Guest guest Posted September 25, 2008 Report Share Posted September 25, 2008 Grace, before you judge her, I would recommend you read her book. It’s available at most local libraries. Pamela Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2008 Report Share Posted September 25, 2008 Just thought I'd weigh in on the topic of recovery. I am one of the fortunate parents of a completely recovered child. My son was diagnosed at age 2 with PDD-NOS and his diagnosis was removed in time to go to a typical kindergarten (no more services of any kind were needed). He is now almost 8, in 3rd grade, and doing amazingly well! You would never know he had ever been on the spectrum. We still have him on a GFCF, egg-free diet. I have no idea if he would regress if we took him off the diet but I am not willing to risk it. He's used to eating the way he does now and he's fine with it. Occasionally we'll get him french fries out at a restaurant with possible cross-contamination and he will say later that his stomach hurts but that is about all we see. He is still on quite a few supplements but they are mostly for his immune system, ie. Transfer Factor, Vitamin C, etc. I have a friend who also had a recovered son who had been on the SCD diet. She told me that she took him off the diet and now he has more ADHD behaviors. That was all the evidence I needed to keep my son on his diet. It's a hassle of course but it's so worth it! I just started reading 's new book by the way and I'm only a few chapters into it but I've already cried several times and laughed out loud. She does have a note in her book too that says she is donating a portion of the proceeds to Generation Rescue. I personally just love that woman for speaking up for all of us! Kerry > > I am sure this has been covered but on the webcast tonight she said she still monitors Evan;s diet and that she packs a lunch when he goes to party. > > Personally I think recovered does not have to mean off diet, if your allergic to peanuts you could recover from the allergic reaction but you can't eat some more. > > > > > > > Re: McCarthy > > > has said that her son isn't cured but recovered. I wonder if he was taken off the diet and other interventions she is doing how he would be. Also, the other recovered children, are they on an maintanence of interventions? > > C. > Primer who lives in Oceansidebut is in CarlsbadUnifiedSchool District > ~All truth passes through three stages. First, it is ridiculed. Second, it is violently opposed. Third, it is accepted as being self- evident. -- Arthur Schopenhauer > ~Well-behaved women seldom make history~ Laurel Thatcher Ulrich > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2008 Report Share Posted September 25, 2008 Thank you Kerry! There is nothing I like more than hearing of another recovery. Continues to give me hope and encourages my drive even more. These stories are excessively important. - From: EOHarm [mailto:EOHarm ] On Behalf Of bucknwaters2003 Sent: Thursday, September 25, 2008 1:07 PM To: EOHarm Subject: Re: McCarthy Just thought I'd weigh in on the topic of recovery. I am one of the fortunate parents of a completely recovered child. My son was diagnosed at age 2 with PDD-NOS and his diagnosis was removed in time to go to a typical kindergarten (no more services of any kind were needed). He is now almost 8, in 3rd grade, and doing amazingly well! You would never know he had ever been on the spectrum. We still have him on a GFCF, egg-free diet. I have no idea if he would regress if we took him off the diet but I am not willing to risk it. He's used to eating the way he does now and he's fine with it. Occasionally we'll get him french fries out at a restaurant with possible cross-contamination and he will say later that his stomach hurts but that is about all we see. He is still on quite a few supplements but they are mostly for his immune system, ie. Transfer Factor, Vitamin C, etc. I have a friend who also had a recovered son who had been on the SCD diet. She told me that she took him off the diet and now he has more ADHD behaviors. That was all the evidence I needed to keep my son on his diet. It's a hassle of course but it's so worth it! I just started reading 's new book by the way and I'm only a few chapters into it but I've already cried several times and laughed out loud. She does have a note in her book too that says she is donating a portion of the proceeds to Generation Rescue. I personally just love that woman for speaking up for all of us! Kerry > > I am sure this has been covered but on the webcast tonight she said she still monitors Evan;s diet and that she packs a lunch when he goes to party. > > Personally I think recovered does not have to mean off diet, if your allergic to peanuts you could recover from the allergic reaction but you can't