Guest guest Posted January 18, 2008 Report Share Posted January 18, 2008 Hi, My name is Janet. I was diagnosed with fibro by a rhematologist Dec. 10. I'm skeptical about the diagnosis because I sat in the waiting room 1 hr. and 45 min. prior to his exam which lasted less than 5 min. I've been told to get a 2nd opinion, but he's the person in the state touted as the fibro expert. He did not draw labs, but I had mine checked at my annual exam a few weeks later. Thyroid was OK. I have a copy of my H and P from him, and disagree with many of his statements that he dictated about my exam. I don't consider myself to have " restless leg " for instance. Bouncing my leg a bit while sitting is what 80% of my co-workers and friends do. I don't kick around in my sleep, according to my hubby. The doc was incredulous that I don't have IBS and tried to fit me into that category. He tried to write me 4 prescriptions. (I asked him which was most important and started that one, the lyrica) He injected my neck and shoulder and started me on lyrica. Since I was pain free due to this injection for 2 weeks, I attributed it to the lyrica working. When the injections wore off the symptoms came back. Oh, the lyrica causes me to have incontinence only when I walk, not when I do a jump around exercise video. On my 2nd visit, I told the doctor this, and he said, No Honey, it is the fibro that causes that, interstitial cystitis, I believe. So, why did this symptom start when I started the lyrica, and stop when I stopped the lyrica? Duh. Anyways, after my 2nd visit to the " expert " where I was in the waiting room 1 hr and 30 min. the doc saw me maybe 3 min. and decided to change me to neurontin, since I can't afford the lyrica. I asked him about guaifenisin and he told me it was toxic and not a good remedy, but his numerous prescriptions are. He can't believe we do exercise videos at work (another nurse there has " fibro " also from his diagnosis) The very next day I went to see an herbalist that I'd heard good things about. He is also a clairvoyant. He sat down with me and TOLD ME my symptoms, not the other way around. He said, " You get up in the a.m. and you are so stiff and in pain you can barely move. You get into a hot shower and then feel much better. Then you put on creams on the sore spots and are able to get through your day pretty much pain free, unless you sit for a long period. " This repeats itself daily. Bingo! He told me that fibro is a fancy term for gout. He says it is caused by yeast overgrowth in the urinary tract. He prescribed 3 things to try for 60 days for the body to heal itself. 1 tlb. of dark cherry juice concentrate in 5 oz. distilled water twice a day. Also, 3 tablets of NuEgress (by Thaumaturge) at the same time. This contains wild lettuce, some amino acid, Sarspirilla, maybe one more thing. Also for me to take a 1/2 tab. of a digestive enzyme containing Hcl after lunch and dinner. He said my body doesn't make enough stomach acid. I stopped the lyrica this very day. The bladder incontinence stopped. I woke up pain free and not stiff the day after I started this program. I guess I will wait out my 60 days and see if I have some fibro attack or what during this time. Thanks for letting me share, and I tried not to make this too long, so it may be a bit sketchy in details. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2008 Report Share Posted February 20, 2008 I just had to respond to you right away though I've put flags on my other emails. I'm sick and would rather be in bed. When I was having all sorts of weird problems my doctor started thinking I was a hypochondriac. I eventually went to the Rheumatologist after talking to a few women who had fibro. One lightly poked me in the upper arm and I yelped in pain. She said, " Yep, you've got Fibro. " So, I went to the Rheumy after that and he did diagnose me with Fibro. It all fit into place for me. But, the bottom line was, he was a numbskull. I got tired of his weird looks and being tested for Lupus. I quit seeing him and had my regular doctor treat me instead. What is it with Rheumatologists anyway? Back then I wasn't near as bad off as I am now. The pain and fatigue has gotten a lot worse. Though I got diagnosed only 5 years ago it all started much longer ago than that. I figured it out with my first strong, bizarre symptom and I've had Fibro for 15 years. Personally, I wouldn't go on Lyrica unless I was in a lot of pain like I am now. But I'm on Neurontin which helps a lot. I take it mainly for my seizures but it helps with pain as well.but not a lot. Good-luck and if that Lyrica is giving you bad side affects (read and see if what you have is one of them) I'd quit it. My vitamin D levels are extremely low and my doctor has me on 3,000 (IU's? I forget what it is, mcgs? Mgs?) a day. It would help a lot if I could remember to take them. LOL Hugs, Jane _____ From: fibromyalgiacured [mailto:fibromyalgiacured ] On Behalf Of lacy192 Sent: Friday, January 18, 2008 6:13 AM To: fibromyalgiacured Subject: intro and hello Hi, My name is Janet. I was diagnosed with fibro by a rhematologist Dec. 10. I'm skeptical about the diagnosis because I sat in the waiting room 1 hr. and 45 min. prior to his exam which lasted less than 5 min. I've been told to get a 2nd opinion, but he's the person in the state touted as the fibro expert. He did not draw labs, but I had mine checked at my annual exam a few weeks later. Thyroid was OK. I have a copy of my H and P from him, and disagree with many of his statements that he dictated about my exam. I don't consider myself to have " restless leg " for instance. Bouncing my leg a bit while sitting is what 80% of my co-workers and friends do. I don't kick around in my sleep, according to my hubby. The doc was incredulous that I don't have IBS and tried to fit me into that category. He tried to write me 4 prescriptions. (I asked him which was most important and started that one, the lyrica) He injected my neck and shoulder and started me on lyrica. Since I was pain free due to this injection for 2 weeks, I attributed it to the lyrica working. When the injections wore off the symptoms came back. Oh, the lyrica causes me to have incontinence only when I walk, not when I do a jump around exercise video. On my 2nd visit, I told the doctor this, and he said, No Honey, it is the fibro that causes that, interstitial cystitis, I believe. So, why did this symptom start when I started the lyrica, and stop when I stopped the lyrica? Duh. Anyways, after my 2nd visit to the " expert " where I was in the waiting room 1 hr and 30 min. the doc saw me maybe 3 min. and decided to change me to neurontin, since I can't afford the lyrica. I asked him about guaifenisin and he told me it was toxic and not a good remedy, but his numerous prescriptions are. He can't believe we do exercise videos at work (another nurse there has " fibro " also from his diagnosis) The very next day I went to see an herbalist that I'd heard good things about. He is also a clairvoyant. He sat down with me and TOLD ME my symptoms, not the other way around. He said, " You get up in the a.m. and you are so stiff and in pain you can barely move. You get into a hot shower and then feel much better. Then you put on creams on the sore spots and are able to get through your day pretty much pain free, unless you sit for a long period. " This repeats itself daily. Bingo! He told me that fibro is a fancy term for gout. He says it is caused by yeast overgrowth in the urinary tract. He prescribed 3 things to try for 60 days for the body to heal itself. 1 tlb. of dark cherry juice concentrate in 5 oz. distilled water twice a day. Also, 3 tablets of NuEgress (by Thaumaturge) at the same time. This contains wild lettuce, some amino acid, Sarspirilla, maybe one more thing. Also for me to take a 1/2 tab. of a digestive enzyme containing Hcl after lunch and dinner. He said my body doesn't make enough stomach acid. I stopped the lyrica this very day. The bladder incontinence stopped. I woke up pain free and not stiff the day after I started this program. I guess I will wait out my 60 days and see if I have some fibro attack or what during this time. Thanks for letting me share, and I tried not to make this too long, so it may be a bit sketchy in details. Janet Quote Link to comment Share on other sites More sharing options...
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