Guest guest Posted February 21, 2008 Report Share Posted February 21, 2008 Hi and welcome! You have one of my favorite names! Hang in there. If you're flaring, it's normal to feel ouchy, depressed, and hopeless. You will feel like RA is manageable once you get the symptoms under control. When I flare I'm convinced I'll never feel better and I really lose hope that things ever will be different. Forgive me if you've already answered this, but have you seen a rheumatologist yet? Be sure to see one who is comfortable prescribing biologics. They may or may not be right for your exact case, but it's good to see a specialist who is up on the latest treatments. I'm 36 and have a 4 year old son. I'll be 23 weeks pg tomorrow with our second. I've juggled RA with infertility, two recent moves, and working full time. You will feel like yourself again, the biggest thing is getting a doctor who can be your partner in fighting RA. I shamelessly shill for Enbrel on this group. It started working for me within a week. I'm still on low dose prednisone, but for me and many others, biologics have given me back my life. Hugs, Kate F [ ] Intro Hi my name is and I am 35 yrs old and it's been 2 weeks today that I was diagnosed w/RA. I'm in ALOT of pain and feeling really mad that I have this disease. I have 2 young active children (5 & 8) and hate the fact that I am ALWAYS tired and hurting. Being a full time mother, we are not allowed to have DAYS OFF. I have a busy life and I feel so frustrated that I can't accomplish as much anymore. I work part time, go to school, volunteer @ my childrens school, and a single parent during the week, and have all the house cleaning and duties to do. I'm just so emotional right now and feel like a big part of me has been taken away. The big part being my health. I'm trying not to show it in front of my family, and hate complaining and whining about it to them because they don't understand and I'm sure they get tired of hearing me complain. That's why I joined this support group, I need to vent and read about other people in the same situation. I am currently on Plaquenil and ibuprofen 800mg and feel absolutely NO RELIEF!!!!! I am in tons of pain and all I can do is wait until the kids go to bed so I can relief some stress by crying. I'm hoping to get some support from someone who understands this pain. Any advice or kind words are always welcomed. ________________________________________________________________________________\ ____ Never miss a thing. Make your home page. http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2008 Report Share Posted February 21, 2008 Hi So sorry you have so much pain right now. It will get better once you find meds that work for you. You may have to give the meds more time to kick in..did your doc tell you how soon they would start working? After you get some meds that help you will have good days and some rough days but we are all here if you need to vent. I am not as young as you...44. but I remember those days and have teens now. I also work part time. Hang in there and email me anytime. Joy ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Visit Joy's Homepage and Reading Room! http://jhoormann-ivil.tripod.com Come see My Dog Salsa! http://www.geocities.com/jhoorm01/Salsa.html [ ] Intro Hi my name is and I am 35 yrs old and it's been 2 weeks today that I was diagnosed w/RA. I'm in ALOT of pain and feeling really mad that I have this disease. I have 2 young active children (5 & 8) and hate the fact that I am ALWAYS tired and hurting. Being a full time mother, we are not allowed to have DAYS OFF. I have a busy life and I feel so frustrated that I can't accomplish as much anymore. I work part time, go to school, volunteer @ my childrens school, and a single parent during the week, and have all the house cleaning and duties to do. I'm just so emotional right now and feel like a big part of me has been taken away. The big part being my health. I'm trying not to show it in front of my family, and hate complaining and whining about it to them because they don't understand and I'm sure they get tired of hearing me complain. That's why I joined this support group, I need to vent and read about other people in the same situation. I am currently on Plaquenil and ibuprofen 800mg and feel absolutely NO RELIEF!!!!! I am in tons of pain and all I can do is wait until the kids go to bed so I can relief some stress by crying. I'm hoping to get some support from someone who understands this pain. Any advice or kind words are always welcomed. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2008 Report Share Posted February 21, 2008 Hi , Welcome to the group. One of the best things about the group is we all know what you are going through. I remember when I was diagnosed all I could do is cry, I remembered my Moms hands being misshapen and painful. When I went back to the Rh he told me that with the new meds it is possible to lessen the pain and avoid the joint erosion. So there it hope. You can't let it control your life, it will be hard at times I'm not gonna tell you everything will be wonderful all the time but for the times its bad, relaxation, medication, nutrition and support will get you through it.Thisgroup has given me so much support and many new ideas to try to help deal with the pain. Hang in there and remember we are all here for you. Heidi M On Thu, Feb 21, 2008 at 3:30 PM, Fair <kalfoley@...