Guest guest Posted June 22, 2010 Report Share Posted June 22, 2010 Magnesium makes my child very very hyper and confused. On Jun 22, 2010, at 9:06 AM, yvonne kim wrote: > For my daughter's RLS, we managed to resolve by giving magnesium. > > > > Re: [ ] Re: B6 > > but when i give B6, she goes wild. > On Jun 9, 2010, at 8:33 PM, Pamela H wrote: > > > Well, if her body isn't utilizing B6 (thus high levels in her blood), then she needs some B6. I've seen RLS linked to low iron and low B6. > > > > Just because there is too much B6 in the blood doesn't mean there is too much B6 in tissues. It is odd that B6 is high if there is no B6 being added to the diet via supplements or fortified foods. > > > > I suppose I wouldn't do anything until I talked to someone who knew more. > > > > Pam > > > > > > > > > > > > > > > > > > > > > > > > > > My girl has RLS. The doctor said to try her on some iron and just follow the dosage on the bottle. Can anyone suggest a non-constipating iron? Thanks. My girl also showed that her B6 was way too high on her labs. Does anyone know what too much B6 means in a child? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2010 Report Share Posted June 22, 2010 so you tried the P5P? > > > > > > > > > > > > > > > > > > > > > > My girl has RLS. The doctor said to try her on some iron and just follow the dosage on the bottle. Can anyone suggest a non-constipating iron? Thanks. My girl also showed that her B6 was way too high on her labs. Does anyone know what too much B6 means in a child? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2010 Report Share Posted June 22, 2010 Try food based, like Megafoods Dailyfoods Vitamin B complex. My son couldn't tolerate synthetics till a few months into chelation. > > > > > > > > > > > > > > > > > > > > > > > > > > > > My girl has RLS. The doctor said to try her on some iron and just follow the dosage on the bottle. Can anyone suggest a non-constipating iron? Thanks. My girl also showed that her B6 was way too high on her labs. Does anyone know what too much B6 means in a child? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2010 Report Share Posted June 23, 2010 Her neurologist wants to give her medication to bring her B6 levels down. He said there too high. Others say her levels are high because her body is not utilizing the B6...How am I to know for sure??? On Jun 22, 2010, at 10:25 PM, Liz wrote: > Try food based, like Megafoods Dailyfoods Vitamin B complex. My son couldn't tolerate synthetics till a few months into chelation. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > My girl has RLS. The doctor said to try her on some iron and just follow the dosage on the bottle. Can anyone suggest a non-constipating iron? Thanks. My girl also showed that her B6 was way too high on her labs. Does anyone know what too much B6 means in a child? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2010 Report Share Posted June 23, 2010 How does the neurologist explain high B6 levels despite no supplementation or dietary reasons? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > My girl has RLS. The doctor said to try her on some iron and just follow the dosage on the bottle. Can anyone suggest a non-constipating iron? Thanks. My girl also showed that her B6 was way too high on her labs. Does anyone know what too much B6 means in a child? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > [Non-text portions of this message have been removed] > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2010 Report Share Posted June 23, 2010 I've forgotten if you have a DDI hairtest in your records. If so, is it recent? High hair zinc/low hair mag is an indicator that B6 should be supplemented. Also, a high ratio of calcium: phosphorus and low ratio of sodium: magnesium. All point to a need for B6. Blood test result below 50 for alkaline phosphatase is also an indicator. the above is all from Andy's book. To process/metabolize B6, you need the enzyme pyridoxil kinase. It also requires a form of B2 to further oxidize. I did some reading, and found info saying many ASD kids show high B6 in blood but low cellular levels of P5P. AND, zinc deficiency might be behind negative response to B6, since the pyridoxil kinase enzyme is zinc dependent and thus won't convert the B6 to useful P5P. Amino acid deficiency is also a potential reason as well as low magnesium. Lots of info coming from someone who can't really explain the hard chemistry/physiology behind it! I'm just tossing out what I read so maybe someone else can help or you can take this info to your MD. Pam > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > My girl has RLS. The doctor said to try her on some iron and just follow the dosage on the bottle. Can anyone suggest a non-constipating iron? Thanks. My girl also showed that her B6 was way too high on her labs. Does anyone know what too much B6 means in a child? