guest]

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