> wrote: > Hi and welcome! You have one of my favorite names! Hang in > there. If you're flaring, it's normal to feel ouchy, depressed, and > hopeless. You will feel like RA is manageable once you get the symptoms > under control. When I flare I'm convinced I'll never feel better and I > really lose hope that things ever will be different. Forgive me if you've > already answered this, but have you seen a rheumatologist yet? Be sure to > see one who is comfortable prescribing biologics. They may or may not be > right for your exact case, but it's good to see a specialist who is up on > the latest treatments. I'm 36 and have a 4 year old son. I'll be 23 weeks pg > tomorrow with our second. I've juggled RA with infertility, two recent > moves, and working full time. You will feel like yourself again, the biggest > thing is getting a doctor who can be your partner in fighting RA. I > shamelessly shill for Enbrel on this group. It started working for me within > a week. > I'm still on low dose prednisone, but for me and many others, biologics > have given me back my life. > Hugs, Kate F > > > [ ] Intro > > Hi my name is and I am 35 yrs old and it's been 2 weeks > today that I was diagnosed w/RA. I'm in ALOT of pain and feeling > really mad that I have this disease. I have 2 young active children > (5 & 8) and hate the fact that I am ALWAYS tired and hurting. Being > a full time mother, we are not allowed to have DAYS OFF. I have a > busy life and I feel so frustrated that I can't accomplish as much > anymore. I work part time, go to school, volunteer @ my childrens > school, and a single parent during the week, and have all the house > cleaning and duties to do. > I'm just so emotional right now and feel like a big part of me has > been taken away. The big part being my health. > I'm trying not to show it in front of my family, and hate complaining > and whining about it to them because they don't understand and I'm > sure they get tired of hearing me complain. > That's why I joined this support group, I need to vent and read about > other people in the same situation. > I am currently on Plaquenil and ibuprofen 800mg and feel absolutely > NO RELIEF!!!!! I am in tons of pain and all I can do is wait until > the kids go to bed so I can relief some stress by crying. > I'm hoping to get some support from someone who understands this pain. > > Any advice or kind words are always welcomed. > > > __________________________________________________________ > Never miss a thing. Make your home page. > http://www./r/hs > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2008 Report Share Posted February 21, 2008 --- In , " veronica " <veronica1528@...> wrote: > > Hi my name is and I am 35 yrs old and it's been 2 weeks > today that I was diagnosed w/RA. I'm in ALOT of pain and feeling > really mad that I have this disease. I have 2 young active children > (5 & 8) and hate the fact that I am ALWAYS tired and hurting. Being > a full time mother, we are not allowed to have DAYS OFF. I have a > busy life and I feel so frustrated that I can't accomplish as much > anymore. I work part time, go to school, volunteer @ my childrens > school, and a single parent during the week, and have all the house > cleaning and duties to do. > I'm just so emotional right now and feel like a big part of me has > been taken away. The big part being my health. > I'm trying not to show it in front of my family, and hate complaining > and whining about it to them because they don't understand and I'm > sure they get tired of hearing me complain. > That's why I joined this support group, I need to vent and read about > other people in the same situation. > I am currently on Plaquenil and ibuprofen 800mg and feel absolutely > NO RELIEF!!!!! I am in tons of pain and all I can do is wait until > the kids go to bed so I can relief some stress by crying. > I'm hoping to get some support from someone who understands this pain. > > Any advice or kind words are always welcomed. > > Hi . My name is Joy I am 40 yrs old and have had this since I was 25yrs old. I felt the same way as you back then I was mad at the world and didnt understand why people older than me were more active than I was and why I couldn't get out there and run like they could. I thought I was the only one who felt this way and my family and friends at the time thought that I was complaining all the time. I understand what you mean that your life just cant stop because of the pain because we have children to raise. I am a single parent with a nine yr old that I share custody with and a 19 yr old who lives in NC. Children are a blessing though and my daughter is there for me and watches over her mother. I just feel soo bad for her because I feel like I am not giving her the attention she needs because I am either in alot of pain or very tired. Sometimes both if it is after a long day at work. I work 40 hrs a week in a cooler. I feel bad because I have to tell her not to squeeze so hard sometimes when she wants to give me a hug and that hurts me inside at my heart. It took awhile but now I have a good support system in place. I live with my mother and my boyfriend who are absolutely the two greatest people on earth. I have my daughter every other week and she is amazing for a 9yr old. I feel like you though and dont want to seem like I am complaining all the time. This group is great because we can meet new friends though who are in the same boat we are in and lean on each other for support. Glad that you are here. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2008 Report Share Posted February 21, 2008 --- In , " veronica " <veronica1528@...> wrote: > > Hi my name is and I am 35 yrs old and it's been 2 weeks > today that I was diagnosed w/RA. I'm in ALOT of pain and feeling > really mad that I have this disease. I have 2 young active children > (5 & 8) and hate the fact that I am ALWAYS tired and hurting. Being > a full time mother, we are not allowed to have DAYS OFF. I have a > busy life and I feel so frustrated that I can't accomplish as much > anymore. I work part time, go to school, volunteer @ my childrens > school, and a single parent during the week, and have all the house > cleaning and duties to do. > I'm just so emotional right now and feel like a big part of me has > been taken away. The big part being my health. > I'm trying not to show it in front of my family, and hate complaining > and whining about it to them because they don't understand and I'm > sure they get tired of hearing me complain. > That's why I joined this support group, I need to vent and read about > other people in the same situation. > I am currently on Plaquenil and ibuprofen 800mg and feel absolutely > NO RELIEF!!!!! I am in tons of pain and all I can do is wait until > the kids go to bed so I can relief some stress by crying. > I'm hoping to get some support from someone