Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 Christel, Would you mind telling me what dose of OLE you used per day and how many days in a round? Also, how long did you pause in between rounds? Neither of our sons have had high titers but their OCD is really bad. We have never had luck with OLE, but maybe we need to stay on it longer. Thanks ahead of time, L Re: re: strep I know another mom on another board with a PANDAS kid, us with our and my aspie adult friend all got ours gone with OLE. we all did 2 rounds at least some of us 3 rounds of antibotics with out results or lowering of results. we are alleric to penicillian so it was never an option. we always see OCD increase and loose of potty training when we are suspect Recovering from Autism is a marathon NOT a sprint, but FULLY possible! Read more about it on my Blogs at http://www.myspace. <http://www.myspace.com/christelking> com/christelking Re: re: strep : This sounds like its out of my league too, but without hearing how she is or why you are concerned about this right now I am really in the dark. What led you to do the strep tests? Are seizures increasing? (I have not heard of a connection between strep infection and seizures, have you?) Any sore throat? Fever? Has she been around the relative (daughter's nephew) while he had an active strep infection lately? I know of no way to diagnose CNS strep other than to do a culture of cerebro-spinal fluid, but would not want to do a spurious spinal tap unless high fever or some striking clinical evidence indicated a brain infection. Elevated CRP is definitely related to inflammation, but non-specific, so that does not help much. Doing a throat culture without a sore throat would probably be an exercise in futility, and doing a stool analysis would probably be the same without some stool symptoms like diarrhea or constipation. I prefer IM penicillin for PANDAS treatment for kids with autism who have fragile gi systems and strong vulnerability to gut pathogen invasion - I don't know whether your daughter would be in this category. I think I would need more info about her symptoms and status generally to say any more. Dr. JM --- mbrookh <mbrookhyahoo (DOT) <mailto:mbrookh%40yahoo.com> com> wrote: > My daughter's ASO just came back 103.5[0-200] and > Anti-DNase B Strep > 1:340[adult<1:85]. ASO in the past has been lower. > DNase has never > been done. In prior years CRP has been elevated when > my daughter > seemed 'sick' to me - no symptoms that were > objective like fever, > elevated WBC, lethargy etc. ASO and anti-DNase were > performed because > 1)there's family history of strep problems[rheumatic > fever] and 2)my > daughter's nephew, now 8, has strep several times > per year with his > only symptom being OCD. He was on the spectrum as a > toddler but is > recovered except for this recurring strep issue. My > questions - can > the CRP also indicate this strep problem? Would > cultures be of > benefit? Where to culture - if the strep is deep in > the bowel do > throat/nasal cultures grow it? Do such cultures need > extended growth > time for chronic problems? If this has been a long > term problem[she > is 23 now and was ALWAYS better on penicillin the > few times she had > it as a as a toddler] what type of treatment could > be beneficial? If > penicillin, oral or IM? How long? Does > ANti-DNase/ASO go down quickly > with treatment? Does the strep/biofilm theory relate > here - she has > the elevated oxalates and hippuric acid on OAT. If > so, does treatment > with penicillin do much if the strep colonies are > growing in a > protected environment? does it need a longer course > to be effective? > Can I assume that a strep problem relates to seizure > activity? Is CNS > strep diagnosable independent of these blood levels? > Sorry about all > the ? I'm out of my league. Thanks, > > ---------------------------------------------------------- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.17.13/1207 - Release Date: 1/2/2008 11:29 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 we do between 450-500 mgs 3 times a day Recovering from Autism is a marathon NOT a sprint, but FULLY possible! Read more about it on my Blogs at http://www.myspace.com/christelking Re: re: strep : This sounds like its out of my league too, but without hearing how she is or why you are concerned about this right now I am really in the dark. What led you to do the strep tests? Are seizures increasing? (I have not heard of a connection between strep infection and seizures, have you?) Any sore throat? Fever? Has she been around the relative (daughter's nephew) while he had an active strep infection lately? I know of no way to diagnose CNS strep other than to do a culture of cerebro-spinal fluid, but would not want to do a spurious spinal tap unless high fever or some striking clinical evidence indicated a brain infection. Elevated CRP is definitely related to inflammation, but non-specific, so that does not help much. Doing a throat culture without a sore throat would probably be an exercise in futility, and doing a stool analysis would probably be the same without some stool symptoms like diarrhea or constipation. I prefer IM penicillin for PANDAS treatment for kids with autism who have fragile gi systems and strong vulnerability to gut pathogen invasion - I don't know whether your daughter would be in this category. I think I would need more info about her symptoms and