Guest guest Posted March 6, 2002 Report Share Posted March 6, 2002 Oh, yeah! I gave my daughter Melatonin with B6 added and it kept her up all night long. I have also heard of lots of other stories of kids becoming hyper from B6. When my daughter's doctor wanted to supplement her with B6, I said not without determining that she needs it first. So we tested, and I am waiting to hear back. I doubt she needs it, especially given her reaction in the past. [ ] b6 hello out there, Does anyone else have an experience with vit b6 and hyperactivity? I am starting slowly to see if there are any changes. He already seems a little hyper.A lot of stims have gone away with lots of chelation, but a couple remain(real doozies). Id aprecieate any feedback from other parensts out there. You may email me privately or list. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2002 Report Share Posted March 6, 2002 > > hello out there, > > Does anyone else have an experience with vit > b6 and hyperactivity? I am > starting slowly to see if there are any changes. > He already seems a > little hyper.A lot of stims have gone away with > lots of chelation, but a > couple remain(real doozies). Id aprecieate any > feedback from other > parensts out there. You may email me privately or > list. > > Magnesium is supposed to reduce the hyperactivity associated with b6. Kirkman's Nu-Thera mixes include magnesium with b6, for example. Max __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2002 Report Share Posted March 6, 2002 , B6 should always be given with magnesium. I don't remember the correct ratio but you can reffer to Bernard Rimland's articles. B6 will make a lot of kids hyper without giving magnesium. It is not that uncommon. Regards, . I would also be interested in the results you get from the test since ( I am not sure if your daughter has autism) most autistic kids are deficient.........that is why they can't sleep to begin with. B6 is a precursor for serotonin. Also B6 should never be given alone but always with the other B vitamins. At 14:32 06/03/2002 -0500, you wrote: >Oh, yeah! > >I gave my daughter Melatonin with B6 added and it kept her up all night >long. I have also heard of lots of other stories of kids becoming hyper >from B6. When my daughter's doctor wanted to supplement her with B6, I >said not without determining that she needs it first. So we tested, and I >am waiting to hear back. I doubt she needs it, especially given her >reaction in the past. > > > [ ] b6 > > > hello out there, > > Does anyone else have an experience with vit b6 and > hyperactivity? I am > starting slowly to see if there are any changes. He already seems a > little hyper.A lot of stims have gone away with lots of chelation, but a > couple remain(real doozies). Id aprecieate any feedback from other > parensts out there. You may email me privately or list. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2002 Report Share Posted March 7, 2002 > hello out there, > > Does anyone else have an experience with vit b6 and hyperactivity? Is the B vitamin P5P? That can aggravate phenol symptoms in phenol sensitive children. You should then consider supplementing with a version of B vitamin that does NOT contain P5P. http://www.autismchannel.net/dana/phenol.htm Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2002 Report Share Posted March 8, 2002 From what I remember, folic acid along with the b6 should help with hyperactivity. Look on Kirkmans website for this info. There is also onfo on it on the Autism Research's website. Randee [ ] b6 hello out there, Does anyone else have an experience with vit b6 and hyperactivity? I am starting slowly to see if there are any changes. He already seems a little hyper.A lot of stims have gone away with lots of chelation, but a couple remain(real doozies). Id aprecieate any feedback from other parensts out there. You may email me privately or list. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2002 Report Share Posted March 12, 2002 B6 was miraculous for when he was tiny. we had him tested every year for deficiencies in other B vitamins. He also took magnesium to prevent a magnesium deficiency. He developed a thiamin deficiency after 5 years of B6 use, which was quickly resolved by giving him thiamin for a few days. [ ] B6 Hi everyone, Have any of you given B6 to your ASD child and seen a big difference? Have any of you heard of any side effects and what are the long term problem some of you may have experienced? Thank so much for your help. Nina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2005 Report Share Posted December 8, 2005 > > > My granddaughter had been using SNT. We took her off and changed to a multi that didn't have such high B5. We did this because since taking the enzymes it was too much B5. SNT is high B6. >>She has been doing better. She has now started to hit her head with her hand when she gets frusterated. We are wondering if it's because she needs more B6. We don't really want to do SNT - is there a B6 supplement that is separate. If you like Kirkman products, try the hypoallergenic NuThera. > I know we need to definitely add cal/mag but are wondering what dose as too much mag gives her very loose stools that she can't control Try starting at 500mg/250mg cal/mag, see if she does okay with that. