Re: HPV vaccine, girls and CMT

[Guest guest]

Wow, great post and good info for parents

[Guest guest]

Hi Lise and others in Canada,

Could you tell WHY there should not be vaccination against HPV if someone has

got CMT? I took the vaccine and I did not notice anything at all, no adverse

effects. I think that unless there are documented cases of adverse effects on

girls (or women) with CMT, then there should not be a warning against it, since

it prevents cancer!

Beata

From: shrink_gurl <lisemercier@...>

Sent: Tue, September 29, 2009 3:41:13 PM

Subject: HPV vaccine, girls and CMT

 

I contacted Dr. Harper with some concerns, as my daughter likely has

Lise Mercier, Ph.D., C. Psych Ottawa, Ontario, Canada

[Guest guest]

Brachial neuritis: Inflammation of nerves in the arm causing muscle weakness and

pain.

Vaccine. 2008 Aug 18;26(35):4417-9.

Brachial plexus neuritis following HPV vaccination.

Debeer P, De Munter P, Bruyninckx F, Devlieger R.

Department of Musculoskeletal Science, Division of Orthopedics, University

Hospital Pellenberg, Weligerveld 1, B-3212 Pellenberg, Belgium.

We present a 19-year-old girl who developed a left brachial plexus neuritis

following vaccination with a quadrivalent human papillomavirus (HPV) vaccine.

Post-vaccination brachial plexus neuritis is a rare event. Nevertheless, this

first case warrants careful attention in view of the large vaccination campaigns

in young adolescents being launched all over the world.

[Guest guest]

The HPV vaccine, i.e. Gardasil, has - as all vaccines do - its adverse

reactions, including, but not limited to, permanent disability and death.

Plus, the HPV vaccine does not protect against all types of cervical cancer.

Plus, the vaccine is completely unnecessary if a person is not sexually active.

Google this info. I'm not a paid researcher, though these have been my research

findings. ;-)

>

>

>

[Guest guest]

I am not comfortable with the one-size-fits-all aspect of vaccines. I would

like to know if certain vaccines could be riskier for me because of CMT 1A.

Also, we are waiting for our son's immunologist to decide on the safety of the

MMR vaccine for him. So far we have been instructed to hold off on it until

further notice.

Despite the instructions from his MDs at Children's Hosp., his pediatrician said

that we will have to find a new ped if we don't give him the MMR by age 2.

We are looking for a new pediatrician anyways, but isn't this one-size-fits-all

approach potentially dangerous to many.

Why are many MD's making unilateral decisions regarding vaccines?

Chris

>

[Guest guest]

,

There is no published research either for or against vaccines and risks with CMT

1A. Or any other type of CMT. As a child I experienced measles, mumps, rubella

and chicken pox. All had no effect on my CMT. As an adult I have had every

vaccine I needed, from Tet to Hep A and B to Yellow Fever. I have had absoutely

no problems with the vaccines, except maybe slightly sore arm skin. I also keep

my vaccinations up to date.

Here is something from the Ask the Experts section at the CMTA.

http://cmtausa.org/experts.php?fcid=10#3

Some CMT patients also have an autoimmune polyneuropathy as well as CMT. For

those patients, we must be concerned about vaccinations. Most CMT patients

should not have a reaction other than might be expected in anyone. If the CMT

patient has a common reaction to an immunization, the problem will be

transitory. However, if the CMT patient has chronic inflammatory neuropathy as

well as CMT, the patient could be left with a loss of motor and sensory

function. There should not be anything neurotoxic in hepatitis B vaccine;

however, there is a protein in some flu vaccines that might produce abnormal

response. Unless the patient is hypersensitive or has an autoimmune problem,

he/she should be able to tolerate the immunization.

For the person who works in a hospital setting, hepatitis might be a real

threat. Hepatitis is a far more serious condition than a reaction to the

immunization for hepatitis might be.