who understands this pain. > > Any advice or kind words are always welcomed. > > Hi . My name is Joy I am 40 yrs old and have had this since I was 25yrs old. I felt the same way as you back then I was mad at the world and didnt understand why people older than me were more active than I was and why I couldn't get out there and run like they could. I thought I was the only one who felt this way and my family and friends at the time thought that I was complaining all the time. I understand what you mean that your life just cant stop because of the pain because we have children to raise. I am a single parent with a nine yr old that I share custody with and a 19 yr old who lives in NC. Children are a blessing though and my daughter is there for me and watches over her mother. I just feel soo bad for her because I feel like I am not giving her the attention she needs because I am either in alot of pain or very tired. Sometimes both if it is after a long day at work. I work 40 hrs a week in a cooler. I feel bad because I have to tell her not to squeeze so hard sometimes when she wants to give me a hug and that hurts me inside at my heart. It took awhile but now I have a good support system in place. I live with my mother and my boyfriend who are absolutely the two greatest people on earth. I have my daughter every other week and she is amazing for a 9yr old. I feel like you though and dont want to seem like I am complaining all the time. This group is great because we can meet new friends though who are in the same boat we are in and lean on each other for support. Glad that you are here. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2008 Report Share Posted March 25, 2008 Hmmm...... Not sure what happened with this. I started out with several paragraphs! Anyway, my question is whether or not I'm supposed to do an intro to be in the group. Thanks! Laree " that said, i was very excited about this group and for now rather disappointed in it, " d I am having just the opposite experience. I was with the discussingNT (Nourishing Traditions) group for years and just decided to try something else. That was a great group also but this one is definitely different. On that group, religion and politics were not allowed. It is refreshing to see some real debates on this group!Along with that, I've noticed that this group has more men and I notice that masculine energy and appreciate it in addition to the feminine energy. And I especially appreciated the the ability to laugh at ourselves when a cute error is made --- as in freeze drying our organs. :-)I think it's about time I wrote my intro (do you do those on this list?) since I'm planning to be a part of this group for awhile.Oh, and the original meaning of the word religion has something to do with " coming home " as in re-linking with our source or god. Just about anything could be used as religion, given that definition and your definition of your source or god. It's all good. :-)PeaceLaree Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2008 Report Share Posted March 25, 2008 Laree, > Hmmm...... Not sure what happened with this. I started out with several > paragraphs! Anyway, my question is whether or not I'm supposed to do an > intro to be in the group. It is not required, but insofar as you'd love to write one, we'd love to read it. (Moderator) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2008 Report Share Posted March 25, 2008 --- Laree Kline <lareekline@...> wrote: > Hmmm...... Not sure what happened with this. I started out with > several paragraphs! Anyway, my question is whether or not I'm > supposed to do an intro to be in the group. Hi Laree, I'm on your other list too You may have seen me post there from time to time. Some people do post introductions here, though only a small minority. However, it does have the advantage of giving people a better perspective on your situation. Judging by the members list, many people who join this list never even post. I'd like to encourage them not to be shy about posting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2009 Report Share Posted September 20, 2009 Hello Everyone.... My name is Tom and I live in Portland, Oregon. I was diagnosed with CMT when I was 16 years old. I am now 50. I decided to come out of the closet and start asking questions from others. That would be all of you...... Tom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2009 Report Share Posted October 17, 2009 Welcome Dottie: I am glad your meds. are working well for you. I have had RA for 6 1/2 years. It is under control, and I have been in a medicine induced remission for almost a year. Horray!!!!! I know you will be happy here with our wondrful group of people. You did a good thing for yourself by joining us. Wishing you many pain free days ahead. Hugs, Barbara > > Hello All, > > Thanks for letting me join this group. > > My name is Dottie, I am 62. I was diagnosed with SLE, and OA in June do 2005 > The SLE diagnosis came after about 10 years of other MD's telling me it was > all in my head. ( Along with these, I have GERD, IBS, hypothyroid, > bilateral hip bursitis and RA. > > I have been on a self imposed diet January of this year. My rheumatologist > agreed with me that my 169 pounds (I am 5 ft 2 inches) was not helping > anything. I am now, 131 pounds (this morning). Exercise, diet, and > persistence have been my tools. ) > > I am on these meds: > > Plaquenil 200 mg one tablet twice a day (lupus) > Voltaren 75 mg one tablet twice a day (OA, RA) > Methotrexate 2.5 mg three tablets once a week (RA) > Levothyroxine 25 mcg one tablet once a day > > The methotrexate dose is a first run to see how I do. He may up it. > > My RA only appeared middle of this year, but it seems to be progressing fast > I am loosing ability to open bottles (for example) and other things. I do > try to remain active in hand use by knitting and / or crochet. I am > operating this as a " if you don't use it you loose it " theory. > > Hoping to get to know you all better. ) > > Dottie > > Quote Link to comment Share on other sites More sharing options...
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