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Re: pain management specialist

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Wow Dave! I am so sorry to hear about that but I have to admit that I do know

the feeling. I could deal with the pain if they hadn't told me that it is

possible for me to be pain free and I can have a normal life. Since they don't

me that, I feel like there is hope and I don't want to let it go yet.

 

When I went to see my surgeon this week, I thought for sure he would give me

something for pain! I got nothing!! Just these patches that don't do crap for me

and were a waste of $200 and scelaxin which we all know is a waste of money too!

I even said, " can I have something for the pain? You gave me painkillers 6

months ago so why not now? " UGH! I am so frustrated and so tired that I have to

sit here and cry and suffer and feel sorry for myself.......

>Hi Dave!

> My depression has gotten worse so I had to have those meds bumped

> up to. I am only 31 and I want to have a normal life!!

No one ever told me I would be pain free. In fact I was told at age

40 with 4 surgeries and as much trauma as my back has seen, this is

as good as it gets. Just like the Jack Nicholson movie.

My depression has gotten worse lately too. I isolate, I don't answer

calls, the things I used to enjoy, I don't. I'm up all night and

want to sleep all day. They just changed my anti-depressant from

Cymbalta which I took for about 3 years to a new one called

Pristiq. So far I'm going through withdrawal and anxiety from the

change. My skin is crawling, I'm irritable, hot, and my sleep is

worse than ever. Hopefully this will pass. Dave

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Hi

It sounds like you need to see a Physiatrist- a doctor trained in pain

management.

A good group will have physicians trained in medical pain management as well as

anesthetic - epidurals, nerve blocks, radiofrequency, etc..... surgeons wont

keep following you after a certian amount of time, they want to turf you over to

someone else.

wendy

Re: Pain Management Specialist

Wow Dave! I am so sorry to hear about that but I have to admit that I do know

the feeling. I could deal with the pain if they hadn't told me that it is

possible for me to be pain free and I can have a normal life. Since they don't

me that, I feel like there is hope and I don't want to let it go yet.

When I went to see my surgeon this week, I thought for sure he would give me

something for pain! I got nothing!! Just these patches that don't do crap for me

and were a waste of $200 and scelaxin which we all know is a waste of money too!

I even said, " can I have something for the pain? You gave me painkillers 6

months ago so why not now? " UGH! I am so frustrated and so tired that I have to

sit here and cry and suffer and feel sorry for myself.......

>Hi Dave!

> My depression has gotten worse so I had to have those meds bumped

> up to. I am only 31 and I want to have a normal life!!

No one ever told me I would be pain free. In fact I was told at age

40 with 4 surgeries and as much trauma as my back has seen, this is

as good as it gets. Just like the Jack Nicholson movie.

My depression has gotten worse lately too. I isolate, I don't answer

calls, the things I used to enjoy, I don't. I'm up all night and

want to sleep all day. They just changed my anti-depressant from

Cymbalta which I took for about 3 years to a new one called

Pristiq. So far I'm going through withdrawal and anxiety from the

change. My skin is crawling, I'm irritable, hot, and my sleep is

worse than ever. Hopefully this will pass. Dave

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Hi ,

You got it right with the turfed over, thats what mine did, hell he at

the last vist didn't even read my chart properly as he was going to put

me on neurontin, shame he'd already done that

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Hi ,

You got it right with the turfed over, thats what mine did, hell he at

the last vist didn't even read my chart properly as he was going to put

me on neurontin, shame he'd already done that

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I remember having to ask for pain medicine from my surgeon, his response was

that he did not believe in that crap.. It made me fell like I was a druggie.

Surgeons just do not get it.. I would try your primary care physician.

Usually you need to have a relationship with the doctor who is medicating you

because you need to have the element of trust.. I am sorry that your surgeon

was

not helpful but do not feel like it is you with the problem it is the

surgeon.. asking someone to just grin and bare it is pretty cold..

Tom

In a message dated 2/13/2009 4:22:02 P.M. Mountain Standard Time,

carrie.heflin@... writes:

Wow Dave! I am so sorry to hear about that but I have to admit that I do

know the feeling. I could deal with the pain if they hadn't told me that it is

possible for me to be pain free and I can have a normal life. Since they don't

me that, I feel like there is hope and I don't want to let it go yet.

When I went to see my surgeon this week, I thought for sure he would give me

something for pain! I got nothing!! Just these patches that don't do crap

for me and were a waste of $200 and scelaxin which we all know is a waste of

money too! I even said, " can I have something for the pain? You gave me

painkillers 6 months ago so why not now? " UGH! I am so frustrated and so tired

that

I have to sit here and cry and suffer and feel sorry for myself......W

>Hi Dave!