You may want to contact The Neuropathy Association

http://www.neuropathy.org/site/PageServer

Or the CMTA http://cmtausa.org/ for your questions about risk.

Gretchen

>

[Guest guest]

Hi,

I feel the overall good of vaccines, that they protect many people against

diseases is the reason why they recommend all people to take them. If - say

- 90% takes the vaccine, the virus can't get a foot in to the population and

thus the disease becomes rare or extinct. There will always be a low number of

individuals who don't tolerate the vaccine. It will cause discomfort or illness,

mostly reversible though. The possibility of a permanent reaction or death due

to a vaccine is almost 0. I think MDs consider the overall good of the vaccines

and they accept that a very few individuals might get adverse  reactions. 

My personal experience with vaccines and CMT is that I have got all shots

possible, even the HPV, due to a papilloma infection I suffered previously. I

have never experienced adverse reactions, except a redish spot were I get the

shot sometimes. (Normal, should be there for some vaccines.) I am not saying

that all vaccines are safe for everybody, but since they are for me, I will

continue to get the shots. I get the influenza vaccine yearly, and the 30 sec

invonvinience from the shot is a lot better than one week in bed with high

fever, for me. I work at a place were almost everybody got the flu every year

before, so the influenza vaccine is now free for us here.

As for small children: I was concerned about my child too, before he got his

first vaccine. I even bought the book about vaccination causing autism and other

problems. It turned out the book was very badly written, not scientific at all,

and it was the only book available about adverse reactions to vaccines. So my

son got all his vaccines too (no reactions so far) and even the pneumococcus

vaccine, which is not in the heath care program in Sweden. He did suffer from

pneumonia before this vaccine, and that was a horrible experience wih 5 days in

hospital followed by lung problems and ear infections. After the pneumococcus

vaccine, he has been very healthy, no problems at all with lungs or ears.

So I am of the same oppnion as the doctors: Since vaccines are so good for so

many, I would recommend them!

As for not taking the HPV vaccine because the girl is not sexually active -she

will be. To take it after that might be too late.

Beata 

________________________________

From: christine mcguire <zchristinemcguire@...>

Sent: Thu, October 1, 2009 6:33:25 PM

Subject: Re: HPV vaccine, girls and CMT

 

I am not comfortable with the one-size-fits- all aspect of vaccines. I would

like to know if certain vaccines could be riskier for me because of CMT 1A.

Also, we are waiting for our son's immunologist to decide on the safety of the

MMR vaccine for him. So far we have been instructed to hold off on it until

further notice.

Despite the instructions from his MDs at Children's Hosp., his pediatrician said

that we will have to find a new ped if we don't give him the MMR by age 2.

We are looking for a new pediatrician anyways, but isn't this one-size-fits- all

approach potentially dangerous to many.

Why are many MD's making unilateral decisions regarding vaccines?

Chris

>

[Guest guest]

The HPV vaccine (for a sexually-transmitted disease) has only been out for three

years, so it doesn't yet have a long record of safety like other vaccines such

as the Measles-Mumps-Rubella vaccine or the Hep B vaccine.

 

Its safety needs to be evaluated based on its own track record and there are

some reports of potentially serious side-effects that have some people

concerned.  These reports are being researched further.  Also, this vaccine is

being recommended for very young girls, the value of which hasn't been proven

yet.

 

Latest from the CDC:

http://www.cdc.gov/vaccinesafety/vaers/gardasil.htm

 

August 2009 News Report from CBS:

http://www.cbsnews.com/stories/2009/08/18/eveningnews/main5250640.shtml

 

There may not be reports proving that the risk is greater for those with CMT,

but that doesn't mean it's safety should automatically be assumed.  Parents

should definitely research it, as Lise suggests, and weigh the potential risks

vs simply getting routine Pap smears once a child becomes sexually active &

using a condom.

 

The answer on CMTA pertains to Hepatitis B.  Perhaps someone can post the

question to to a CMT expert specifically about the HPV vaccine.