eat some more. > > > > > > > Re: McCarthy > > > has said that her son isn't cured but recovered. I wonder if he was taken off the diet and other interventions she is doing how he would be. Also, the other recovered children, are they on an maintanence of interventions? > > C. > Primer who lives in Oceansidebut is in CarlsbadUnifiedSchool District > ~All truth passes through three stages. First, it is ridiculed. Second, it is violently opposed. Third, it is accepted as being self- evident. -- Arthur Schopenhauer > ~Well-behaved women seldom make history~ Laurel Thatcher Ulrich > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2008 Report Share Posted September 25, 2008 I completely agree . I also appreciate that many of you with recovered children keep helping those recovering our kids. Primer who lives in Oceanside but is in Carlsbad Unified School District ~All truth passes through three stages. First, it is ridiculed. Second, it is violently opposed. Third, it is accepted as being self-evident. -- Arthur Schopenhauer ~Well-behaved women seldom make history~ Laurel Thatcher Ulrich Re: McCarthy> > > has said that her son isn't cured but recovered. I wonder if he was taken off the diet and other interventions she is doing how he would be. Also, the other recovered children, are they on an maintanence of interventions? > > C. > Primer who lives in Oceansidebut is in CarlsbadUnifiedScho ol District> ~All truth passes through three stages. First, it is ridiculed. Second, it is violently opposed. Third, it is accepted as being self-evident. -- Arthur Schopenhauer> ~Well-behaved women seldom make history~ Laurel Thatcher Ulrich> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2008 Report Share Posted September 25, 2008 > has said that her son isn't cured but recovered.< I thought I heard tell Oprah her son doesn't have autism now. C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2008 Report Share Posted September 25, 2008 My grandson was started on the diet at age 3, he is 12 now. He is still has moderate/severe autism. He has very little pragmatic language. When there is a dietary infraction though, we totally lose him, and there is no intelligible speech. So it does help him but he has not recovered from autism. He gets supps too. C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2008 Report Share Posted September 25, 2008 He doesn't have autism, but she would still rather use the word recovered than cured. Subject: Re: McCarthyTo: EOHarm Date: Thursday, September 25, 2008, 5:20 PM > has said that her son isn't cured but recovered.< I thought I heard tell Oprah her son doesn't have autism now. C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2008 Report Share Posted September 25, 2008 he doesn't have the label of autism anymore, has some auditory processing issues, but it's not a cure it's a recovery. Cure is too absolute, anyone with immune dysfuction is going to continue needing some level of help, that's why the word recovery not cure. But it doesn't seem to be stopping any of the writers to be subsituting the word cure for her word recover. - From: EOHarm [mailto:EOHarm ] On Behalf Of Carlson Sent: Thursday, September 25, 2008 5:20 PM To: EOHarm Subject: Re: McCarthy > has said that her son isn't cured but recovered.< I thought I heard tell Oprah her son doesn't have autism now. C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2008 Report Share Posted September 26, 2008 Come on, . You know that the dx of autism is based on symptoms. CGF > > > has said that her son isn't cured but recovered.< > > I thought I heard tell Oprah her son doesn't have autism now. > > C. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2008 Report Share Posted September 26, 2008 When I saw her present in she did indicate her son still had some issues but he did not have autism any longer. He does still have his seizure disorder though I think. Carolyn > > > has said that her son isn't cured but recovered.< > > I thought I heard tell Oprah her son doesn't have autism now. > > C. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2008 Report Share Posted November 18, 2008 http://www.cnn.com/CNN/Programs/larry.king.live > > someone posted on another site that she would be on Larry King Live on Nov 22nd. > I cannot verify this. > > Maurine > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2008 Report Share Posted November 18, 2008 Did you see that it has a place to send in your questions for McCarthy? I just sent a question. Lots of questions will show the producers Larry King that this is a very worthy show. Send in questions to support McCarthy. LynneGet the Moviefone Toolbar. Showtimes, theaters, movie news more! Quote Link to comment Share on other sites More sharing options...
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