Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 , Drinking water on the outing will be good, same as for times of breaks. I'd also suggest aboot 2 days before to rest and get a good night's sleep. Try to listen to your body, and before you start to feel pain, stop. Period. Rest. Then go on. Advil is OK but really try to 'feel that moment' * before the pain * . I am wondering if you would be open to using a rental or borrowed scooter for the day? Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2009 Report Share Posted November 5, 2009 , How about renting a scooter? Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2009 Report Share Posted November 5, 2009 Gretchen, Thanks for the tips! I hear what you are saying about a scooter, but I am not sure I am on board with that as of yet. I have noticed that there are things my sister will no longer do because she can't walk for long anymore, and I have wondered about talking with her about using a scooter for those events. That has led to me contemplating doing the same thing for myself at some time in the future. I think I need to see how this event goes and then think seriously about my options. I will know for sure that I need to " do something " if I start to think that I " can't go anymore " because of my CMT. Of course, when I had my ankle surgery in college my mom got a wheelchair for me so we could go Christmas shopping at the mall. I could not believe how oblivious people were to the chair and how frustrating it was to try to maneuver through the crowds. I think I'll have to take an anger management class before I ever get in a scooter! lol! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2009 Report Share Posted November 5, 2009 Hi , I am so jealous that you are attending Equine Affaire. It is one of my favorite events all year and I usually go the one in Mass, but can't because of work this year. Here's what I typically do at Equine Affaire: I try to insperse the shopping with the seminars and demonstrations and make sure that I take plenty of breaks. I don't know about you, but I usually collect lots of stuff there as well--when my bag gets too full of the free stuff, I go through it and dump the stuff I don't really want, or I run it (or have someone) take it to the car periodically so that I'm not lugging around a ton of stuff all day. I know you'll have a blast there. Also, it must mean that we two horse loving CMTers aren't too far away from each other. I live in southern NH. Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2009 Report Share Posted November 6, 2009 , A scooter with a horn... better than any anger management class you could ever attend. T. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2009 Report Share Posted November 7, 2009 , Ooooooh! Do they come with air horns? lol > > , > > A scooter with a horn... better than any anger management class you could ever attend. > > T. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2009 Report Share Posted November 8, 2009 I find standing the most fatiguing activity, Second -- a very close second -- is sitting in confined spaces where I can't move my legs. Here in Rome where I can't/won't drive long bus rides as almost as tiring as walking. Unfortunately, some of the shortest rides take the most time, especially when the President of the United States or his wife show up. The only streets that front the US Ambassador's residence are the very streets that 80% of my travels cross. For your convention, sit as much as possible where you can stretch your legs. One great joy I have is to take off my shoes, wiggle my toes, and walk around a bit barefoot. Now I am going to make a very controversial statement: Fatigue is mostly mental. The problem with fatigue is how we let fatigue dictate how we live. The last six months I lived through I wouldn't wish on anyone. In that six months my right(my previously stronger) leg withered. I was forced to begin using 2 crutches whenever I could. I fell 5 times since June and anyone who has fallen knows that the fall is secondary to all the muscle pulls that show up the next day. My wife has polycystic kidney disease an in the course of these six months started dialysis and had a kidney removed. We live with a 87 year old aunt, so managing our lives moved from my wife to me. About half way though, I noticed that the level of my fatigue didn't increase as my exercise increased. When I awoke each day, I knew I had certain tasks to do regardless how tired I felt. I did them all was extremely tired during the day. What surprised me was after about 30 minutes of absolute rest I was able to go on. Absolute rest means lying down and totally relaxing. I learned to take short naps while in the army, and while working in operating rooms on long cases. I can " sleep " standing up if I need to. It isn't real sleep, but 10 minutes of absolute relaxation works remarkably well. I think I was using procedures similar to what Transcendental Meditation teaches. Sorry for the digressions, but what I discovered about myself that however fatigued I was, I was able to complete my tasks -- much slower as the day wore on, but I still completed them. What became apparent was that fatigue wasn't the limiting factor in my life, but stamina was. What I knew from my athletic background in the 55 years I didn't know what CMT was, stamina is almost limitless if between exertions, a period of absolute rest intervened. With that paradigm, fatigue is a mental brake on what we want/need to do, and if one's stamina is allowed to recover, fatigue is nothing. I still wish that life was downhill and downwind in both directions, but is something needs to be done, I will be able to do it. I am not saying that I was able to use my weakened muscles in any exaggerated way. What I have is what I have. What I am saying that within my envelop of muscle strengths, I was always able to respond. Please don't decide this is just another missive from that wacko across the pond. I hope you look into how you respond to fatigue, and try something a bit different. Regards. --Larry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2009 Report Share Posted November 19, 2009 Creatine for physical and mental fatigue. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2009 Report Share Posted November 19, 2009 WHAT IS CREATINE? Creatine for physical and mental fatigue. Quote Link to comment Share on other sites More sharing options...
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