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 Hi Amy, More than 500mg of B6 per day can cause irreversible nerve damage. This nerve damage can cause impaired walking, numbness, tingling and poor sense of touch. Those of us with CMT don't need anymore nerve problems! You might want to look in our Files section for the B6 folder and articles about it. One very important piece of info there is from noted CMT expert Garreth Parry, M.D. I hope your Christmas was wonderful. Wishing you and your family the very best in 2009. Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 You are so right Gretchen, ....that happened to me...don't fool around with the Vitamin B's! Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 Thanks, Gretchen. I did forward the article from Dr Parry to my doctor and Dr. Sheats, and basically their comment is that this is just " opinion " ...not scientific research.  Are you aware of any research studies that have been done on B6 and CMT?  All the best to you in the New Year! Amy Hodge   Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2009 Report Share Posted January 8, 2009 I'd be inclinded to try introducing the magnesium again slowly before increasing the B6. Arias wrote: > > I started the Taurine and it looked like it was doing some good. Still > impulsive at night and insomnia though. I started a drop (2.5mg) of > the B6 (liquid P5P). I watered it down and she isn't as wild as she > use to get on it, but she is definitely agitated and a little > impulsive. It is helping with focus. I am thinking of giving the > trying magnesium again... to see if this helps with the B6, and calms > things a bit or do you think I should up the B6 first? Thank You. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2009 Report Share Posted January 9, 2009 OK. This sounds good since she is really constipated! Thanks! On Jan 9, 2009, at 1:48 AM, Reynolds wrote: > I'd be inclinded to try introducing the magnesium again slowly before > increasing the B6. > > Arias wrote: > > > > I started the Taurine and it looked like it was doing some good. > Still > > impulsive at night and insomnia though. I started a drop (2.5mg) of > > the B6 (liquid P5P). I watered it down and she isn't as wild as she > > use to get on it, but she is definitely agitated and a little > > impulsive. It is helping with focus. I am thinking of giving the > > trying magnesium again... to see if this helps with the B6, and > calms > > things a bit or do you think I should up the B6 first? Thank You. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2009 Report Share Posted January 21, 2009 Elinor, I cant take to much of Vit.B6 ...I got muscle loss..real bad. Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2009 Report Share Posted March 19, 2009 Hello Gretchen, I called my Doctor, Dr Marinelli N,D, Naturopathic, Physician, and Acupuncturist, and asked him about B6. He told me there is no proven research that shows up to 250 mg of B6 is harmful to patients with CMT. Do you have any articles I could send him stating it is harmful? Thank you, Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2009 Report Share Posted March 20, 2009 Hi Kay, Look in our Files for B6 folder. In that, there is a statement by Dr. Gareth Parry, CMT expert, about B6. It has his phone # and fax I think too. Your doc can contact him about this. I think I have Dr. Parry's email somewhere too. Let me know if you need it. Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2009 Report Share Posted May 25, 2009 I got asked this question about Vit B6....... Is there any evidence that the studies that have been done for people with CMT apply to people who don't have CMT? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2009 Report Share Posted May 26, 2009 No! > > I got asked this question about Vit B6....... Is there any evidence that the studies that have been done for people with CMT apply to people who don't have CMT? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2009 Report Share Posted July 30, 2009 Vitamin B6 Use: Current as of 2009 – by CMT professional Gareth J. Parry, M.D. The RDA (recommended daily allowance) of vitamin B6 is 2 mg and the MDR (minimum daily requirement is 0.1-0.2 mg). The amount in a typical multivitamin is 5 mg although many have 10 mg and, obviously, some have 8 mg. There are several products available over the counter that contain 20 mg. All the research that has been done indicates that all of these doses are safe for normal people and I am not concerned for my CMT patients at these doses. Larger dose tablets can be found - there used to be a 500 mg tablet! In our studies, the lowest dose that we found to be definitely toxic to nerves was 500 mg daily; we had one patient who was adamant that she was taking only 200 mg daily who developed nerve damage although she was also taking a lot of B6-rich foods. One doctor in London, England claims that 50 mg daily can be toxic to the nerves but no one else has been able to show that. In summary, I tell my patients under no circumstances should they take more than 20 mg daily and I prefer them to take no more than 10 mg daily. 