Re:MCS diagnosis code

[Guest guest]

Is the code for Chemical hyperactivity syndrome 349.82? What does

that diagnosis mean? Anne

On Dec 11, 2009, at 10:38 PM, a Townsend wrote:

> Let me correct that for you

> Mycotoxicosis, Toxic encelopathy 989.89. Chemical hyperyactivity

> syndrome

>

> Worked just fine for getting my SSDI, BC/BS, AZ medicaid(welfare)

> and now Medicare

> I only use the MCS term when chatting with people who are educated

> like this board, who know the difference.

>

> The diagnosis was from Dr Gray

> K

>

>

[Guest guest]

thanks.

On Dec 12, 2009, at 9:24 AM, ntefusa@... wrote:

>

>

> NO! that code is for encephalopathy toxic or encephalopathy due to

> chemical toxin i have no idea who is creating that 'term' for that

> ICD number

>

> If you are going to use codes here are the standard ones

>

> http://www.national-toxic-encephalopathy-foundation.org/icd.pdf

>

>

[Guest guest]

Ella,

what are the symptoms of Chemical hyperactivity syndrome? Anne

On Dec 12, 2009, at 10:06 AM, sparksella wrote:

> Read your diagnosis sheet. Or, call Gray's office and ask them for

> the numbers for both. He recently started adding the numbers to the

> diagnoses sheets, I believe.

>

> Toxic encephalopathy is NOT multiple chemical sensitivity.

> They are two different diagnoses.

>

> 349.82 is the medical code number for Toxic encephalopathy

> 989.89 is the number for Chemical hyperyactivity syndrome

>

> I'm blessed with both, (have been for years) and have have them at

> hand. I am about to ask for accommodations under ADA due to MCS and

> a few others. Due to this discussion, I will add toxic

> encephalopathy to my letter.

> Ella

>

[Guest guest]

NO! that code is for encephalopathy toxic or encephalopathy due to chemical

toxin i have no idea who is creating that 'term' for that ICD number

If you are going to use codes here are the standard ones

http://www.national-toxic-encephalopathy-foundation.org/icd.pdf

Re: [] Re:MCS diagnosis code

Is the code for Chemical hyperactivity syndrome 349.82? What does

that diagnosis mean? Anne

On Dec 11, 2009, at 10:38 PM, a Townsend wrote:

> Let me correct that for you

> Mycotoxicosis, Toxic encelopathy 989.89. Chemical hyperyactivity

> syndrome

>

> Worked just fine for getting my SSDI, BC/BS, AZ medicaid(welfare)

> and now Medicare

> I only use the MCS term when chatting with people who are educated

> like this board, who know the difference.

>

> The diagnosis was from Dr Gray

> K

>

>

[Guest guest]

Thanks. With just a casual glance at that, I see many other items that fit under

my name and why they were never included in my sheet...

989.6 Toxic Effect Of Soaps And Detergent I react with a variety of symptoms

crom personal care and laundry soaps. Generally I use 7th generation detergent,

but got the costco brand recently and had to return it--I reacted badly. Shame,

too, it's a lot less expensive than 7th generation. I will try some of the free

and clears of other brands.

Ella

>

> > Let me correct that for you

> > Mycotoxicosis, Toxic encelopathy 989.89. Chemical hyperyactivity

> > syndrome

> >

> > Worked just fine for getting my SSDI, BC/BS, AZ medicaid(welfare)

> > and now Medicare

> > I only use the MCS term when chatting with people who are educated

> > like this board, who know the difference.

> >

> > The diagnosis was from Dr Gray

> > K

> >

> >

>

>

>

>

>

>

>

[Guest guest]

edit:

should have been " ... I see many other items that fit under

my name and WONDER why they were never included in my sheet...

....I see many other items that fit under my name and why they were never

included in my sheet...

