Hello from a Fibro sufferer...

[Guest guest]

Hello everyone. I am not new here, but one of those nasty lurker. But I read

everything you guys talk about and even try some of your remedies.I was

diagnosed with FMS in 2000, I think it was. Shortly after my husband passed

away.

As a child I had anxiety attacks, a lot, but then I suspected there was a

problem probably in my 30s with heavy menstruation that was painful and

diarrhea, diagnosed as IBS then. It didn't seem like I had IBS to me, they

described what IBS was, I just had diarrhea, no explanation as I saw. They

couldn't come up with answers on the heavy bleeding and kept trying different

hormones. Nothing worked. Just crazy things all the time. Another problem I had

was Tendentious symptoms, that moved around from area to area for months at a

time then over night gone, like that, only to move to another location in a week

or month later. In 1997 I had a hysterectomy (they swear my uterus was healthy

but I was bleeding to death)and then I progressively got worse. Then husband

passing in 99, I guess that was the icing on the cake. So definitely a

hysterectomy and a death triggered it major.

OK, so now I am trying everything except radical fasting things I read about.

I'm not ready for that. But I try all the herbal remedies everyone talks about.

Do you find though, after a month or so, your just not taking them anymore? I'm

really not finding any of the herbal things work. I'm just curious on if you try

something, then after a while just get tired of taking them because they really

don't make any difference. I find also that I might get relief for a day or two,

thinking, " ahh this is what is working " , then suddenly you wake up again and it's

the same, or worse even that day then a day before. There is no pattern, no

rhyme or reason, I just hurt some days worse than others. I do feel better with

a good nights sleep though not pain free. Of course at my age, 51, that is not

common to wake during the night. I'm up sometimes to pee, if not to pee, then

just wake up and go back to sleep. I can not remember ever sleeping a whole

night through, never more than 4 hrs, mostly an hour or two than awake again. I

can go back to sleep, its just that I never sleep more than 4 on a good night.

For me, I take vicodines, usually three to four a day. And at night I take

Unisom, it's a vicious circle. With the Vicondine I still ache, but I don't care

if I ache. LOL! The Wonders of Narcotics.. Unisom is the only thing that works

for sleeping, it seems. The Tylenol PM is a different ingredient and won't work

at all. I have tried the Elivel (SP), I wanted to sleep all the time, but still

not even 4 hrs straight. Just wanted to sleep while I was at work, or driving to

work. I even tried it for months, docs say give it a while to kick in, but I

finally gave up. I take Welbutrin for the anxiety attacks, and depression, it

works wonders long as I continue to take them, for depression and anxiety

attacks, but I don't feel it does anything for Pain, or sleep.

Oh, another thing the Vicodines have helped me with is the diarrhea. I'm

thinking it calms my tummy so I don't have that urge to go, or worried I will

have that urge to go. That was a vicious circle too. I would not leave the house

for fear I would have to go and there was no bathrooms to use. The Vici's calmed

that down so I have a somewhat normal life and can go somewhere again. Guess

that goes back to those panic attacks as a kid, always worried I would have one

in public.

Well, finally got all that off my chest. LOL. Thanks for listening to it.

My main question on all this was. Do you find that after taking some kind of

supplements for a while, you just stop taking them? I don't know if I just get

tired of it, or forget to take them, but maybe they just don't work for me,

there is no change, so I quit. You would not believe my medicine " CLOSET " , not

chest. LOL! I have so many herbs and pills and stuff that eventually I may try

again, but probably end up throwing away a lot of money because I am tired of

taking the things.

Hugs to all of you. Thanks for being here for me to read, even if I rarely post.

Pandy