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > [Non-text portions of this message have been removed] > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2010 Report Share Posted June 23, 2010 Thanks Pam On Jun 23, 2010, at 11:35 AM, Pamela H wrote: > I've forgotten if you have a DDI hairtest in your records. If so, is it recent? > > High hair zinc/low hair mag is an indicator that B6 should be supplemented. Also, a high ratio of calcium: phosphorus and low ratio of sodium: magnesium. All point to a need for B6. > > Blood test result below 50 for alkaline phosphatase is also an indicator. > > the above is all from Andy's book. > > To process/metabolize B6, you need the enzyme pyridoxil kinase. It also requires a form of B2 to further oxidize. > > I did some reading, and found info saying many ASD kids show high B6 in blood but low cellular levels of P5P. AND, zinc deficiency might be behind negative response to B6, since the pyridoxil kinase enzyme is zinc dependent and thus won't convert the B6 to useful P5P. Amino acid deficiency is also a potential reason as well as low magnesium. > > Lots of info coming from someone who can't really explain the hard chemistry/physiology behind it! I'm just tossing out what I read so maybe someone else can help or you can take this info to your MD. > > Pam > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > My girl has RLS. The doctor said to try her on some iron and just follow the dosage on the bottle. Can anyone suggest a non-constipating iron? Thanks. My girl also showed that her B6 was way too high on her labs. Does anyone know what too much B6 means in a child? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > [Non-text portions of this message have been removed] > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2011 Report Share Posted March 1, 2011 Group..... The doc wants to give me vit.B6 shots......What do you think? Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2011 Report Share Posted March 1, 2011 Hi Geri, Did you ask your Doc WHY he wants to give you B6 shots? Did he/she say you have a dietary deficiency for B6? If yes, proceed with caution...he/she may not understand that 'normal' B6 therapy (like for a person without CMT) won't help your CMT, could make it worse if given too much. Look up foods that have B6 in them and see how much you get now and compare that to the RDA. We've had lots of discussion on this before; check through the Archives and our Files. In the B6 file there is a short article on B6 and CMT doses by Gareth Parry, a CMT doc. Make sure, if you go ahead with the shots to make this info known to your Doc. Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2011 Report Share Posted March 1, 2011 Geri, I once took high doses of b6 with b12 and folic acid. I swear it caused nerve damage. There's a website where I get a 100% whole food supplement of b12, b6 and folate. It's called homocysteine care. You can tell your dr you want your homocysteine level checked. It should be below 6. The supplement has stuff in it to help you absorb it. The website is drbenkim and he explains what it does for you and the dangers of synthetic forms. It has 25 mg of b6 but I take half of a tablet in the morning and the other half at night with meals. This is not dangerous because b vitamins only stay in your system about 4 hours. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2011 Report Share Posted March 1, 2011 B12 is fine. B6 is not. On 28-Feb-11, at 11:21 PM, Geri Logan wrote: > I was thinking vit B 12 was so bad, It is B6 also.. > Thanks Geri > > Hi Geri, > > Did you ask your Doc WHY he wants to give you B6 shots? Did he/she > say you have a dietary deficiency for B6? If yes, proceed with > caution...he/she may not understand that 'normal' B6 therapy (like > for a person without CMT) won't help your CMT, could make it worse > if given too much. > > Look up foods that have B6 in them and see how much you get now and > compare that to the RDA. > > We've had lots of discussion on this before; check through the > Archives and our Files. In the B6 file there is a short article on > B6 and CMT doses by Gareth Parry, a CMT doc. Make sure, if you go > ahead with the shots to make this info known to your Doc. > > Gretchen > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2011 Report Share Posted March 1, 2011 Just a related question...so which B vitamins are not recommended for those with CMT? and in what amount? My teenage daughter has CMT1A and I have been giving her a BComplex on top of her multivitamin..total of 90 mg a day... Also are there any other vitamins that are not recommended? I would hate to be giving her something that would make her feel worse, not better. Thanks! > > Group..... > The doc wants to give me vit.B6 shots......What do you think? > > Geri > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2011 Report Share Posted March 1, 2011 We read that a diabetic should have 300 mg b6 a day - we take that and have no problems. We also take 1000 mcg b12. I don't have CMT but do have diabetic peripheral neuropathy. Hansen Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.