Re: blood results are in ... shall i just calm down and relax????

[Guest guest]

On Dec 13, 2009, at 12:19 PM, sue wrote:

Do you think it works the other way? In 2002 I tested for three

micotoxins and had all three. Then, two years ago I tested for only

Ochratoxins (this test wasn't available in 2002) and they found

none. Could this mean that If I have no Ochratoxins that I'm rid of

all micotoxins? Anne

>

> I ran the realtime lab test on my sick son and he tested VERY HIGH in

> ochratoxins, then we went to see Dr. Gray in AZ, and he said

> that if he tested very high in one mycotoxin he likely had high levels

> of other mycotoxins

> ,_.___

>

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[Guest guest]

Not to worry. It was an unfair question. Anne

On Dec 13, 2009, at 1:49 PM, sue wrote:

> HI Anne,

>

> I just have no idea at all, know really very little about all of this,

> am not a doctor, and just repeating what I was told be my son's

> doctor.

>

> sue

>

[Guest guest]

HI a,

You might want to contact Dr. Hooper at RealTime Lab. They have a urine

mycotoxins test, don't know if your daughter's sample could be sent from

the middle east or not and get to US in time to do the test in a valid

way, but he would know, and might know answers to some of your other

questions about mycotoxins.

I ran the realtime lab test on my sick son and he tested VERY HIGH in

ochratoxins, then we went to see Dr. Gray in AZ, and he said

that if he tested very high in one mycotoxin he likely had high levels

of other mycotoxins that aren't tested for (there are many kinds of

mycotoxins, the RealTime Lab tests for 3: ochratoxins, aflatoxins, and

tricothecenes). Here's the link: <http://www.realtimelab.com/

mycotoxin_testing.html>

btw, my son has respiratory, sinus, neuro, fatigue, allergies, pelvic

floor neuromuscular dysfunction (not bedwetting but affects urination

and more), gi problems, sleep problems, maybe affected his growth (he

had huge growth spurt at age 12 and never grew since, now is 20 yo, he's

not short though at 5'10 " ), chronic pain, and more...

Good luck, and I think you intuitively know the answer to your question

about " do I relax or keep searching " , if you sense that all is not right

with your daughter's health, then you know to keep looking for the real

answers. It can be exhausting, especially when the so-called experts

have already told you the " answers " , so do what you can when you can,

and then take a break, and when you are emotionally strong enuf, start

the search again. When my son first got sick, we went around to so many

different arrogant doctors who each tried to pigeon-hole him into their

specialty and give a quick diagnosis, for example the gastroenterologist

who is a celiac specialist told us gluten was causing all his problems,

even though he had already been off gluten for 9 months with no

improvement, he wanted to put him on NSAID's as another patient in his

drug trial, so we never went back to that doc. And then there was the

psychiatrist who said he didn't fit into any classical psych diagnosis

but he was sure that his GI problems were all being caused by

psychological problems, and of course MOM was a big part of the psych

problems, and so the list goes on, none of them made any sense to me and

so forget that they are " EXPERTS " w/the BIG MD, none of it made sense,

and so I continued my search, and maybe, maybe, we have now found an

important or THE important part of the puzzle, time will tell now that

we are doing a whole mold detox protocol... One thing I have learned is

that there are many layers to this onion, and I now know many things

that are wrong with my son, just not sure we know why, still in search

of the root cause...and unfortunately the only way to find it is to do

treatment trials for various things. For example, my son tested

positive for bartonella, a tick-borne illness, that doctor was sure

bartonella was causing all his symptoms, he was treated for it

(successfully from a lab test point of view, 6 months later he tested

negative for bartonella) but from a real life point of view the

treatment created absolutely no improvement in his health, so while he

had bartonella, it was not the thing that was bothering him, NOT THE

ROOT CAUSE.

And, if I had it to do all over again, and money was no object, I would

push the doctors to test for every possible thing under the sun all at

one time, and not sequentially, because time keeps ticking by.

Hope this is helpful to you a. Best of luck with your daughter's

healing.

Sue V

>The only test i could get for my daughter was a blood test for 4 types

>of aflatoxins and the results are all <0.2 (i guess this means

>negative). Should i just relax and assume she is fine?

>

>Long story short: she was adopted from Africa from an area where kids

>were found highly infected with aflatoxins and ochratoxins. She has all

>the symptoms there, from astma to neurological sypmtoms, to growth

>problems, to bedwetting even at almost 7 years of age (ochratoxins seem

>to affect the urinary system), to even precocious puberty (another of

>the mycotoxins family were found responsible for precocious puberty

>according to some researchers). It could be that all these have other

>causes as well, but shall i just assume this????

