Re: Tribute to Jill in EDS Today!

[Guest guest]

> I must add though that credit for the tribute article goes to >

Bowen, not me. The memorials and tributes are

>'s column and she does a beautiful job compiling

>articles, getting photos and working with families

> that have lost loved ones. She is truly dedicated to

>making sure that no one forgets the faces and lives

>behind the medical diagnosis of EDS. We are

> people, not just a connective tissue disorder, and her

>column reminds our non-EDS readers of that in a very >inspirational and

heartfelt way.

Barb,

Thank you so much for the wonderful acknowledgment -

Those beautiful words, you said it so well...

Thank-you!

> I must also apologize publicly to Jill and for the omission of their

photos in this issue.

Barb, no apologize was necessary, it wasn't you fault....

Ok! I forgive you....but I don't know if Jill will....haha!!!!

Love ya,

[Guest guest]

Wow, what an honour - thank you so much!! I am rather low on the totem pole

in terms of those to honour I'm afraid, there are many more heroes who fight

their battles daily and to all of you - I remove my hat and give you a long

and graceful bow of appreciation and awe!

Thanks Barb for this wonderful tribute, it is thoughtful, wonderful and is

one that I gladly share with Bowen - despite our absent pictures!

Jill

[Guest guest]

Re: Tribute to Jill in EDS Today!

> Wow, what an honour - thank you so much!! I am rather low on the totem

pole

Jill, you are soooo humble! Yes, you DO deserve the accolades from all of

us. I thank you every day for having this wonderful group because I find

lots of support and help from you and the rest of the members.

I received my EDS Today but haven't had time to look at it yet.

We were gone all day with my dad and sister. See next email for details of

the great day!

Bonnie

[Guest guest]

,

> Thank you so much for the wonderful acknowledgment -

> Those beautiful words, you said it so well...

> Thank-you!

You're welcome.

Often people associate my name with EDS Today because I am the editor, they

are mailed from Seattle, and I answer the email. The truth is that EDS

Today is a team effort. Bowen and are an important

part of that team. Without them, this newsletter wouldn't have started. I

just joined in at the last minute when they needed editing and layout help.

In addition, we have several other people working in the background. Some

write articles, some help me edit when my eyes are tired of looking at the

same pages 50 times, some help with labeling and stamping, and some just

send money to help us cover costs. Each and every one of our volunteers has

and deserves my gratitude.

-Barb

[Guest guest]

Jill,

> Wow, what an honour - thank you so much!! I am rather low on the totem

pole

> in terms of those to honour I'm afraid, there are many more heroes who

fight

> their battles daily and to all of you - I remove my hat and give you a

long

> and graceful bow of appreciation and awe!

Yes, Jill, but stop and think for a moment how many people are able to fight

their battles more effectively because of the support from this list or

because of information they received from CEDA. As long as you live, you

will never truly know the measure of your impact on the lives of those

you've helped. But I hope you do know that your efforts on our behalf is

appreciated.

-Barb