Guest guest Posted October 1, 2009 Report Share Posted October 1, 2009 Dr.Terry Hamblin (a retired CLL expert who was the ACOR advisor) says to avoid those having received the flu mist for at least two weeks. Another site suggested a month. Pat H1N1 vaccine Question: Does anyone know: can folks who've had the live vaccine shot pose a danger to folks like us with compromised immune responses? If so, is there a time period? -Ellen D. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2009 Report Share Posted October 1, 2009 Yes the live virus does poss issues for anyone with a compromised immune system but not to the extent that someone walking around with the real full blown virus would present. During the cold and flu season remember to wash your hands thoroughly and avoid people who are sick. Tell people who are sick to stay away for at least 14 days from when symptoms first appeared (usually a fever). H1N1 vaccine Question: Does anyone know: can folks who've had the live vaccine shot pose a danger to folks like us with compromised immune responses? If so, is there a time period? -Ellen D. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2009 Report Share Posted October 8, 2009 My doctor feels it is safer to take it than get H1N1. Gareeth > I'm wondering whether it is safe to take the swine flu vaccine > considering our disease and type of meds we're taking? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2009 Report Share Posted October 8, 2009 I'm on Humira every 10 days and my rheumatologist said to take the vaccine. In the injectable form NOT the nasal spray as the spray has the live virus in it. Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2009 Report Share Posted October 8, 2009 Ask your doctor. Generally, it's OK to get vaccines only if they do not contain live viruses. Regular yearly flu shots are typically OK but I wouldn't even get that without checking with my doctor first. Joanna Hoelscher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2009 Report Share Posted October 13, 2009 Hi, I would like to thank everyone who replied, you've been very helpful. Ghaida, Kuwait Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2009 Report Share Posted October 27, 2009 Have any of you had a phone consult with Dr. G lately? He told us at the last one that he was very close to recommending the H1N1 vaccine and I¹m wondering what came of that. Is he recommending it now? Thanks, Caroline Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2009 Report Share Posted October 27, 2009 Ten Days ago he recommended the pneumonia vaccine in that the pneumonia is what is deadly. You will survive the H1N1 if you have the pneumonia vaccine. I have been told by our immunologist that under no circumstances give a kid the nose spray vaccine ever~ From: Caroline Glover <sfglover@...> Subject: Re: Re: H1N1 vaccine Date: Tuesday, October 27, 2009, 9:56 AM Have any of you had a phone consult with Dr. G lately? He told us at the last one that he was very close to recommending the H1N1 vaccine and I¹m wondering what came of that. Is he recommending it now? Thanks, Caroline Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2009 Report Share Posted October 27, 2009 He told me the same. Kristy From: [mailto: ] On Behalf Of Bill klimas Sent: Tuesday, October 27, 2009 7:12 AM Subject: Re: Re: H1N1 vaccine Ten Days ago he recommended the pneumonia vaccine in that the pneumonia is what is deadly. You will survive the H1N1 if you have the pneumonia vaccine. I have been told by our immunologist that under no circumstances give a kid the nose spray vaccine ever~ From: Caroline Glover <sfglover@... <mailto:sfglover%40mac.com> > Subject: Re: Re: H1N1 vaccine <mailto:%40> Date: Tuesday, October 27, 2009, 9:56 AM Have any of you had a phone consult with Dr. G lately? He told us at the last one that he was very close to recommending the H1N1 vaccine and I¹m wondering what came of that. Is he recommending it now? Thanks, Caroline Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2009 Report Share Posted October 27, 2009 Bill, Thanks so much. Now this pneumonia vaccine is the Pneumococcal Vaccination, am I correct? I spoke to our pediatrician¹s office about it and they will have to special order it if that is the one. I was aware that the nose spray was a big no-no, but I¹m sure Dr. G was talking about the H1N1 injected vaccine rather than that. He did tell us that the pneumonia vaccination was the most important in his view. Caroline Ten Days ago he recommended the pneumonia vaccine in that the pneumonia is what is deadly. You will survive the H1N1 if you have the pneumonia vaccine. I have been told by our immunologist that under no circumstances give a kid the nose spray vaccine ever~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2009 Report Share Posted October 27, 2009 My twins had Prevnar vaccs, 3 or 4 when they were younger and Dr. G was relieved because that is the one for pneumonia. Kristy From: [mailto: ] On Behalf Of Caroline Glover Sent: Tuesday, October 27, 2009 7:32 AM Subject: Re: Re: H1N1 vaccine Bill, Thanks so much. Now this pneumonia vaccine is the Pneumococcal Vaccination, am I correct? I spoke to our pediatrician¹s office about it and they will have to special order it if that is the one. I was aware that the nose spray was a big no-no, but I¹m sure