Re: Seeking information about nerve stimulator device

[Guest guest]

Walkaide is not for people with CMT because of adverse sensory deprivation, skin

irritations, burning. Check our Archived posts on this.

[Guest guest]

I'm a bit confused, and would like some clarification.

This device is intended for people who already have sensory deprivation, and

those of us with CMT already have sensory deprivation, so how could we suffer

'adverse' sensory deprivation? I'm just curious if anyone with CMT has actually

tried this device, and if so, how do the pros/cons stack up?

>

> Walkaide is not for people with CMT because of adverse sensory deprivation,

skin irritations, burning. Check our Archived posts on this.

>

[Guest guest]

Hi Maura

I saw this news clip awhile back - still seeking government approval

and its in Canada (my home country)

Its not Walkaide but a new implant.

visit news site here CTV News

<http://www.ctv.ca/servlet/ArticleNews/story/CTVNews/20090621/neurostep_\

090621/>

Take care

[Guest guest]

One professional let me try this in 2007, in Pasadena, CA.

My leg muscles didn't respond. That is, the muscles stimulated are

not the muscles weakened/atrophy by CMT.

I am not sure whether this is only my own problems or the same

problems for all CMT people.

Caroline in Taiwan

[Guest guest]

Maura,

My Orthotist said is would not work for CMTers because it need one normal leg. 

It won't work when both legs have foot drop.  I did try it anyway and it was

very painful.

Lyn from S. California

[Guest guest]

Lyn,

What was painful? Was it like an electric shock?

Ziegler

Re: Seeking information about nerve stimulator device

Maura,

My Orthotist said is would not work for CMTers because it need one normal leg.

It won't work when both legs have foot drop. I did try it anyway and it was

very painful.

Lyn from S. California

[Guest guest]

Maura,

Yes it was electrical current that felt like an electric shock. It was the shock

that would cause the leg to take a step.  Even if the device could work me, it

was much to painful for me to use.  I told that orthotist, " I'm staying with the

leg braces. "

Lyn