Re: MDA - Anemia - Hearing Loss

[Guest guest]

As a child I was diagnosed with hearing loss and anemia. But was never

diagnosed with CMT until later years. My son also has hearing loss but no

anemia and he has CMT too. I really don't know if it is related or not.

Carol

[Guest guest]

Amy,

In somme types of CMT, there can be hearing loss. To see all the types, go to

http://neuromuscular.wustl.edu/time/hmsn.html

Gretchen

[Guest guest]

Amy,

I would ask if she should be doing certain exercises/stretches to hopefully keep

her feet muscles/tendons from tightening and pulling in. I wish we had caught

this with my son earlier but too late.

Good luck

Lori

[Guest guest]

Amy,

The hearing loss rings a bell as my sons physiatrist asked if my son had his

hearing checked so that may very well be a possibility of the CMT.

Lori

[Guest guest]

My daughter without CMT had anemia and hearing loss. My CMT kids never had

anemia or hearing loss.

[Guest guest]

For the past 3 years I have experienced spurts of hearing loss, it would start

to sound like my ears wouldn't " pop " and it would get more and more muffled as

time progressed. then as mysteriously as it began, it would begin to open back

up. I have CMT 1A.

I've been to doctors, specialists and had MRI's. Nobody was able to nail down

the reason. I like to exhaused any other possiblity before I chalk things up to

my CMT. I had started talking in this group about this about a year ago, asking

about whether CMT may be a reason and found that there was indeed cases. Around

this time, I began to take my regular Zyrtec D for my usual summertime Hay

Fever. I began to start hearing again. TADA!

Though trial & error now, I found out that as long as I take my Zyrtec daily my

ear is clear. If I skip more that 2 days, my ear begins to " close up " . I don't

know what I'm allergic to, and it doesn't matter. I just remember to take my

Zyrtec D (for some reason this is the only thing that works.

The reason that I'm writing this is to suggest that, if the hearing loss is a

muffled sort of thing, sometimes like there's water in your ear or your ears

just won't " pop " try allergy medicine.

When I figured this out, I had been taking Zyrtec for a couple weeks (normal

summertime fun) before I realized my hearing was coming back. Now, If I

forget or wait too long, and my ear actually  " closes " it sometimes takes a

couple days to clear up.

 

Just a personal story, and maybe something tho think about.

defman