Dr. G was talking about the H1N1 injected vaccine rather than that. He did tell us that the pneumonia vaccination was the most important in his view. Caroline Ten Days ago he recommended the pneumonia vaccine in that the pneumonia is what is deadly. You will survive the H1N1 if you have the pneumonia vaccine. I have been told by our immunologist that under no circumstances give a kid the nose spray vaccine ever~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2009 Report Share Posted October 27, 2009 We got the Pneumococcal Vaccination for our son at our local compounding pharmacy for $10. I believe you can probably find it at you local Walgreens or CVS, but I am not sure. JR From: sfglover@... Date: Tue, 27 Oct 2009 10:32:06 -0400 Subject: Re: Re: H1N1 vaccine Bill, Thanks so much. Now this pneumonia vaccine is the Pneumococcal Vaccination, am I correct? I spoke to our pediatrician¹s office about it and they will have to special order it if that is the one. I was aware that the nose spray was a big no-no, but I¹m sure Dr. G was talking about the H1N1 injected vaccine rather than that. He did tell us that the pneumonia vaccination was the most important in his view. Caroline Ten Days ago he recommended the pneumonia vaccine in that the pneumonia is what is deadly. You will survive the H1N1 if you have the pneumonia vaccine. I have been told by our immunologist that under no circumstances give a kid the nose spray vaccine ever~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2009 Report Share Posted October 27, 2009 I asked Hannah's immunologist last week and she said that yes, Hannah should receive this because of her immune system (and asthma of course). However, she, like Grant cannot have the flumist, only the shot, which is in short supply in Wisconsin, so far she not been able to get it. Hope this helps some. I will be getting for Hannah when and if it becomes availabe to non medical personnel here. Beth " We can't direct the wind, but we can adjust our sails " -author unknown ________________________________ From: toivonen4 <toivonen4@...> Sent: Tuesday, October 27, 2009 10:57:28 AM Subject: H1N1 vaccine The schools here where I live are offering the H1N1 vaccine free of charge to the students and we have to have our signed consent form turned in this Friday if we want to get the vaccine. That has prompted me to do some research on the vaccine and I'm just curious if any of you have specifically had their doctors recommend that your child get the vaccine. I have a call in to our ped rheumy right now to see what he says. I am just concerned because the vaccine has only been tested on healthy kids. How do we know the affects it will have on our immune compromised children? Also I know that Grant can't have the live virus which means that he needs to have the injection. The injection contains Thimerosal which is what some people think is linked to autism and other auto immune diseases. Just curious what others are thinking about this or maybe I am just over analyzing the whole situation which I tend to do. karen & grant (12, psoriatic,uveitis) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2009 Report Share Posted October 27, 2009 Too late for our household. Izzy was not able to get the vaccine, before we all got the flu. At least it was mild for her, I had it the worst. She was able to get the regular vaccine which I think helped alot. Hopefully things will be back to normal by next week and we won't have to go through this again. http://buckeyebellessweets.com From: Beth Yohnk <yohnkmom@...> Subject: Re: H1N1 vaccine Date: Tuesday, October 27, 2009, 12:03 PM I asked Hannah's immunologist last week and she said that yes, Hannah should receive this because of her immune system (and asthma of course). However, she, like Grant cannot have the flumist, only the shot, which is in short supply in Wisconsin, so far she not been able to get it. Hope this helps some. I will be getting for Hannah when and if it becomes availabe to non medical personnel here. Beth " We can't direct the wind, but we can adjust our sails " -author unknown ____________ _________ _________ __ From: toivonen4 <toivonen4 (DOT) com> @group s.com Sent: Tuesday, October 27, 2009 10:57:28 AM Subject: H1N1 vaccine The schools here where I live are offering the H1N1 vaccine free of charge to the students and we have to have our signed consent form turned in this Friday if we want to get the vaccine. That has prompted me to do some research on the vaccine and I'm just curious if any of you have specifically had their doctors recommend that your child get the vaccine. I have a call in to our ped rheumy right now to see what he says. I am just concerned because the vaccine has only been tested on healthy kids. How do we know the affects it will have on our immune compromised children? Also I know that Grant can't have the live virus which means that he needs to have the injection. The injection contains Thimerosal which is what some people think is linked to autism and other auto immune diseases. Just curious what others are thinking about this or maybe I am just over analyzing the whole situation which I tend to do. karen & grant (12, psoriatic,uveitis) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2009 Report Share Posted October 27, 2009 Did you all test positive for H1N1? The flu went through our household too a couple weeks ago but we never went in to get it tested so don't know what it was for sure. > > From: Beth Yohnk <yohnkmom@...