Guest guest Posted November 25, 2009 Report Share Posted November 25, 2009 Surgery does not stop the progressive bone deformity; it does not cure the disease That's why it's usually recommended as a last resort I suggest you read this: http://www.mda.org/Publications/Quest/q135cmt_foot.html > > Hi, > > My son is 8 yrs.old. Having CMT type 2,with moderate foot drop. He is using AFOs. Is the bone fixing surgery essential for him to stop bone deformity? > > I also had that surgery,at the age of 16 yrs. > > -Leena. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2009 Report Share Posted November 27, 2009 Leena, Children's bones are not done growing by age 8. You didn't say what the surgery would entail, but I would definitely get a 2nd opinion. Soft tissue surgeries done in early childhood can make a difference in quality of life in the future. However, there is no surgery that will take away CMT or the progression of it. That is determined by each individual's genetic code. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2009 Report Share Posted December 3, 2009 Leena, The AFOs help keep the bones straight. When my kids were young I was wondering the same about surgeries. So far so good with two of them. My older son did have surgery but that was after a car accident had immobilized him for a long time and he was out of his AFOs. So please don't worry about any surgeries yet. You might be able to avoid it. [Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2009 Report Share Posted December 10, 2009 Thanks ,. From: MommyToJase@... <MommyToJase@...> Subject: Re: Bone fixing surgery Date: Friday, December 4, 2009, 7:22 AM Â Leena, The AFOs help keep the bones straight. When my kids were young I was wondering the same about surgeries. So far so good with two of them. My older son did have surgery but that was after a car accident had immobilized him for a long time and he was out of his AFOs. So please don't worry about any surgeries yet. You might be able to avoid it. Quote Link to comment Share on other sites More sharing options...
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