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Re: educating our doctors

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Thank you ,

I am sure as you know by now it is perfectly normal to research everything about

CMT when we are newly diagnosed. The doctor does a good job at poking us,

testing us, and making us feel like lab rats lol, but when it comes to

explaining that's another thing. I did the same years ago when I was diagnosed.

To this day I keep up, because it is me who has to educate the doctor in most

cases, make sure they don't give me something I can not take. Or as of now with

the change in my medicare D plan that excluded meds I've been on for years,

secondary ins, that don't cover the doc that i've seen for years, search for

another doc, and equivilent meds they will cover.

As if we don't have enough to deal with.

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