Guest guest Posted October 25, 2009 Report Share Posted October 25, 2009 I was diagnosed with CMT/Type 1 disease late last year. I'm 59 years old but have noticed many of the symptons have decided to take the " express lanes " since 2003. I am noticing that I am now getting occasional (what feels like) electrical shocks from under the skin on an increasing basis. Is this from sensory cell signals that are disrupted and are escaping the myelin sheath? They don't last but a second but they sure get my attention! I've also noticed that they seem to occur when my body is at rest???? Any ideas? -wheels Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2009 Report Share Posted October 25, 2009 Hi Wheels, Yes, this is common. I get them sitting/standing/lying down, but not when walking. I always have to look to see if some insect is biting me...but there's no bug...just a misfiring nerve. Speaking of crazy sensory nerves, recently my toes have begun to detect that the bottom of my bed is wet...even though it's completely dry! Very crazy stuff. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2009 Report Share Posted October 26, 2009 It's from the myelin wrapping around the nerve becoming frayed. <Is this from sensory cell signals that are disrupted and are escaping the myelin sheath?> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2009 Report Share Posted October 26, 2009 Thanks - At least I know that I'm not " iosing it. " I haven't had the " wet " sensory experience yet. I'm not sure I'll ever have it. I'm 6'6 " and my feet hang off the bed. All they know is that it's cold. -wheels > > Hi Wheels, > > Yes, this is common. I get them sitting/standing/lying down, but not when walking. I always have to look to see if some insect is biting me...but there's no bug...just a misfiring nerve. > > Speaking of crazy sensory nerves, recently my toes have begun to detect that the bottom of my bed is wet...even though it's completely dry! Very crazy stuff. > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2009 Report Share Posted October 26, 2009 Thanks. Makes sense! > > It's from the myelin wrapping around the nerve becoming frayed. > > > > <Is this from sensory cell signals that are disrupted and are escaping the myelin sheath?> > Quote Link to comment Share on other sites More sharing options...
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