[Guest guest]

HI Anne,

I just have no idea at all, know really very little about all of this,

am not a doctor, and just repeating what I was told be my son's doctor.

sue

>

>On Dec 13, 2009, at 12:19 PM, sue wrote:

>Do you think it works the other way? In 2002 I tested for three

>micotoxins and had all three. Then, two years ago I tested for only

>Ochratoxins (this test wasn't available in 2002) and they found

>none. Could this mean that If I have no Ochratoxins that I'm rid of

>all micotoxins? Anne

>>

>> I ran the realtime lab test on my sick son and he tested VERY HIGH in

>> ochratoxins, then we went to see Dr. Gray in AZ, and he said

>> that if he tested very high in one mycotoxin he likely had high levels

>> of other mycotoxins

>> ,_.___

>>

[Guest guest]

If you are looking for an active group in Sweden that is interested indoor

mycotoxins contact the person below. She was trained under Lannert Larsson at

the Department of Medicine, Land Division. She is doing active research and

publishing her findings on indoor trichothecenes, aflatoxins, ochratoxins and

glitotoxin. She is genuinely interested in human health issues. When you email

her be sure you tell her I referred you.

a Bloom, Ph.D. email address = erica.bloom@...

Jack-Dwayne: Thrasher, Ph.D.

Toxicologist/Immunotoxicologist/Fetaltoxicologist

www.drthrasher.org

toxicologist1@...

Off: 916-745-4703

Cell: 575-937-1150

L. Crawley, M.ED., LADC

Trauma Specialist

sandracrawley@...

916-745-4703 - Off

775-309-3994 - Cell

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[Guest guest]

Has your son be checked by a Lyme expert to see if he has it? cathy

>

> HI a,

>

> You might want to contact Dr. Hooper at RealTime Lab. They have a urine

> mycotoxins test, don't know if your daughter's sample could be sent from

> the middle east or not and get to US in time to do the test in a valid

> way, but he would know, and might know answers to some of your other

> questions about mycotoxins.

>

> I ran the realtime lab test on my sick son and he tested VERY HIGH in

> ochratoxins, then we went to see Dr. Gray in AZ, and he said

> that if he tested very high in one mycotoxin he likely had high levels

> of other mycotoxins that aren't tested for (there are many kinds of

> mycotoxins, the RealTime Lab tests for 3: ochratoxins, aflatoxins, and

> tricothecenes). Here's the link: <http://www.realtimelab.com/

> mycotoxin_testing.html>

>

> btw, my son has respiratory, sinus, neuro, fatigue, allergies, pelvic

> floor neuromuscular dysfunction (not bedwetting but affects urination

> and more), gi problems, sleep problems, maybe affected his growth (he

> had huge growth spurt at age 12 and never grew since, now is 20 yo, he's

> not short though at 5'10 " ), chronic pain, and more...

>

> Good luck, and I think you intuitively know the answer to your question

> about " do I relax or keep searching " , if you sense that all is not right

> with your daughter's health, then you know to keep looking for the real

> answers. It can be exhausting, especially when the so-called experts

> have already told you the " answers " , so do what you can when you can,

> and then take a break, and when you are emotionally strong enuf, start

> the search again. When my son first got sick, we went around to so many

> different arrogant doctors who each tried to pigeon-hole him into their

> specialty and give a quick diagnosis, for example the gastroenterologist

> who is a celiac specialist told us gluten was causing all his problems,

> even though he had already been off gluten for 9 months with no

> improvement, he wanted to put him on NSAID's as another patient in his

> drug trial, so we never went back to that doc. And then there was the

> psychiatrist who said he didn't fit into any classical psych diagnosis

> but he was sure that his GI problems were all being caused by

> psychological problems, and of course MOM was a big part of the psych

> problems, and so the list goes on, none of them made any sense to me and

> so forget that they are " EXPERTS " w/the BIG MD, none of it made sense,

> and so I continued my search, and maybe, maybe, we have now found an

> important or THE important part of the puzzle, time will tell now that

> we are doing a whole mold detox protocol... One thing I have learned is

> that there are many layers to this onion, and I now know many things

> that are wrong with my son, just not sure we know why, still in search

> of the root cause...and unfortunately the only way to find it is to do

> treatment trials for various things. For example, my son tested

> positive for bartonella, a tick-borne illness, that doctor was sure

> bartonella was causing all his symptoms, he was treated for it

> (successfully from a lab test point of view, 6 months later he tested

> negative for bartonella) but from a real life point of view the

> treatment created absolutely no improvement in his health, so while he

> had bartonella, it was not the thing that was bothering him, NOT THE

> ROOT CAUSE.

>

> And, if I had it to do all over again, and money was no object, I would

> push the doctors to test for every possible thing under the sun all at

> one time, and not sequentially, because time keeps ticking by.

>

> Hope this is helpful to you a. Best of luck with your daughter's

> healing.

>

> Sue V

>

>