Re: Any Docs doing research on mitichondra repair for GDAP1

January 21, 2009

Hi ,

The Miami Institute for Human Genomics (in Miami, Florida) is doing

extensive research on CMT Type 2's. Drs. Zuchner and Jeffery

Vance are working on this.

zuchner.html

vance-md-phd.html

Also, here in Calif. at Cal Tech, Dr. Chan is working on

As for therapies used on MS being used on CMT, while they are both

neurological disorders, they are entirely different. CMT Dr. Greg

explains this well. Go to our Files section, and look for the

folder Difference in CMT, MS and MD. Click to open and read about the

differences.

The CMTA has an exciting multi-dimensional research project, STAR, of

which is funding extensive research that began Summer 2007 in Europe,

There is a trial going on now on Q10

It is just too early for us to know if/and how Vitamin C - Ascorbic Acid - work

on CMT 1A, yet other types, but many of our members are using " C " with

good results. There has been a bit of research on Vitamin E which you can find

in our Files. If you look in the folder on " Supplements " you will find some info

too.

There is a Dr. doing " peripheral nerve repair " but this is unknown if it could

be helpful for CMT. Dr. Dellon's website is http://www.dellon.com/

There are many research projects going on all over the world for CMT,

Japan, China, Australia, India, Turkey, Israel, Europe, Canada,

Brazil, etc. It just takes a ton of $$$$$ to keep research funded and grants are

extremely competitive.

Gretchen

January 21, 2009

Gretchen,

I can't thank you enough.

You are an inspiration, and I hope to help others as you have done for me.

Keep up the good work. It is appreciated!

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