Ella

[Guest guest]

I'm just happy to see that somebody is saying that TE and MCS is not the same

thing. this has bothered me for quite awhile.

it's like when someone talks about brain flog, I wish brain fog was my biggest

problem but it doesnt really hold a candle to seizure

type effects or re-accuring brain swelling, suffered because of severely damaged

olfactory system/tracts and limbic system effects

and broken down BBB,re-accuring memingitis.

some people that talk about brain fog never mention haveing problems with

reactive lungs, it makes it kindof confuseing as to just what MCS is.

thats really my point of what bothers me most when someone wants to write a

book, make a movie, ect. yet they dont have a complete understanding of just how

bad things can get. I have, for a long time

understood that there are different levels of injury going on here.

it's sad that those who may have the most insight in he matter may have the

hardest time actually getting something constructive done to help the cause. and

I fell very strongly that not haveing that understanding and putting your

thoughts, how you " cured " yourself,

or anything along those lines into a book or movie form is a great injustice to

those more severely injured because they are going to have a hardier time

getting anyone to understand or getting help.

this illness cannot afford ego trips, horn tooting, and arrogant attitudes,

peoples lives are at stake.

>

>NO! that code is for encephalopathy toxic or encephalopathy due to chemical

toxin i have no idea who is creating that 'term' for that ICD number

>

> If you are going to use codes here are the standard ones

>

> http://www.national-toxic-encephalopathy-foundation.org/icd.pdf

>

[Guest guest]

Everybody's symptoms are different. That's why it's so difficult to diagnose it

and to get help.

My own symptoms almost always include respiratory, since my respiratory system

is so severely damaged. Now I wonder if that damage stems from MCS, or something

else...

Depending the the chemical(s), the amounts, the time of exposure, the number of

exposures, I can have a wide variety of other symptoms, including mood changes,

learning and social problelms, brain dysfunctions, various aches and pains, and

many others.

It doesn't take much of certain ones to elicit a reaction, I do know that, lol!

I pretty much live in a bubble, as many of you probably do.

Ella

>

> Ella,

> what are the symptoms of Chemical hyperactivity syndrome? Anne

[Guest guest]

For those of you who do have respiratory distress, what do you use for

an antihistamine?

Barth

www.presenting.net/sbs/sbs.html

SUBMIT YOUR DOCTOR: www.presenting.net/sbs/molddoctors.html

---

s> Everybody's symptoms are different. That's why it's so difficult to diagnose

it and to get help.

s> My own symptoms almost always include respiratory, since my respiratory

system is so severely damaged. Now I wonder if that damage stems from MCS, or

something else...

s> Depending the the chemical(s), the amounts, the time of exposure, the number

of exposures, I can have a wide variety of other symptoms, including mood

changes, learning and social problelms, brain

s> dysfunctions, various aches and pains, and many others.

s> It doesn't take much of certain ones to elicit a reaction, I do know that,

lol!

s> I pretty much live in a bubble, as many of you probably do.

s> Ella

s>

>>

>> Ella,

>> what are the symptoms of Chemical hyperactivity syndrome? Anne

[Guest guest]

I do OK with Ecover, have MCS

 

  

God Bless !!

dragonflymcs

Mayleen

________________________________

From: sparksella <sparksella@...>

Sent: Sat, December 12, 2009 10:29:09 AM

Subject: [] Re:MCS diagnosis code

 

Thanks. With just a casual glance at that, I see many other items that fit under

my name and why they were never included in my sheet...

989.6 Toxic Effect Of Soaps And Detergent I react with a variety of symptoms

crom personal care and laundry soaps. Generally I use 7th generation detergent,

but got the costco brand recently and had to return it--I reacted badly. Shame,

too, it's a lot less expensive than 7th generation. I will try some of the free

and clears of other brands.

Ella

[Guest guest]

Can you be more specific about " Homeopathics " please.

Googling that gets hundreds of hits. anne

On Dec 13, 2009, at 9:01 AM, ntefusa@... wrote:

> Homeopathics

>

> Took one that knocked out my inhalant allergies after 2 doses, been

> inhlanat allergy free for over 5 years.

