Guest guest Posted December 11, 2009 Report Share Posted December 11, 2009 I'm not going to try to explain that but it makes intuitive sense. Do you do any kind of chemical detox? Anne On Dec 11, 2009, at 11:34 AM, Slaya wrote: I had what I would call " moderate " chemical sensitivity for many > years. > > It wasn't wholly debilitating to the extent that some people's is, > thank God. The ordinary " really bad " things (scented candles, > fabric softeners, cigarettes, perfume, cleaning chemicals, bleach, > tar, wood smoke, etc.) made me feel quite ill, and I did everything > I could to avoid them Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2009 Report Share Posted December 11, 2009 > > I'm not going to try to explain that but it makes intuitive sense. > Do you do any kind of chemical detox? Anne I've done the following for detox: * CSM * Brown Seaweed (Modifilan) * Combination of FolaPro and B12 * Saunas * Hot springs I think that the csm detoxes a lot of stuff in addition to mold, doesn't it? Does anyone know what those things might be? The FolaPro/B12 is supposed to support the glutathione/methylation channel of detox. The folks focusing on it talk mostly about metals, but it may be important for various chemicals as well. The brown seaweed has some evidence as a chelator (and gave me the same really strong reaction that I got when getting IV chelation). What I've found is that all of these things are much easier to take when I'm really clear of mold. If I try to take them in a less-great place (e.g. cities), they're much more unpleasant. Even a little bit of csm just ties my intestines up in knots if I'm getting much mold exposure, for instance. If I'm out in the wilderness, I can take the 3-4 packets without any constipation at all and a whole lot of bad stuff is released. It's been scary how much toxin has come out of my body as a result of using the csm and other detox support. I wouldn't have had any idea that my toxic load was that high if I'd not pursued the avoidance. I don't understand how I could have been that toxic and stayed alive. The process of flushing it out has been really intense and scary. My mold reactivity has gone down somewhat since I've started this process. Hopefully it will continue to go down as time goes on. I'm open to other suggestions regarding detox, of course. It feels like I can use all the help I can get. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2009 Report Share Posted December 12, 2009 The Canary Report is a GREAT web site for resources on Multiple Chemical Sensitivity. They did a calendar this year to raise awareness (and to donate all proceeds to an environmental research group). The calendar makes a great holiday gift. Here is the link: http://www.thecanaryreport.org/2009/12/11/the-canary-report-releases-its-2010-wa\ ll-calendar/ (I happen to be " February " in the calendar with the rocky beach on the cover - what a fun and empowering experience it was to be asked to represent MCS caused by mold exposure) Wishing you all a happy holiday season and thank you for your wisdom, encouragement and support. Missy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 I had a series of four (couldn't afford more) IV treatments containing 30g vitamic C, and also magnesium and glutathione in an attempt to rebuild my immunity after mold exposure. I also had B12 injections at the same time. I did start to feel a bit better after I finished the treatment. I also noticed a slight decrease in my environmental allergies. ita > > > > yea, I went thru that, too. Had to stay outside as much as possible. try > > sleeping with fans blowing on you at nite. > > > > > > In a message dated 2/15/2010 3:41:30 P.M. Pacific Standard Time, > > tug_slug@ writes: > > > > It appears that Im becoming more and more sensitive to chemicals, so much > > so that the only time I feel normal is when Im outside. Is there a certain > > vitamin protocol that can help desensitize my senses? > > > I found Vitamin C iv's (7.5 - 15 g) to be tremendously helpful with both the mold poison and the chemical reactivity. High dose oral Vitamin C (15-30 g) also has been somewhat helpful. > > Dr. Rea discusses this in his book series (Volume 4). > > Apparently one person on this list got kidney stones subsequent to using high-dose Vitamin C. Dr. Rea says that this effect is quite rare though. > > I believe that individual reports obtaining benefit from the Vitamin C prior to getting the kidney stones though. > > I never found any other supplement that's helped even a little bit with the reactivity, unfortunately. > > Best, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 Fans blowing on me makes me really sick. My now deceases elderly mom use to do better with fans blowing all over her but I would get very ill with her fans blowing when I sat with her. I would make sure the fans were clean but I still got very very sick from the fans. We have ceiling fans which I have issues and yes, they are dust free as well. I can handle the air blowing from the wind but something about fans don't agree with me. They kill my sinuses. > > yea, I went thru that, too. Had to stay outside as much as possible. try > sleeping with fans blowing on you at nite. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 I believe that fans are not the best option whenever infestation or not. They release and blow any contaminant into the air. > > > > yea, I went thru that, too. Had to stay outside as much as possible. try > > sleeping with fans blowing on you at nite. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 I think she meant a fan blowing air in from a open window, which if inside is getting to you and outside makes you fell better, seems reasonable. I've tried several air cleaners, I find most of them bother me more after a few days, I also cant take a fan blowing on me, because of sinus issues, I do fell that for me it's better to not have anything inside blowing air around because if something gets into my environment thats bugging me it's can be harder to locate and deal with. but I like opening the windows and getting fresh air when it's out there. I just let myself be my guide for whats best for me. > > > > > > yea, I went thru that, too. Had to stay outside as much as possible. try > > > sleeping with fans blowing on you at nite. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 Sue there isnt a Key Pharmacy around here, how about Walgreens? > > HI Dave, > > A large part of the Ziem protocol is by prescription thru Key Pharmacy, and may be partially reimbursable by your insurance company. So far I have got nothing reimbursed of it thru Blue Shield, but my doc has not yet submitted a medical necessity form and info. > > You could talk to Key Pharmacy and get the specifics of what would be > prescribed, ask your doctor to prescribe it and request that he/she go > thru preauthorization with your medical insurer, see then if any of it > would be reimbursed and what your monthly cost would be. > > Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 Dave, Key Pharmacy is a compounding pharmacy in Kent, WA; they mail the meds. My point is show this to your doc, see if he will prescribe it, then check with your insurance to see if they will pay, because it is prescription they may pay some whereas with the nonprescription Pall supplements for sure they won't pay. Worth a try? sue <http://www.mcs-america.org/ziempall.pdf> <http://www.mcs-america.org/index_files/mcsmedicaltreatment.htm> >Sue there isnt a Key Pharmacy around here, how about Walgreens? > > >> >> HI Dave, >> >> A large part of the Ziem protocol is by prescription thru Key >Pharmacy, and may be partially reimbursable by your insurance company. >So far I have got nothing reimbursed of it thru Blue Shield, but my doc >has not yet submitted a medical necessity form and info. >> >> You could talk to Key Pharmacy and get the specifics of what would be >> prescribed, ask your doctor to prescribe it and request that he/she go >> thru preauthorization with your medical insurer, see then if any of it >> would be reimbursed and what your monthly cost would be. >> >> Sue > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 Thanks Sue > > Dave, > > Key Pharmacy is a compounding pharmacy in Kent, WA; they mail the meds. > My point is show this to your doc, see if he will prescribe it, then > check with your insurance to see if they will pay, because it is > prescription they may pay some whereas with the nonprescription Pall > supplements for sure they won't pay. Worth a try? > > > sue > > > > <http://www.mcs-america.org/ziempall.pdf> > > <http://www.mcs-america.org/index_files/mcsmedicaltreatment.htm> Quote Link to comment Share on other sites More sharing options...
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