Re: Managing CMT - evolvement of assisitive devices

[Guest guest]

Hi Dawn,

I think like that too: If an aid (like ankle supports) are ugly and make you

feel disabled, than don't use it! Find something that is better! For me, my

braces are great. They are not visible under pants and I have normal black

leather shoes. (4 cm heals!) I need aids that help me BOTH with the physical bit

(walking) and psycological (not look and feel MORE disabled when wearin/using

them than without). I think people who construct aids should know this. They

don't care at all! They make wheelchairs exactly like those constructed decades

ago. Who would accept a car that looks like those 20 years ago? Why don't aids

evolve?

Beata

[Guest guest]

Just my 2cents... I don't care if my car is 20 years old or what it looks like,I

would accept it as long as it works and gets me where I need to go.

I feel the same about " assistive devices " because I'm not here to impress

others, but to live for ME with less pain and to be able to get where I'm going,

without falling down or getting hurt. I care where I look, that's also for me!

As far as wheel chairs I beg to differ with you they have changed alot in 20

years. How would you design one?

Things don't make me feel disabled..I know I'm disabled, I don't hide it's there

and it is real and it does not get better but progress's. Anything that will

make my life easer.....I'll give it a try!

Geri

[Guest guest]

Geri! I admire your attitude, it's fantastic! Wish I would be like that but I am

a lot more into lookign good.

* My dream wheelchair *

White leather seat that does not look like a seat, more like an office chair

with rounded cushoned forms. Wheels made of plexiglass and maybe smaller wheels,

but with a device that lets me maneuver it (not electric but maybe hand pedals)

on each side. No frame out of stainless steel! Why not white carbon fibre?

And those ugly foot holders could be changed for one single foot holder that

comes out from under the wheelchair once I am seated. Of course it would be

white too. But, this chair could be available in lots of colours. My fav is

white though. It would need an anti-dirt treatment and an easy to clean surface.

Since I am thin, most wheelchairs are too wide for me. My chair would be a

lot smaller than regular chairs.

Beata  

[Guest guest]

Geri! I admire your attitude, it's fantastic!

Thanks!!!!!!!!

Wish I would be like that but I am a lot more into lookign good.

Thats to bad!!!!!!!!!!

Geri

* My dream wheelchair *

White leather seat that does not look like a seat, more like an office chair

with rounded cushoned forms. Wheels made of plexiglass and maybe smaller wheels,

but with a device that lets me maneuver it (not electric but maybe hand pedals)

on each side. No frame out of stainless steel! Why not white carbon fibre?

And those ugly foot holders could be changed for one single foot holder that

comes out from under the wheelchair once I am seated. Of course it would be

white too. But, this chair could be available in lots of colours. My fav is

white though. It would need an anti-dirt treatment and an easy to clean surface.

Since I am thin, most wheelchairs are too wide for me. My chair would be a lot

smaller than regular chairs.

Beata