Re: women or men managing CMT better

[Guest guest]

Betania,

I feel the same because society still believes the man is the head of the house,

the bigger, stronger one, the provider.  I definately think CMT is harder for a

man. For instance, my father refused to see a doctor about his feet and legs. 

He would never even think of using a cane, crutch or wheelchair.  He retired

early and stayed at home living in complete denial.  And I think women handle

pain better.  Don't you think that's  the reason women have the babies?  

Lyn

From: BETANIA BADIA <tainosrd@...>

Subject: Re: courage to live with CMT

Date: Thursday, August 27, 2009, 9:42 AM

Is it me or we women, can deal better (mentally) with CMT? Please share your

experience.

Betania

From: lynnanicholas@...

Date: Wed, 26 Aug 2009 10:58:26 -0400

Subject: Re: courage to live with CMT

 

Dear friend,

I used to feel ashamed about my diminishing capacities. Shame like a red hot

wave would sweep through me every time I tripped and fell. I have come to

realize that I should have shame for my moral failures, but that my body's

growing weakness is NOT shameful. If anything, I take pride in my resilience,

persistence, and courage in finding ways to lead a full life while adapting to

increasing limitations.

Shame? No way. Not any more. I rock. I was once in the place of wondering if I

could go on living if my CMT progressed. I changed in how I viewed it, and I'm

not only going on, but finding life to be ironically good.

If anybody is interested, I started a blog about some of my physical struggles,

health issues, and journey towards wellness. www.paralyzednomore.blogspot.com

Peace,

Lynna

<You are so very right about the grieving,I feel vulnerable w/limited hand use

and ashamed about my dexterity.>

[Guest guest]

Hi,

I think it depends. Men can handle CMT well too. My brother is coping a lot

better than me. He always has. We grew up together, with CMT since early

childhood, and while I had a hard time accepting the disease, my brother never

showed any negative feelings. For him, CMT is just the way he is. For me, it

was, for a long time, the way I did not want to be. My brother is a calm,

relaxed kind of person. He loves to take it easy. A perfect day for him is a

little work (he works at an office), then TV all afternoon and night. So he does

not feel the limitations, because CMT does not limit TV-watching, hehe. A I like

moving around a lot more, so for me it can be a limitation sometimes, and that's

frustrating.

Betania

[Guest guest]

You are right. I guess it depends on our personality. I love to walk and move

around so does my oldest son. That is why he gets hurt all the time lol lol. My

youngest is more relax...TV, Computer and so on so, he hardly ever complains.