status generally to say any more. Dr. JM --- mbrookh <mbrookhyahoo (DOT) <mailto:mbrookh%40yahoo.com> com> wrote: > My daughter's ASO just came back 103.5[0-200] and > Anti-DNase B Strep > 1:340[adult<1:85]. ASO in the past has been lower. > DNase has never > been done. In prior years CRP has been elevated when > my daughter > seemed 'sick' to me - no symptoms that were > objective like fever, > elevated WBC, lethargy etc. ASO and anti-DNase were > performed because > 1)there's family history of strep problems[rheumatic > fever] and 2)my > daughter's nephew, now 8, has strep several times > per year with his > only symptom being OCD. He was on the spectrum as a > toddler but is > recovered except for this recurring strep issue. My > questions - can > the CRP also indicate this strep problem? Would > cultures be of > benefit? Where to culture - if the strep is deep in > the bowel do > throat/nasal cultures grow it? Do such cultures need > extended growth > time for chronic problems? If this has been a long > term problem[she > is 23 now and was ALWAYS better on penicillin the > few times she had > it as a as a toddler] what type of treatment could > be beneficial? If > penicillin, oral or IM? How long? Does > ANti-DNase/ASO go down quickly > with treatment? Does the strep/biofilm theory relate > here - she has > the elevated oxalates and hippuric acid on OAT. If > so, does treatment > with penicillin do much if the strep colonies are > growing in a > protected environment? does it need a longer course > to be effective? > Can I assume that a strep problem relates to seizure > activity? Is CNS > strep diagnosable independent of these blood levels? > Sorry about all > the ? I'm out of my league. Thanks, > > ---------------------------------------------------------- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.17.13/1207 - Release Date: 1/2/2008 11:29 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2008 Report Share Posted January 6, 2008 Thank you, L Re: re: strep: Christel we do between 450-500 mgs 3 times a day Recovering from Autism is a marathon NOT a sprint, but FULLY possible! Read more about it on my Blogs at http://www.myspace. <http://www.myspace.com/christelking> com/christelking Re: re: strep : This sounds like its out of my league too, but without hearing how she is or why you are concerned about this right now I am really in the dark. What led you to do the strep tests? Are seizures increasing? (I have not heard of a connection between strep infection and seizures, have you?) Any sore throat? Fever? Has she been around the relative (daughter's nephew) while he had an active strep infection lately? I know of no way to diagnose CNS strep other than to do a culture of cerebro-spinal fluid, but would not want to do a spurious spinal tap unless high fever or some striking clinical evidence indicated a brain infection. Elevated CRP is definitely related to inflammation, but non-specific, so that does not help much. Doing a throat culture without a sore throat would probably be an exercise in futility, and doing a stool analysis would probably be the same without some stool symptoms like diarrhea or constipation. I prefer IM penicillin for PANDAS treatment for kids with autism who have fragile gi systems and strong vulnerability to gut pathogen invasion - I don't know whether your daughter would be in this category. I think I would need more info about her symptoms and status generally to say any more. Dr. JM --- mbrookh <mbrookhyahoo (DOT) <mailto:mbrookh%40yahoo.com> com> wrote: > My daughter's ASO just came back 103.5[0-200] and > Anti-DNase B Strep > 1:340[adult<1:85]. ASO in the past has been lower. > DNase has never > been done. In prior years CRP has been elevated when > my daughter > seemed 'sick' to me - no symptoms that were > objective like fever, > elevated WBC, lethargy etc. ASO and anti-DNase were > performed because > 1)there's family history of strep problems[rheumatic > fever] and 2)my > daughter's nephew, now 8, has strep several times > per year with his > only symptom being OCD. He was on the spectrum as a > toddler but is > recovered except for this recurring strep issue. My > questions - can > the CRP also indicate this strep problem? Would > cultures be of > benefit? Where to culture - if the strep is deep in > the bowel do > throat/nasal cultures grow it? Do such cultures need > extended growth > time for chronic problems? If this has been a long > term problem[she > is 23 now and was ALWAYS better on penicillin the > few times she had > it as a as a toddler] what type of treatment could > be beneficial? If > penicillin, oral or IM? How long? Does > ANti-DNase/ASO go down quickly > with treatment? Does the strep/biofilm theory relate > here - she has > the elevated oxalates and hippuric acid on OAT. If > so, does treatment > with penicillin do much if the strep colonies are > growing in a > protected environment? does it need a longer course > to be effective? > Can I assume that a strep problem relates to seizure > activity? Is CNS > strep diagnosable independent of these blood levels? > Sorry about all > the ? I'm out of my league. Thanks, > > ---------------------------------------------------------- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.17.13/1207 - Release Date: 1/2/2008 11:29 AM Quote Link to comment Share on other sites More sharing options...
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