Guest guest Posted June 11, 2008 Report Share Posted June 11, 2008 ....may not be true tomorrow. A lesson I'm learning. Took out to get her hair colored/cut/styled last night, then we had a burger at BK where Casey (my 17YO daughter) works, then took her to KMart to pick out a birthday card for my sister. She really enjoyed getting out again, but insisted that, now she's doing so much better, she will soon be taking over her own affairs - wants her wallet, her address book, etc...said she won't be living at King's permanently, etc...and if she has to then she might as well die. Of course, in the next sentence, she was asking where she lived because she couldn't remember, didn't remember much of anything in fact. And when we got back to King's after our 3-hour outing, she gave everybody hugs and said, " It's good to be home, I missed you all so much! " A couple of times she mentioned that she has nothing to live for - something I haven't heard in nearly 2 weeks - but other than the memory stuff, she is exactly like the mom I've known my whole life. Personality, mannerisms, comments, opinions, expressions, etc. If it weren't for the memory issues (which she covers for REALLY well most of the time!), one would never know that she has any problems at all. This is a 2-sided coin. On the one side, it is a happy thing that she's doing to fantastically well. On the other, she's almost doing too well to be in a nursing home most of the time, and she knows it. There isn't another option at this point, other than to make her life as " normal " as possible (with activities and outings and surrounded by her things and enabling her to continue her habits). She knows that she has LBD but we don't discuss it often as she's a head-in-the-sand type person; if she weren't, she'd understand (maybe) why she's there. She does have issues with sundowning that actually lasts into the morning also...and still delusional but not as much as before. Hasn't mentioned hallucinations in maybe a week or so...meds are working great, she's better than she's been in several years... Anyway, this is almost harder to live with (for her, I mean) than when she was in her happy confusion, even though it should be - I would think - a time to enjoy everything she can while she can. She can't because she's trying to hard to get control of her life back again. (Remember, this is a woman who never let her daughters know ANYTHING personal about her, her business or finances or anything, and has kept us at arm's length for years...control issues aren't anything new by any means!) Hard to make sense of it all, for me...day by day I make decisions and try to do the right things based on THAT day's criteria because yesterday's doesn't necessarily still apply. So here's hoping that, today, she will once again be satisfied with her life, and happy to have visitors and go for rides and things, as she was for the last week or so... His, Sherry www.owly.net Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2008 Report Share Posted June 11, 2008 --- Hi Sherry, You are exactly right, this disease changes our los sometimes on a daily basis and the only thing to expect is the unexpected.Heartfelt best to you and your family Ron In LBDcaregivers , " Sherry UpNorth " wrote: > > ...may not be true tomorrow. A lesson I'm learning. > > Took out to get her hair colored/cut/styled last night, then we had a > burger at BK where Casey (my 17YO daughter) works, then took her to KMart to > pick out a birthday card for my sister. She really enjoyed getting out > again, but insisted that, now she's doing so much better, she will soon be > taking over her own affairs - wants her wallet, her address book, etc...said > she won't be living at King's permanently, etc...and if she has to then she > might as well die. > > Of course, in the next sentence, she was asking where she lived because she > couldn't remember, didn't remember much of anything in fact. And when we > got back to King's after our 3-hour outing, she gave everybody hugs and > said, " It's good to be home, I missed you all so much! " > > A couple of times she mentioned that she has nothing to live for - something > I haven't heard in nearly 2 weeks - but other than the memory stuff, she is > exactly like the mom I've known my whole life. Personality, mannerisms, > comments, opinions, expressions, etc. If it weren't for the memory issues > (which she covers for REALLY well most of the time!), one would never know > that she has any problems at all. > > This is a 2-sided coin. On the one side, it is a happy thing that she's > doing to fantastically well. On the other, she's almost doing too well to > be in a nursing home most of the time, and she knows it. There isn't > another option at this point, other than to make her life as " normal " as > possible (with activities and outings and surrounded by her things and > enabling her to continue her habits). She knows that she has LBD but we > don't discuss it often as she's a head-in-the-sand type person; if she > weren't, she'd understand (maybe) why she's there. She does have issues > with sundowning that actually lasts into the morning also...and still > delusional but not as much as before. Hasn't mentioned hallucinations in > maybe a week or so...meds are working great, she's better than she's been in > several years... > > Anyway, this is almost harder to live with (for her, I mean) than when she > was in her happy confusion, even though it should be - I would think - a > time to enjoy everything she can while she can. She can't because she's > trying to hard to get control of her life back again. (Remember, this is a > woman who never let her daughters know ANYTHING personal about her, her > business or finances or anything, and has kept us at arm's length for > years...control issues aren't anything new by any means!) > > Hard to make sense of it all, for me...day by day I make decisions and try > to do the right things based on THAT day's criteria because yesterday's > doesn't necessarily still apply. So here's hoping that, today, she will > once again be satisfied with her life, and happy to have visitors and go for > rides and things, as she was for the last week or so... > > His, > Sherry > www.owly.net > Quote Link to comment Share on other sites More sharing options...
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