Re: Sleep problems and CMT

[Guest guest]

Hello,

I went to a sleep disorder center last week because the Doctor wanted me too.

They hooked me up with wires and I sleep there for the night.I asked the lady

did she notice any thing and she said she saw some sleep apena now im waiting

for the results of the test and it will take 10 days they say and will give the

test results to my Doctor.Does any one else have this problem and have anyone

else gone to a sleep disorder center?

Thanks,

[Guest guest]

I have , I slept there for the night with all the wires hooked on me. Not

sure what they found, they wanted me to have the mask to sleep with but I tell

you there is no way I can do that,its so scary so here I'm sleeping like before

the test..so I have no news at all.

Spy

>

> Hello,

>

> I went to a sleep disorder center last week because the Doctor wanted me too.

They hooked me up with wires and I sleep there for the night.I asked the lady

did she notice any thing and she said she saw some sleep apena now im waiting

for the results of the test and it will take 10 days they say and will give the

test results to my Doctor.Does any one else have this problem and have anyone

else gone to a sleep disorder center?

>

>

> Thanks,

>

>

>

[Guest guest]

Several years ago I did a sleep study and was diagnosed with apnea. It took

quite a while to get used to the CPAP, but now I can't sleep without it. My

neurologist who is pretty knowledgible about CMT thinks the apnea might be

related to CMT but I guess there is no way to tell for sure.

[Guest guest]

Here is one study that showed a 100% correlation between CMT & sleep apnea in

the test patients used. http://cat.inist.fr/?aModele=afficheN & cpsidt=878310

Here is a site which talks about cmt & breathing difficulties.

http://www.lindacrabtree.com/cmtnews/breathing/breathingsubtitles.html

[Guest guest]

hi, i have been to a sleep lab. once all hooked but no mask. next time with the

mask. i am still try ing to get used to may cpac machine but it's not bad at

all. i move around all night so we are going to try a different type and it's

all good.

francine