Boston Support Group Jan. 24th meeting

[Guest guest]

Boston Area Resident Spearheads Outreach Efforts for New England Area

CMT Patients

New England area residents who suffer from Charcot Marie Tooth (CMT)

disorder, a debilitating form of hereditary peripheral neuropathy,

can participate in the second support group meeting to be held at the

Beth Israel Deaconess Medical Center- 330 Brookline Avenue - Boston,

MA. on Saturday, January 24, 2009 from 1 p.m. to 3 p.m. in the

Trustman Boardroom, Shapiro Building - Second Floor ( handicapped

accessible)

Attendees will be treated to a very informative and timely

presentation co-produced by Dr. Naven Duggal, CMT Foot and Ankle

Specialist, BIDMC and Mike Bonnar: C.O., P.T.A. from NOPCO (National

Orthotic and Prosthetics Company. NOPCO is the inventor of

the " Boston Brace " ) This presentation will enlighten attendees as to

the latest cutting edge technology involving orthotics, bracing, and

other supportive devices available to assist CMT patients with

mobility and balance issues.

Support Group Leader, Mark Boxshus, will also present a video

presentation recapping the highly successful Western CMTA

Family/Patient/Physician Conference which was held in Palo Alto, CA

on November 8, 2008. Additionally, he will discuss the association's

newest and " soon to be released " fund raising project - The CMTA

Cookbook........ " Alphabet Soup.........The ABC's of Comfort Food for

Shattered Nerves " and the importance of group participation.

Charcot Marie Tooth Disease affects one in 2,500 people - 2.6 million

people worldwide. CMT is a progressive disorder that causes the

nerve cells leading to the bodies extremities to slowly degenerate

resulting in loss of normal use of the hands/arms and legs/feet. It

may also lead to the loss of sensory functions and deformities. CMT

strikes all ages, genders, races and ethnicities. People with CMT

loose their ability to perform daily activities that are often taken

for granted.

Sponsored by the Charcot Marie Tooth Association, the New England

Chapter is spearheaded Mark Boxshus of Hull who has CMT.

" I am committed to working with the Charcot Marie Tooth Association

to help find a cure for this debilitating disease, and creating the

New England Support Group for area residents is the perfect

opportunity to provide information, education and guidance for those

suffering from this disorder " Boxshus said.

For further information on the New England Charcot Marie Tooth

Association Support Group meeting, contact Mark Boxshus at

MarkB_CMTANE@... or 781-925-4254. Refreshments and door prizes

will be provided, and there will be CMTA t-shirts available for

purchase.