Event to Benefit Those Affected by Neuromuscular Disorders

[Guest guest]

 

Event to Benefit Those Affected by Neuromuscular Disorders

 

An arts and crafts show to be held in Batavia later this month will benefit

patients and their families who have been affected by neuromuscular disorders

like neuropathy, muscular dystrophy, and amyotrophic lateral sclerosis (Lou

Gehrig¢s disease).

 

The show will be from 9 a.m. to 5 p.m. Friday, Feb. 28, at the  Holiday Inn at

8250 Park Road , Batavia New York, immediately off Thruway Exit 48. Admission is

free.

 

The show will feature more than 60 vendors from throughout New York State and

Pennsylvania . Featured items will include jewelry, woodworking, quilts, and

foods produced regionally, like honey and maple syrup and even Monks¢ bread

donated by the Abbey of the Genesee in Piffard.

 

The show is being arranged by Mark Farruggia of Retsof, who has Charcot Marie

Tooth disease.Mark has organized several benefits benefitting local causes

during the past decade. The event is hosted by Friends and Families Muscular

Disorders Foundation and the Friends of the Neuromuscular Disease Center at the

University of Rochester Medical Center.

 

The University¢s Neuromuscular Disease Center is sought out by patients

worldwide for the treatment of a range of disorders and diseases. Much of the

research by its physicians and scientists is geared toward ultimately making a

difference in the lives of patients not only in the Rochester area but around

the world as well. Current research projects in the center address periodic

paralysis, neuropathy, muscular dystrophy, and several other conditions.

 

For more information about the arts and craft show, call (585) 519-1917 or email

goldenbenefit@....