>

> Re: [] Re:MCS diagnosis code

>

> For those of you who do have respiratory distress, what do you use for

> an antihistamine?

>

[Guest guest]

Homeopathics

Took one that knocked out my inhalant allergies after 2 doses, been inhlanat

allergy free for over 5 years.

Re: [] Re:MCS diagnosis code

For those of you who do have respiratory distress, what do you use for

an antihistamine?

Barth

www.presenting.net/sbs/sbs.html

[Guest guest]

Angel,

I've never heard of a homeoathic remedy that worked so well and so fast. Is it

an over the counter product or something specifically prescribed for you? If it

is the former or latter would it be okay to share the source info on (or if that

isn't okay, off-list)? I suffer from allergies to a wide array of inhalants in

addition to all else, and allergy serums have not really worked for me too well

after over 2 years despite alot of tweaking.

Imagine the stress, money and health issues we would be saved from if homeopathy

could help with mcs and other environmental exposures that go beyond allergies.

Thanks,

Sam

From: ntefusa@... <ntefusa@...>

Subject: Re: [] Re:MCS diagnosis code

Date: Sunday, December 13, 2009, 2:01 PM

Homeopathics

Took one that knocked out my inhalant allergies after 2 doses, been inhlanat

allergy free for over 5 years.

[Guest guest]

Sam,

then you don't understand the power/efficacy of homoepathy. they do work fast

when you have the right one. thats what people don't understand.

it was over the counter that i found and it worked.

i used the one by delios for las vegas allergy mix, unless you live here or have

the same allergies that are in this mixture it will not work for you.

unless you are dealign with an alt med dr you will not get any 'advice' from

them that this works as well as it does....its a system of learning what matches

what.

no it is NOT a cure for chemcial injury.

i did create one that is based on enyzme potentiated 2 active ingredients that i

used to stop not CURE chemical exposures. that has helped me and a few others

who tried it. you are still sick from the exposures but not as bad.

Re: [] Re:MCS diagnosis code

Angel,

I've never heard of a homeoathic remedy that worked so well and so fast. Is it

an over the counter product or something specifically prescribed for you? If it

is the former or latter would it be okay to share the source info on (or if that

isn't okay, off-list)? I suffer from allergies to a wide array of inhalants in

addition to all else, and allergy serums have not really worked for me too well

after over 2 years despite alot of tweaking.

Imagine the stress, money and health issues we would be saved from if homeopathy

could help with mcs and other environmental exposures that go beyond allergies.

Thanks,

Sam

[Guest guest]

I use Advil allergy sinus-it's the strong stuff not the non-drowsy. I have

always been a pill taker-medications don't bother me as they would other people

with MCS so I can't vouch for the safety factor for you but they work for me.

>

> For those of you who do have respiratory distress, what do you use for

> an antihistamine?

>

> Barth

>

>

[Guest guest]

Thank you! I continue to use Drixoral, which works very well, but I

have to get it from Canada now.

Barth

www.presenting.net/sbs/sbs.html

SUBMIT YOUR DOCTOR: www.presenting.net/sbs/molddoctors.html

---

s> I use Advil allergy sinus-it's the strong stuff not the non-drowsy. I have

always been a pill taker-medications don't bother me as they would other people

with MCS so I can't vouch for the safety

s> factor for you but they work for me.

s>

>>

>> For those of you who do have respiratory distress, what do you use for

>> an antihistamine?

>>

>> Barth

>>

>>

[Guest guest]

For me NAET or Bioset have helped me a lot. Unfortunately the lady that does it

here has been on leave for maternity reasons. EVerything else has not worked.

cathy

>

> Angel,

>

> I've never heard of a homeoathic remedy that worked so well and so fast. Is it

an over the counter product or something specifically prescribed for you? If it

is the former or latter would it be okay to share the source info on (or if that

isn't okay, off-list)? I suffer from allergies to a wide array of inhalants in

addition to all else, and allergy serums have not really worked for me too well

after over 2 years despite alot of tweaking.

