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You are referring to a shoe company from Grand Rapids. They attended

some regionals and 1 national. They proved to be not very reliable and

I 'm not even sure if they stayed in business.

Marge

On Tue, 18 Jun 2002 17:26:20 -0400 " Babb, Larry R. (LNG) "

<lawrence.babb@...> writes:

> A cobbler came to a District 5 Regional a year or two ago, but I

> can't

> remember his name. He made plaster molds of people's feet, and

> then

> custom-made shoes from the molds. I think he was from Chicago, but

> am not

> sure.

>

> Does anybody have any contact information for him or any other

> companies

> that do a good job of making custom-made shoes? The closer to

> Dayton, OH

> the better.

>

> Thanks

>

> - Larry

>

>

>

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  • 5 years later...
Guest guest

I have two pairs of custom made sandals that I got from Piper Sandals. I sent

them foot tracings and measurements and they made the sandals.

The first pair I have had for about 6-7 years and the other pair I ordered last

year. They both fit perfectly and are very comfortable.

They only have 2 styles of sandals to choose from but they do offer them in

several colors now.

I paid about $100 - $120 a pair for them. They have been well worth it though.

www.pipersandals.com

I originally heard about them from someone on this list.

Reba

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  • 2 years later...
Guest guest

Hello,

I got custom shoes made and I walk better with them . My ankles does not twist.

I have Charcot-Marie-Tooth disese since birth. My insurance paid for them

because they are over $1,000 dollars to get on ur own. Do any one else have

custom shoes?

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I have had custom and I loved them. but my Insurance will no longer pay.so I

have been wearing slippers for five years+ now and feel like a fool when ever I

go any place.

Geri

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Geri, I, too, have very wide, small feet (1 1/2). I had custom shoes made for me

in 2005 by Tru-Mold Shoes in NY. The mold was made by the orthotist (I was sent

to him by MDA). Insurance didn't cover the shoes, nor did MDA. At that time, the

pair cost $750. I still wear them, but I think my feet are changing again (and

now I live in Canada, so I don't have insurance, and since the Ontario health

care doesn't cover braces, I'm sure they won't cover shoes!)

I also wear New Balance shoes; I forget what the number is. They have extra wide

kids shoes (some models), and the New Balance store in UT had stretchers, so

they stretched them out till they fit (there are limits how much they can be

stretched). If you have a New Balance store near you, you could look into this.

I hope you're able to find some shoes - I know how frustrating it is.

Nina P.

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Nina,

Thanks your the first person I have run into with the same problem.So you know

what I'm saying ,lol. I could never pay that much for shoes $750. you find out

if Canada covers shoes and braces?

Geri

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  • 3 weeks later...

A big problem with my CMT is the pain in my feet, so that walking has become

absolute torture. This is because my feet have developed so many hot spots,

calluses, tender spots, and bony protuberances, that every step is really

painful. I use a wheelchair part of the time, but I don't want to lose my

ability to walk. I have been through several pairs of orthotics, two pairs of

AFOs, and the pain has been increasing. My next step might be having custom made

shoes. They are very expensive, and my insurance will not cover this. I'd be

willing to pay any price if it helps, but if it doesn't help, then I'm throwing

away a big chunk of money, not a good idea.

Questions: Have any of you had shoes made? What was your experience? What was

the cost? Can anyone recommend someone in the San Francisco Bay Area who makes

custom made shoes?

Ruth

Be kind. Everyone you meet is struggling with something.

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Hello Ruth,

Been using molded shoes for about 40 years until I had to get an AFO. Now I wear

one on one foot only. They are the greatest thing since sliced bread. A lower

cost alternative is to get casts of the bottom of your feet and have inserts

molded from them. These can be moved from shoe to shoe. I use New Balance for

all of that. Check in with the US Pedorthic Assoc. They list molded shoe vendors

in your area.

EdM from NH

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Custom Orthotics are molded to fit the bddom of the shoe and can be almost as

good for CMT as the old molded shoes ... since the biggest problem is the

bottom. If you feet roll the shoe store can put wedges in the bottom of the shoe

to compensate.

I think my orthodics were $400 but insurance paid 50%. Some pay 80% Medicare or

Medicaid may pay it all or more.

Laine

>

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Hi there,

 

I've had custom-molded orthotics made twice and it was a total waste of money

for me both times.

 

With the custom-molded orthotic, they take a cast molding of the foot and create

an orthotic that supplements it.  I have very high arches and weak ankles. 

Imagine wearing an orthotic with a high arch " support " when you have weak

ankles.  The orthotic puts outward pressure on the ankles to roll.  For me, this

created tendonitis of the ankle and difficulty walking.

 

Here's a test...do you walk on the outside of your feet?  If so, when you walk

down the street and the sidewalk dips down to the street at a driveway, do you

feel weakness and instability in your ankle closest to the street, as you try to

compensate for the slight decline in the sidewalk?  If so, then buying orthotics

with arch supports may be like walking on that slight decline all the time,

straining your ankle.  That's was my experience, even the second time despite

explaining this challenge to the orthotist in advance.

 

If anyone is considering custom-molded orthotics, I'd recommend discussing this

issue with the orthotist before making the purchase and have them explain how

they will compensate for the ankle weakness.  Perhaps now they have a better

solution or some kind of ankle support system now. 

 

In fact, if someone has purchased orthotics that overcome this issue, I'd be

interested in hearing about it.

 

Thanks,

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angela, i have had ortho's made for me with the cast method and it worked fine

for years but now i haveing the problem you talked about. my left arch hurts

from the pressure and i am always compensating for my ankle and i do walk on the

outsides. i will talk to my ortho guy about this as my ankle aways hurts. thanks

francine

From: <agraham2k@...>

Subject: Re: custom made shoes

Date: Thursday, August 13, 2009, 10:12 AM

 

Hi there,

 

I've had custom-molded orthotics made twice and it was a total waste of money

for me both times.

 

With the custom-molded orthotic, they take a cast molding of the foot and create

an orthotic that supplements it.  I have very high arches and weak ankles. 

Imagine wearing an orthotic with a high arch " support " when you have weak

ankles.  The orthotic puts outward pressure on the ankles to roll.  For me, this

created tendonitis of the ankle and difficulty walking.

 

Here's a test...do you walk on the outside of your feet?  If so, when you walk

down the street and the sidewalk dips down to the street at a driveway, do you

feel weakness and instability in your ankle closest to the street, as you try to

compensate for the slight decline in the sidewalk?  If so, then buying orthotics

with arch supports may be like walking on that slight decline all the time,

straining your ankle.  That's was my experience, even the second time despite

explaining this challenge to the orthotist in advance.

 

If anyone is considering custom-molded orthotics, I'd recommend discussing this

issue with the orthotist before making the purchase and have them explain how

they will compensate for the ankle weakness.  Perhaps now they have a better

solution or some kind of ankle support system now. 

 

In fact, if someone has purchased orthotics that overcome this issue, I'd be

interested in hearing about it.

 

Thanks,

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