> > Subject: Re: H1N1 vaccine > > Date: Tuesday, October 27, 2009, 12:03 PM > > > > > > > > > > > > > > > > > > > > I asked Hannah's immunologist last week and she said that yes, Hannah should receive this because of her immune system (and asthma of course). However, she, like Grant cannot have the flumist, only the shot, which is in short supply in Wisconsin, so far she not been able to get it. Hope this helps some. I will be getting for Hannah when and if it becomes availabe to non medical personnel here. > > > > Beth > > " We can't direct the wind, but we can adjust our sails " -author unknown > > > > ____________ _________ _________ __ > > From: toivonen4 <toivonen4 (DOT) com> > > @group s.com > > Sent: Tuesday, October 27, 2009 10:57:28 AM > > Subject: H1N1 vaccine > > > > > > The schools here where I live are offering the H1N1 vaccine free of charge to the students and we have to have our signed consent form turned in this Friday if we want to get the vaccine. That has prompted me to do some research on the vaccine and I'm just curious if any of you have specifically had their doctors recommend that your child get the vaccine. I have a call in to our ped rheumy right now to see what he says. I am just concerned because the vaccine has only been tested on healthy kids. How do we know the affects it will have on our immune compromised children? Also I know that Grant can't have the live virus which means that he needs to have the injection. The injection contains Thimerosal which is what some people think is linked to autism and other auto immune diseases. > > > > Just curious what others are thinking about this or maybe I am just over analyzing the whole situation which I tend to do. > > > > karen & grant (12, psoriatic,uveitis) > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2009 Report Share Posted October 27, 2009 Hi, , Here's what we did: After much research I decided to have my son (5, psoriatic) get the shot. We got it yesterday at our county health department (it's not available anywhere else here). On the advice of an immunologist we wore masks to the shot clinic because they were administering the mist in the same office. We were also told to keep him home from school for three days. The doctor told us that after three days the immunity is mostly built up (it's not totally built up until 2 weeks) after the shot. Best, Abbie > > The schools here where I live are offering the H1N1 vaccine free of charge to the students and we have to have our signed consent form turned in this Friday if we want to get the vaccine. That has prompted me to do some research on the vaccine and I'm just curious if any of you have specifically had their doctors recommend that your child get the vaccine. I have a call in to our ped rheumy right now to see what he says. I am just concerned because the vaccine has only been tested on healthy kids. How do we know the affects it will have on our immune compromised children? Also I know that Grant can't have the live virus which means that he needs to have the injection. The injection contains Thimerosal which is what some people think is linked to autism and other auto immune diseases. > > Just curious what others are thinking about this or maybe I am just over analyzing the whole situation which I tend to do. > > karen & grant (12, psoriatic,uveitis) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2009 Report Share Posted October 27, 2009 Our pediatric rheumy is recommending all the JRA kids get the flu vaccine. If your child is on mtx, prednisone, or a biological, he/ she can not get the FluMist. Nor anyone in your family. All must get only the vaccine. The multi-dose vaccine does contain thimerosal, but the single dose vaccine does not. You could always request the single dose vaccine. We have all had the flu so I am not getting anyone vaccinated. Were we tested for the swine flu? No, they aren't testing anyone anymore. But according to the CDC, almost ALL of the flu out there at this particular time of year is H1N1. We all survived. My asthmatic child was hit hard, but she stayed on her inhalers and prednisone and recovered just fine. n, my systemic JRA child on mtx, got it and was put on Tamiflu immediately. She recovered the quickest of all of us. She loved that Tamiflu. (n, 20, systemic) On Oct 27, 2009, at 8:57 AM, toivonen4 wrote: > The schools here where I live are offering the H1N1 vaccine free of > charge to the students and we have to have our signed consent form > turned in this Friday if we want to get the vaccine. That has > prompted me to do some research on the vaccine and I'm just curious > if any of you have specifically had their doctors recommend that > your child get the vaccine. I have a call in to our ped rheumy > right now to see what he says. I am just concerned because the > vaccine has only been tested on healthy kids. How do we know the > affects it will have on our immune compromised children? Also I > know that Grant can't have the live virus which means that he needs > to have the injection. The injection contains Thimerosal which is > what some people think is linked to autism and other auto immune > diseases. > > Just curious