Re: What is the single most important thing PT has done for you?

[Guest guest]

Although I do not go to PT, I have talked with PT's, and in the past have tried

to do some " exercise " . I would have to say the SINGLE most important thing PT

has done for me is to know that keeping our core strong will help to keep our

balance and strength, even though they progressively diminish. MUSCLE MEMORY is

also interesting, with electro stimulation the memory comes back and I have

regained some movement in my feet/ankles.

Velvida

[Guest guest]

It helped me so much. It increased my walking ability a lot including

speed, being able to walk backwards again, range of motion.

Bobbie

[Guest guest]

gretchen,

the most inportant thing the pt has done for me is to get me trying different

things, and just get me moving. my husband has problems with RA among other

things, and he does not do anything but watch tv. i will not be like that. i

have been trying things with PT and walking, the last 6 weeks, so the 3 G's -

get up, get dressed, get out are for me.

tina

cmt1a

michigan

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[Guest guest]

Hi Gretchen,

 

I had PT for my back after a fall.  I learned how to move properly so as to

reduce injury, i.e. getting in/out of a car/chair/bed, etc.  I also learned the

proper technique for applying ice and heat after a flare-up.

 

I had PT other times, for leg injury and back pain, but received no benefit.. 

With leg injury, I could not regain lost strength even after a year of PT.  We

didn't know I had CMT.

 

[Guest guest]

Yoga, via yogatuneup, will do this too. I have regained large portions of

balance, coordination, strength, proprioception and achieved great weight loss

(+/- 30 pounds, mostly without leaving the floor.)

Kriya yoga, which is one of the meditation methods, has also done much to help

keep the world from encroaching in on me, as losing

continuously all these things above has been overwhelming for the past 40 years.

[Guest guest]

OOPS!  I mean Tina!

Re: What is the single most important thing PT has done for

you?

gretchen,

the most inportant thing the pt has done for me is to get me trying different

things, and just get me moving. my husband has problems with RA among other

things, and he does not do anything but watch tv. i will not be like that. i

have been trying things with PT and walking, the last 6 weeks, so the 3 G's -

get up, get dressed, get out are for me.

tina

cmt1a

michigan

__________________________________________________________

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[Guest guest]

Amen, Gretchen!  PT has never really done anything for me but send me big bills!

 I use the same approach...get up, get dressed and GET OUT!  Once I start moving

I am so motivated to get things done.

Karon

gretchen,

the most inportant thing the pt has done for me is to get me trying different

things, and just get me moving. my husband has problems with RA among other

things, and he does not do anything but watch tv. i will not be like that. i

have been trying things with PT and walking, the last 6 weeks, so the 3 G's -

get up, get dressed, get out are for me.

tina

cmt1a

michigan

__________________________________________________________

Get your vacation photos on your phone!

http://windowsliveformobile.com/en-us/photos/default.aspx? & OCID=0809TL-HM

[Guest guest]

The PT's I have gone to in the past were not familiar with CMT and I felt I was

explaining everything to them and THEN had to pay them. I went online instead to

get exercises. I had a problem with my SI joint and with the help from a

cortisone shot and stretching exercises at home, I am lucky that's all I need

(at least for now)!

Karon in San Diego

It helped me so much. It increased my walking ability a lot including

speed, being able to walk backwards again, range of motion.

Bobbie

[Guest guest]

I had PT as a kid and it didn't do anything for me so I was taken out of the

program.

[Guest guest]

This is a very good question.

I am now doing one exercise --- using my toes to grab the floor

benefit of this exercise ----I can do this exercise everywhere, anytime,

This exercise works for me. I feel my feet and legs have more strength.

Caroline Liu

Taiwan

[Guest guest]

I too had tried physical therapy 20 years ago and after trying to use the lap

bands and a couple of other small exercises, they said they really could not

help me and tha physical therapy was not for me (what BS)

Now I started physical therapy 6 months ago with someone who understands

neurological problems and had worked with many people over the last 30 years

including many with MS. Well, I just got back from a vacation to my home town

and most of my family and friends had not seen me in 9 months and all commented

on how much better I was walking, that I was not waddling as much and seemed to

be walking straighter with more confidence.

What I have noticed is: Increased muscle mass in my quads

Better balance

Ability to sometimes catch myself from

falling (was never able to do this before)

Better endurance

Ability to ride a stationary bike (was

unable to even keep my feet in before or do more than one rotation)

And the single most important: GAVE ME

HOPE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Jackie

[Guest guest]

Hi Jackie,

Oh this is wonderful news! You made my day!

Gretchen

>

> I too had tried physical therapy 20 years ago and after trying to use the lap

bands and a couple of other small exercises, they said they really could not

help me and tha physical therapy was not for me (what BS)

>

> Now I started physical therapy 6 months ago with someone who understands

neurological problems and had worked with many people over the last 30 years

including many with MS. Well, I just got back from a vacation to my home town

and most of my family and friends had not seen me in 9 months and all commented

on how much better I was walking, that I was not waddling as much and seemed to

be walking straighter with more confidence.

>

> What I have noticed is: Increased muscle mass in my quads

> Better balance

> Ability to sometimes catch myself from

falling (was never able to do this before)

> Better endurance

> Ability to ride a stationary bike (was

unable to even keep my feet in before or do more than one rotation)

> And the single most important: GAVE ME

HOPE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

>

> Jackie

>

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