Guest guest Posted July 1, 2009 Report Share Posted July 1, 2009 Mike, I don't know when you were diagnosed, but acceptance of CMT is the first step. It takes twice as much work to do half the work for CMT muscles. Are you under a doctor's care now or wearing AFOs? There's also other things that can help, physically, emotionally, and spiritualy: diet/nutrition/supplements, exercise gently to the extent you are able, write your feelings down in a journal, for every negative thought, write one positive thought. Pray for courage and strength to live a full life despite CMT. Take very good care of yourself. Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2009 Report Share Posted July 1, 2009 Mike, I would like to help.Dont worry about what other people can do ok.CMT affects people in diffent ways.What are ur strengths.Do you work out at the gym or home.Please tell me more about u.I use to be a personal trainer before.Dont give up! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2009 Report Share Posted July 1, 2009 Mike, I at age 33 had to stop my job in construction.same deal.I know now that my struggle was due to my CMT.knowing is great but IT STILL SUCKS.knowing this and knowing that it is not going to get better in fact it may even get worse. you now have a choice of how you want to live. concentrating on thhe things that are hard to do now,OR doing the things you love to do. im 39 now and am finally now working on my mind and going to continue forever. if ya really want a great example of what a person can still do after having a disability I urge you to google W and an guy named Maynard and watch some of their videos.please do this. Geoff the CMT Drummer in Phoenix. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2009 Report Share Posted July 2, 2009 Mike, This disease not only takes a physical toll on us, but also an emotional one. Every time we notice a new decline, we go through a grieving process all over again. Everyone handles it differently. Some try to deny it. Others try to fight it. But the reality is that it is slowly taking away our strength. Even for those among us who are handling it well, there is still likely to be that little bit of sadness that hits when we notice some new limitation. I found it interesting that you said, 'when you were younger you used to care about life more'. I noticed that same phenomenon in myself. Not that I don't love life anymore or that I don't want to live, because I certainly do. It's just that the weaker I become, the closer the end feels and the more ok I feel about it. When I was a kid, I can remember thinking that death was just the most horrific thing I could imagine happening, but it doesn't feel that way anymore. I've now begun to relate to older people, who seem to be resigned to dying. Perhaps it's an ingrained, natural process within us that when the body declines, the mind begins to accept it and it's not as upsetting. Can you relate? Is that kind of what you meant? Either way, I'm interested in your further thoughts on the subject. One thing that I try to keep reminding myself is that my worth as a person is not determined by my physical abilities. I still have my mind. I can still think and still give love. I can still help others. I still have worth. I tell you this today and, on most days, I believe it's true. However, on the days when I can't get out of bed and I have to rely on others to help me do even basic things, it's not so easy to accept. But...most days I can remember that my existence still matters. I hope you can too. From: mmadina1206 <mmadina1206@...> Subject: looking to fit in Date: Wednesday, July 1, 2009, 12:54 AM Im 33 now. When I was in construction I didnt know why I couldnt be strong enough to drive a nail in one -two hit. I didnt know why I would suffer so mucj to help the guys carry 98 pound bags over my shoulders and they were able to. I didnt always have this issue. Dont get me wrong I was stronger and cared more aboutl life then now. But I just want some more answers than anything.I see my life deteriorating before my eyes. Any feed back would be greatlt appreciated. Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2009 Report Share Posted July 3, 2009 Mike- You have to look forward and you have to look at all the things you can do. Don't think about the past in a negative light. Remember, if you didn't have CMT you would have been able to lift those bags. Keeping a positive attitude makes this damn disease a whole lot easier to deal with. I know, I'm 60 and I've been there. Lynda from California Quote Link to comment Share on other sites More sharing options...
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