> My depression has gotten worse so I had to have those meds bumped

> up to. I am only 31 and I want to have a normal life!!

No one ever told me I would be pain free. In fact I was told at age

40 with 4 surgeries and as much trauma as my back has seen, this is

as good as it gets. Just like the Jack Nicholson movie.

My depression has gotten worse lately too. I isolate, I don't answer

calls, the things I used to enjoy, I don't. I'm up all night and

want to sleep all day. They just changed my anti-depressant from

Cymbalta which I took for about 3 years to a new one called

Pristiq. So far I'm going through withdrawal and anxiety from the

change. My skin is crawling, I'm irritable, hot, and my sleep is

worse than ever. Hopefully this will pass. Dave

[Non-text portions of this message have been removed]

**************A Good Credit Score is 700 or Above. See yours in just 2 easy

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I remember having to ask for pain medicine from my surgeon, his response was

that he did not believe in that crap.. It made me fell like I was a druggie.

Surgeons just do not get it.. I would try your primary care physician.

Usually you need to have a relationship with the doctor who is medicating you

because you need to have the element of trust.. I am sorry that your surgeon

was

not helpful but do not feel like it is you with the problem it is the

surgeon.. asking someone to just grin and bare it is pretty cold..

Tom

In a message dated 2/13/2009 4:22:02 P.M. Mountain Standard Time,

carrie.heflin@... writes:

Wow Dave! I am so sorry to hear about that but I have to admit that I do

know the feeling. I could deal with the pain if they hadn't told me that it is

possible for me to be pain free and I can have a normal life. Since they don't

me that, I feel like there is hope and I don't want to let it go yet.

When I went to see my surgeon this week, I thought for sure he would give me

something for pain! I got nothing!! Just these patches that don't do crap

for me and were a waste of $200 and scelaxin which we all know is a waste of

money too! I even said, " can I have something for the pain? You gave me

painkillers 6 months ago so why not now? " UGH! I am so frustrated and so tired

that

I have to sit here and cry and suffer and feel sorry for myself......W

>Hi Dave!

> My depression has gotten worse so I had to have those meds bumped

> up to. I am only 31 and I want to have a normal life!!

No one ever told me I would be pain free. In fact I was told at age

40 with 4 surgeries and as much trauma as my back has seen, this is

as good as it gets. Just like the Jack Nicholson movie.

My depression has gotten worse lately too. I isolate, I don't answer

calls, the things I used to enjoy, I don't. I'm up all night and

want to sleep all day. They just changed my anti-depressant from

Cymbalta which I took for about 3 years to a new one called

Pristiq. So far I'm going through withdrawal and anxiety from the

change. My skin is crawling, I'm irritable, hot, and my sleep is

worse than ever. Hopefully this will pass. Dave

[Non-text portions of this message have been removed]

**************A Good Credit Score is 700 or Above. See yours in just 2 easy

steps!

(http://pr.atwola.com/promoclk/100126575x1218822736x1201267884/aol?redir=http://\

www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%26bcd=fe

bemailfooterNO62)

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  • 1 month later...
Guest guest

Hi ,

 

Welcome to the group!  I'm 45 yrs with CMT 1A also.  I suffer a great deal of

pain too, but I'm fortunate to have found a wonderful pain management specialist

who has helped me very much.  I don't know what I'd do without him. 

 

One of the challenges my doctors and I have faced is trying to identify exactly

what is causing the pain.  Is it CMT ravaged nerves or some other problem that

is secondary to the weakness the CMT has caused?  What we've determined is that

the burning/pins-needles/stinging/restless legs is caused by the CMT nerves, but

the severe/intolerable nerve pain in my legs, the pain that puts me in bed, is

actually coming from degeneration in my hips & back.  It took a long time to

figure that out, easy as it may seem, but proper diagnosis isn't always easy,

especially with multiple conditions going on.  Fortunately, my pain guy along

with my ortho guy figured it out and injections into the sites of origin

have finally gained me some relief.

 

As for medications, I take several for pain.  I take Neurontin for the CMT nerve

pain, Voltaren for inflammation in the joints due to degeneration, and a small

dose of Methadone for generalized pain relief & soreness.  This regiment plus

the site injections helps to keep the pain tolerable.  I also take Vicodin for

breakthrough pain.  For me, the Vicodin isn't instead of these other

medications, it's an occasional supplement to calm things back down when there's

an escalation of pain and half a pill is all I need to take at one time.

 

The Ibuprofen you take is an anti-inflammatory medication, like the Voltaren

that I take.  It's not very effective on nerve pain, at least not mine.  It

helps reduce inflammation, so it's effective for degenerative joint pain and

sore muscles.  Given your situation, I'm not sure what you could take to help

your nerve pain, but I definitely think a pain management specialist is a good

place to start!

 

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