what others are thinking about this or maybe I am just > over analyzing the whole situation which I tend to do. > > karen & grant (12, psoriatic,uveitis) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2009 Report Share Posted October 27, 2009 Kristy and JR, Thanks! One of my boys had two rounds of the Prevnar when he was younger, didn¹t have more rounds because of his age when it came out (I think). The other one was older and hasn¹t had it. I asked our pediatric office if the PREVNAR was the same as the pneumococcal vaccine and they said that it wasn¹t.... I tried looking it up on the internet and found that there is another vaccine that protects against more strains of pneumococcal bacteria (PREVNAR protects against 7 strains and seems to be for young children), while the ³Pneumococcal polysaccharide vaccine² (PPSV) seems to protect against 23 strains. Here¹s a link about the pneumococcal vaccines... http://www.cdc.gov/vaccines/vpd-vac/pneumo/default.htm So I¹m thinking my kids need to if my kids should get the PPSV. When we spoke to Dr. G., he didn¹t say ³get the PREVNAR², he said to get the pneumococcal vaccine. Since my kids are older that makes sense. Of course I just tried to call the office and it was closed. I wonder if they will open today? Our pediatrician said he could order the vaccine but doesn¹t have it in the office. Anyway, just trying to figure it all out! Caroline My twins had Prevnar vaccs, 3 or 4 when they were younger and Dr. G was relieved because that is the one for pneumonia. Kristy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2009 Report Share Posted October 27, 2009 OK... I got through to Dr. G¹s office and I¹m waiting to hear back about the pneumococcal vaccine. I was told, though, that as of Friday, he will be giving the H1N1 vaccine in his office, so I¹m assuming that means he is recommending it. I think they don¹t have the vaccine in yet, but anyway he is going to be giving it. They said the vaccines should be at least 3 weeks apart. And once again, NOT the nasal spray! That¹s my latest update! Caroline Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2009 Report Share Posted October 27, 2009 Dr. G¹s office called back and this is what they said... He wants both of my boys to have the ³PPV23² pneumococcal vaccine. One of my boys never had the Prevnar and the other only had 2 Prevnar doses as an infant. In the below page (same link I posted before), it says that the ³PPV23² has been renamed to ³PPSV². http://www.cdc.gov/vaccines/vpd-vac/pneumo/default.htm So, if your child had all doses of the Prevnar you might want to check and see if Dr. G. is satisfied with that. Carry on! Caroline G. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2009 Report Share Posted October 27, 2009 I just want to say that both of my kids came down with the flu one week and a half ago. Their pediatrician would not verify if it was the H1N1 because she said it is more likely than not since they have all of the symptoms and that the H1N1 has hit everywhere. My kids did do O.K. last week and their fevers broke. However, my oldest son got worse this past Sunday. He has increased seizure activity and he is falling down, very wobbly and walking into walls. His pediatrician said he looked fine and told me to make sure he gets plenty of fluids. His neurologist recommended that I increase his seizure medications. It was too late to give my kids the H1N1 vaccination anyway but if I could, I think I may have given them the vaccination. I am very leery of vaccinations but I think this wild virus may have been worse. I am so nervous right now. My son is scheduled to see the neurologist this Thursday. Does anybody have any advise on what I should say to her or do you have any ideas on what to recommend to get him better? Please advise, Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2009 Report Share Posted October 27, 2009 Dont you love it when they love the tamiflu. Terri Re: H1N1 vaccine Our pediatric rheumy is recommending all the JRA kids get the flu vaccine. If your child is on mtx, prednisone, or a biological, he/ she can not get the FluMist. Nor anyone in your family. All must get only the vaccine. The multi-dose vaccine does contain thimerosal, but the single dose vaccine does not. You could always request the single dose vaccine. We have all had the flu so I am not getting anyone vaccinated. Were we tested for the swine flu? No, they aren't testing anyone anymore. But according to the CDC, almost ALL of the flu out there at this particular time of year is H1N1. We all survived. My asthmatic child was hit hard, but she stayed on her inhalers and prednisone and recovered just fine. n, my systemic JRA child on mtx, got it and was put on Tamiflu immediately. She recovered the quickest of all of us. She loved that Tamiflu. (n, 20, systemic) On Oct 27, 2009, at 8:57 AM, toivonen4 wrote: > The schools here where I live are offering the H1N1 vaccine free of > charge to the students and we have to have our signed consent form > turned in this Friday if we want to get the vaccine. That has > prompted me to do some research on the vaccine and I'm just curious > if any of you have specifically had their doctors recommend that > your child get the vaccine. I have a call in to our ped rheumy > right now to see what he says. I am just concerned