8 mg daily is certainly safe. Gareth J. Parry Department of Neurology University of Minnesota 612 624 6145 (Phone) 612 626 2131 (FAX) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2010 Report Share Posted June 8, 2010 Is this Restless Leg Syndrome? Was your daughter taking B6 prior to her labs? What does 'way too high' mean? Was an iron panel run and were the numbers low? You might want to try taking the iron with magnesium and making sure your daughter gets a lot of fluids and fiber in her diet. Pam > > My girl has RLS. The doctor said to try her on some iron and just follow the dosage on the bottle. Can anyone suggest a non-constipating iron? Thanks. My girl also showed that her B6 was way too high on her labs. Does anyone know what too much B6 means in a child? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2010 Report Share Posted June 8, 2010 Restless leg syndrome and " no " she was not taking iron prior to test On Jun 8, 2010, at 10:19 PM, Pamela H wrote: > Is this Restless Leg Syndrome? > > Was your daughter taking B6 prior to her labs? What does 'way too high' mean? Was an iron panel run and were the numbers low? > > You might want to try taking the iron with magnesium and making sure your daughter gets a lot of fluids and fiber in her diet. > > Pam > > > > > > My girl has RLS. The doctor said to try her on some iron and just follow the dosage on the bottle. Can anyone suggest a non-constipating iron? Thanks. My girl also showed that her B6 was way too high on her labs. Does anyone know what too much B6 means in a child? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2010 Report Share Posted June 9, 2010 Taking B6, I mean, prior to testing. In any supplements, fortified drinks/bars/foods? > > > > > > My girl has RLS. The doctor said to try her on some iron and just follow the dosage on the bottle. Can anyone suggest a non-constipating iron? Thanks. My girl also showed that her B6 was way too high on her labs. Does anyone know what too much B6 means in a child? > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2010 Report Share Posted June 9, 2010 She only thing she takes is Inositol, Lamictal, Magnesium and Melatonin. I gave her nothing that was loaded with B6 prior to testing. Wierd. On Jun 9, 2010, at 7:25 AM, Pamela H wrote: > Taking B6, I mean, prior to testing. In any supplements, fortified drinks/bars/foods? > > > > > > > > > > My girl has RLS. The doctor said to try her on some iron and just follow the dosage on the bottle. Can anyone suggest a non-constipating iron? Thanks. My girl also showed that her B6 was way too high on her labs. Does anyone know what too much B6 means in a child? > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2010 Report Share Posted June 11, 2010 For restless legs, I would give magnesium. Is he taking B6? My guess is that he needs to start B6 and magnesium and it will help this problem. > > > > > > My girl has RLS. The doctor said to try her on some iron and just follow the dosage on the bottle. Can anyone suggest a non-constipating iron? Thanks. My girl also showed that her B6 was way too high on her labs. Does anyone know what too much B6 means in a child? > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2010 Report Share Posted June 21, 2010 but when i give B6, she goes wild. On Jun 9, 2010, at 8:33 PM, Pamela H wrote: > Well, if her body isn't utilizing B6 (thus high levels in her blood), then she needs some B6. I've seen RLS linked to low iron and low B6. > > Just because there is too much B6 in the blood doesn't mean there is too much B6 in tissues. It is odd that B6 is high if there is no B6 being added to the diet via supplements or fortified foods. > > I suppose I wouldn't do anything until I talked to someone who knew more. > > Pam > > > > > > > > > > > > > > > > > > > > > > My girl has RLS. The doctor said to try her on some iron and just follow the dosage on the bottle. Can anyone suggest a non-constipating iron? Thanks. My girl also showed that her B6 was way too high on her labs. Does anyone know what too much B6 means in a child? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2010 Report Share Posted June 22, 2010 For my daughter's RLS, we managed to resolve by giving magnesium. Re: [ ] Re: B6 but when i give B6, she goes wild. On Jun 9, 2010, at 8:33 PM, Pamela H wrote: > Well, if her body isn't utilizing B6 (thus high levels in her blood), then she needs some B6. I've seen RLS linked to low iron and low B6. > > Just because there is too much B6 in the blood doesn't mean there is too much B6 in tissues. It is odd that B6 is high if there is no B6 being added to the diet via supplements or fortified foods. > > I suppose I wouldn't do anything until I talked to someone who knew more. > > Pam > > > > > > > > > > > > > > > > > > > > > > My girl has RLS. The doctor said to try her on some iron and just follow the dosage on the bottle. Can anyone suggest a non-constipating iron? Thanks. My girl also showed that her B6 was way too high on her labs. Does anyone know what too much B6 means in a child? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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