Guest guest Posted June 16, 2008 Report Share Posted June 16, 2008 ALL, RE: PRESS RELEASE Attached is a Genetic Centers of America PRESS RELEASE covering recent changes in the clinical practice guidelines for genetic screening of patients with an autism spectrum diagnosis and a copy of those guidelines. RE: THOSE NOT ACCEPTING E-MAIL ATTACHMENTS For those who do not get SUCH, the follow- ing is the rough-text of the Press Release's text: > >Genetic Centers of America Launches Landmark, >National Autism Evaluation and Treatment Program > > >Press Release Contact: > >For Immediate Release The Genetic Centers of > America > >June 16, 2008 Mark R. Geier, M.D., Ph.D., > FACMG, FACE (tel: ) > >WASHINGTON, DC – Newly published clinical practice >guidelines in the journal of Genetics in Medicine,[1] >the official journal of the American Medical >Association recognized board of the American >College of Medical Genetics, recommends the routine >evaluation and management of all patients diagnosed >with an autism spectrum disorder (ASD) by clinical >geneticists. In response, the Genetic Centers of >America has launched a landmark, national outreach >program to provide clinical genetic services to the >underserved population of persons diagnosed with an >ASD. > >ASDs are a collection of symptoms, characterized by >impaired socialization and communication in >association with stereotypic behaviors. The reported >incidence of ASDs has increased markedly over the >past decade. In addition, lay and professional groups >have paid great attention to ASDs. These cicumstances >have resulted in a marked increase in referrals to >clinical geneticists for evaluation of persons with >ASDs. > >According to the newly published practice guidelines >from the American College of Medical Genetics, >“The primary role of the geneticist in this process >is to define etiology, if possible, and to provide >counseling and contribute to case management based >on the results of such investigations.” > >Further, these practice guidelines recommend that >the clinical geneticist should confirm the diagnosis, >fully disclose the potential benefits and drawbacks >of any treatment with the patient/guardians, >communicate with the medical community serving the >patient, consider emerging treatments in light of >evidence based medicine, elucidate the biological >syndromes related to autism spectrum disorders, >and plan a course of treatment based upon the >particularities of a patient and their medical >history. > >In response to these new guidelines, Dr. Mark Geier, >President of The Genetic Centers of America and >a founding fellow of the American College of Medical >Genetics, has stated, “The new guidelines are a >godsend to parents of children with an ASD diagnosis. >For the first time, an American Medical Association >certified board has formally recommended that all >patients diagnosed with an ASD be seen and fully >worked-up by a geneticist. These guidelines should >make it very difficult for any health plan or >physician to deny children on the spectrum the full >medical care to which they are entitled.” > >The Genetic Centers of America, specializing in the >management of genetic evaluations for more than 28 >years, presently has one of the nation’s largest >private clinical genetics practices offering >management and treatment of patients diagnosed with >an ASD. Further, the Genetic Centers of America, >working in collaboration with the non-profit 501©3 >Institute of Chronic Illnesses, has contributed to >more than 20 recent peer-reviewed studies helping >to define the etiology and management of ASD in a >patient population. > > ______________________________________________ > >For more information about how to schedule a genetic >consultation with the Genetic Centers of America for >a loved one who has been diagnosed with an ASD, > please call (301)989-0548. > >To financially support research conducted by the >Institute of Chronic Illnesses, Inc. on the etiology >and management of patients diagnosed with an ASD, >please send your tax-deductible contributions to: >The Institute of Chronic Illnesses, 14 Redgate Ct., >Silver Spring, MD 20905. The Institute of Chronic >Illnesses, Inc. is a not-for-profit 501©3 >corporation actively engaged in the scientific study >of the basis of human chronic diseases, with a special >emphasis on autism spectrum disorders. > >---------- > >[1] Schaefer GB, Mendelsohn NJ, et al. Clinical > genetics evaluation in identifying the etiology > of autism spectrum disorders. Genet Med. 2008 > Apr;10(4):301-5. > >Attachment Converted: > " c:\eudora\attach\Clinical genetics evaluation in identifying the etiology of ASDs11.pdf " > Hopefully, most will find this Press Release to be informative. ******************************************* *The information provided in this email * *and any attachment thereto is just that * * -- information. * * * *It is not medical advice and it does not * *require any specific action or actions. * * * *While the information is thought to be * *accurate, no representation is made as * *to the accuracy of the information posted* *other than it is my best understanding of* *the facts on the date that this email and* *any attachments thereto are posted. * * * *Everyone should verify the accuracy of * *the information provided for themselves * *before acting on it. * ******************************************* Respectfully, Dr. King http://www.dr-king.com +++++++++++++++++++++++++++++++++++++++++++ Quote Link to comment Share on other sites More sharing options...
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