because the > vaccine has only been tested on healthy kids. How do we know the > affects it will have on our immune compromised children? Also I > know that Grant can't have the live virus which means that he needs > to have the injection. The injection contains Thimerosal which is > what some people think is linked to autism and other auto immune > diseases. > > Just curious what others are thinking about this or maybe I am just > over analyzing the whole situation which I tend to do. > > karen & grant (12, psoriatic,uveitis) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2009 Report Share Posted October 27, 2009 Thank you all for your insight. Our ped rheumy returned my call and they reccommend getting it as well. - do you know what the reasoning is behind the whole family not receiving the flumist? Haven't seen that in anything I have read. I don't know what we are going to do yet especially since Grant already had the flu like symptoms 2 weeks ago. He was out of school for 4 days. The CDC does reccommend still getting the vaccination if you already had the flu and didn't test positive for it. > > > The schools here where I live are offering the H1N1 vaccine free of > > charge to the students and we have to have our signed consent form > > turned in this Friday if we want to get the vaccine. That has > > prompted me to do some research on the vaccine and I'm just curious > > if any of you have specifically had their doctors recommend that > > your child get the vaccine. I have a call in to our ped rheumy > > right now to see what he says. I am just concerned because the > > vaccine has only been tested on healthy kids. How do we know the > > affects it will have on our immune compromised children? Also I > > know that Grant can't have the live virus which means that he needs > > to have the injection. The injection contains Thimerosal which is > > what some people think is linked to autism and other auto immune > > diseases. > > > > Just curious what others are thinking about this or maybe I am just > > over analyzing the whole situation which I tend to do. > > > > karen & grant (12, psoriatic,uveitis) > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2009 Report Share Posted October 27, 2009 Kaylee's rheumy said for her to get the H1N1, she just got the flu shot last week. The clinic here called yesterday and told me they have the H1N1, so I am taking Kaylee shortly to get that as well. I was also asked about a pneumonia shot; has anyone heard anything on that? , Kaylee, 7, Poly, Uveitis, Osteopenia, DBD and ADHD H1N1 vaccine The schools here where I live are offering the H1N1 vaccine free of charge to the students and we have to have our signed consent form turned in this Friday if we want to get the vaccine. That has prompted me to do some research on the vaccine and I'm just curious if any of you have specifically had their doctors recommend that your child get the vaccine. I have a call in to our ped rheumy right now to see what he says. I am just concerned because the vaccine has only been tested on healthy kids. How do we know the affects it will have on our immune compromised children? Also I know that Grant can't have the live virus which means that he needs to have the injection. The injection contains Thimerosal which is what some people think is linked to autism and other auto immune diseases. Just curious what others are thinking about this or maybe I am just over analyzing the whole situation which I tend to do. karen & grant (12, psoriatic,uveitis) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2009 Report Share Posted October 27, 2009 Hannah got a pneumonia shot 2 years ago. Beth & Hannah, 13, OA, HMJS, vit d deficiency, asthma Beth " We can't direct the wind, but we can adjust our sails " -author unknown ________________________________ From: " maydo65@... " <maydo65@...> Sent: Tuesday, October 27, 2009 2:59:50 PM Subject: Re: H1N1 vaccine Kaylee's rheumy said for her to get the H1N1, she just got the flu shot last week. The clinic here called yesterday and told me they have the H1N1, so I am taking Kaylee shortly to get that as well. I was also asked about a pneumonia shot; has anyone heard anything on that? , Kaylee, 7, Poly, Uveitis, Osteopenia, DBD and ADHD H1N1 vaccine The schools here where I live are offering the H1N1 vaccine free of charge to the students and we have to have our signed consent form turned in this Friday if we want to get the vaccine. That has prompted me to do some research on the vaccine and I'm just curious if any of you have specifically had their doctors recommend that your child get the vaccine. I have a call in to our ped rheumy right now to see what he says. I am just concerned because the vaccine has only been tested on healthy kids. How do we know the affects it will have on our immune compromised children? Also I know that Grant can't have the live virus which means that he needs to have the injection. The injection contains Thimerosal which is what some people think is linked to autism and other auto immune diseases. Just curious what others are thinking about this or maybe I am just over analyzing the whole situation which I tend to do. karen & grant (12, psoriatic,uveitis) Quote Link to comment Share on other sites More sharing options...
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