Re: metronidazole (Flagyl)

[Guest guest]

My husband was very sick in January. He has since made a complete recovery

but now he has to use a walker where before he could use a cane. He is a

lot weaker. He was given metronidazole [flagyl] for a C-Diff infection in

the hospital. I think that explains his weakness. When the C-Diff recurred

I had to pay for Vancomycin because the insurance company wanted him to

take Flagyl. I am going to appeal, but be sure you don't take this drug.

Elinor

[Guest guest]

To Elinor,

Two tears ago I had colon & bladder surgery and ended up with C-Diff. After two

rounds of Flagyl I had lost a lot of weight, was extremely week and still had

the C-Diff so a friend who is a nurse practioner told me to insist on a

Vancomycin prescription. and fortunately my insurance paid some of the bill. It

was the most expensive drug I ever took in all my 75 years but it made all the

difference. I would never take Flagyl again. I do think it only made me sicker.

I think the insurance companies insist on Flagyl because it is less expensive.

I use a cane and a rollerator and have a stair lift in my home, however I have

to manage two steps up to a landing to get on it....and I have 5 steps to manage

to leave the house. If my late onset (age 65) CMT progresses as fast in the

next 5 years as it did in the last 5 then I will have will have to make other

arrangements.

June

[Guest guest]

Metronidazole (Flagyl) has been on the CMT Medications Alert List for quite some

time, listed as 'moderate to significant risk' for people with CMT. You will

also find a B6 link there for daily amount.

http://cmtausa.org/med_alert.php

The Letter to the Medical Professional and the Medication Alert List can be

downloaded here for free at

https://secure.charcot-marie-tooth.org/publications.php

It's a good idea to have several copies of this list, for all the doctors you

see, copies for your family health records too.

Gretchen

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