>

> Imagine the stress, money and health issues we would be saved from if

homeopathy could help with mcs and other environmental exposures that go beyond

allergies.

>

> Thanks,

> Sam

>

[Guest guest]

It helps STOP the reactions to a certain degree from the chemically rlated ones,

its the inhalant ones that went away with the homoepathic.

The one that I had custom made was based on EPD active ingredients and that

seems to also help others. The first time I took it I had about 30-45 mintue

healing crsis so i knew it was working, I didn't flip out some people who do not

uderstand how a healing crsis works. Since then no major haling crsis that I

have noticed.

This rememdy can only be bought through a licensed homeoapth as it is not OTC.

Bioset is similiar to EAV, electro dermal screening and that is also one of the

protols I used. i love the fact that it captures at that point in time what is

out of whack and the remedy is made for that. NAET is NOT and even Dr Devi will

cite is not for chemically related allergies, and one of her trainers also makes

sure when he teaches that they cannot make that claim at all.

Go to my homeopathic doc in northern nv, i both swear by her and at times at her

(from major healing crsis) but she knows I love her anyway. Fortunately, the

worst crsis I ever had was in her office and she was able to literally

watch/listen to the progression of the crisis, she never had soeone literally

explain every little thing that was happening. It would have been more

interesting to me if it wasn't me going through it, lol.

Anyhow, everyone who I have sent to her has had results at varying degrees.

She did create an acupuncture point protocol, that I do either when I get really

exposed, or I place them in my ear prior to going out where I know I am going to

get exposed, as a prepration along with my private remedy. the mask of course

is always with me, but this gives me a few more minutes of not having to wear

it.

http://biointegrativereno.com/babette-clough/

[] Re:MCS diagnosis code

For me NAET or Bioset have helped me a lot. Unfortunately the lady that does it

here has been on leave for maternity reasons. EVerything else has not worked.

cathy

[Guest guest]

do you live in northern nevada, and if so, what areas would you

recommend taking a look at? thanks, sue v

>It helps STOP the reactions to a certain degree from the chemically

>rlated ones, its the inhalant ones that went away with the homoepathic.

>

>The one that I had custom made was based on EPD active ingredients and

>that seems to also help others. The first time I took it I had about

>30-45 mintue healing crsis so i knew it was working, I didn't flip out

>some people who do not uderstand how a healing crsis works. Since then

>no major haling crsis that I have noticed.

>

>This rememdy can only be bought through a licensed homeoapth as it is

not OTC.

>

>Bioset is similiar to EAV, electro dermal screening and that is also one

>of the protols I used. i love the fact that it captures at that point

>in time what is out of whack and the remedy is made for that. NAET is

>NOT and even Dr Devi will cite is not for chemically related allergies,

>and one of her trainers also makes sure when he teaches that they cannot

>make that claim at all.

>

>Go to my homeopathic doc in northern nv, i both swear by her and at

>times at her (from major healing crsis) but she knows I love her

>anyway. Fortunately, the worst crsis I ever had was in her office and

>she was able to literally watch/listen to the progression of the crisis,

>she never had soeone literally explain every little thing that was

>happening. It would have been more interesting to me if it wasn't me

>going through it, lol.

>

>Anyhow, everyone who I have sent to her has had results at varying degrees.

>

>She did create an acupuncture point protocol, that I do either when I

>get really exposed, or I place them in my ear prior to going out where I

>know I am going to get exposed, as a prepration along with my private

>remedy. the mask of course is always with me, but this gives me a few

>more minutes of not having to wear it.

>

>http://biointegrativereno.com/babette-clough/

>

[Guest guest]

Hi SUe

No, I live in vegas, I am not familoiar with northern NV in any way.

Re: [] Re:MCS diagnosis code

do you live in northern nevada, and if so, what areas would you

recommend taking a look at? thanks, sue v