Re: Tight Hamstrings

[Guest guest]

Amy,

Yes tight hamstrings are often a part of CMT. Daily stretching will help under

the guidance of a pediatric physical therapist. You might also ask about

hamstring stretching in water - warm or hot water, for your 5 year old a bath

tub or hot tub would work, but some PT centers do have heated therapy therapy

pools.

Gretchen

[Guest guest]

My son w. CMT also has tight hamstrings, along with various other tightnesses .

So yes, absolutely this is a consequence of CMT.

Maneesha

[Guest guest]

Amy,

I have very tight hamstrings and have always had..........Doc make me so mad. Do

they even know anything about CMT...or are they after more money and needless

tests!

POed.

Geri

[Guest guest]

Hi,

I am not sure it is CMT related. Maybe indirectly, meaning that lack of exercise

or stretching might cause the tightness. I have hade CMT since childhood, but

have not noticed tight hamstrings.

Beata

 

________________________________

From: mom2m2 <tatefamily@...>

Sent: Thu, November 19, 2009 6:10:36 AM

Subject: Tight Hamstrings

 

Is hamstring tightness something that you experience with CMT? My 5 year old has

CMT. We saw several specialists today and one informed us that she seems to have

something other than CMT going on because tight hamstrings are not a symptom of

CMT. We know she has CMT from genetic testing. Just curious if any of you have

this symptom and what your thoughts are.

Thank you!

Amy

[Guest guest]

Hi,

My name is Curtis and I am 26 years old.  I have CMT and have had tight

hamstrings my whole life.  It is a symptom of CMT though it can be treated.  The

suggestions that Gretchen gave are very good.  There is a surgery available.  It

is painful and involves lengthening the tendon that connects to the heel by

cutting it.  I and my older brother both had this surgery and it seems to have

helped a great deal.

Curtis

[Guest guest]

Where do you live? I have a 13-year old with spastic quad and might be able to offer some guidance.IrisSent from my iPhoneOn Jun 2, 2011, at 12:38 AM, "kathyfeagin" <forevermine05@...> wrote:

Hello, my name is Kathy. My son is Payton and he will be turning 5 next week. He has spastic quadraplegic cerebral palsy. I was introduced to the Masgutova method by his OT in ECI and after he graduated ECI we raised the money to go to a camp in Minnesota. I have avoided going to an orthopedic doctor all these years because I didn't want to get someone that wanted to perform surgery after surgery or just give him a bunch of medicine. However he is getting older so I felt like I needed to go to orthopedic doctor to atleast get xrays of hips and spine to make sure they look ok...turns out they do look good...he was mostly concerned about the tone in his legs, particularly his hamstrings. He felt like his heel cords were good, but we do the foot tendon guard excercises 2xs a day along with range of motion in ankle,knee, and hip 3xs down and 3xs up twice a day, and we do (I think it's leg cross flexion-extension?)where you bend one leg at the knee

and have the heel of that leg over the knee of the other leg while you are causing a little traction from the hip and from knee and then you pull the leg down to the floor...we do that one 2xs a day..the orthopedic doctor was strongly recommending botox injections which I have been very scared to try and really don't want to! I am writing to see if there is something I could work on to help his tight hamstrings...such as the foot tendon guard excercises for his heel cords. We also do long legged sitting to try to stretch them. Also has anyone heard of or had any experience with SPML? (selective percutaneous muscle/tendon lengthening? From my research it is supposed to be minimally invasive,outpatient type procedure where they just go in through the skin with very small opening to lengthen the tendons so there is no/little scar tissue. Any information yall have will be greatly appreciated. Just a little information about Payton so you can have a picture

of his physical abilities: he can roll and scoot in the floor. He can sit indian style for 1 to 2 minutes and then loses balance. He can sit on child potty seat by himself for up to 10 minutes without falling. He can walk in a gait trainer but he comes up on his tip toes so I limit the amount of time he spends in it, I basically just want to make sure he is getting weight bearing in his legs. He doesn't have contractures. Thank you, Kathy

[Guest guest]

hello kathy,

i am subbu from india, you can try knee immobilisers for knee extension, in immobilisers they can be in extension for prolonged periods so that hamstrings can be elogated, in this context i wanted to tell you even his rectus femoris muscle might also is impaired i think, he might also have patella alta, ask his occupational therapist to correct it, so he can have knee extension, if possible try neuromuscular electrical stimulation for knee extension

Dr. Subbarayalu( Subbu)Theratogs specialist(USA); NDT(USA) pediatricsINDIA

From: kathyfeagin <forevermine05@...>Subject: Tight hamstrings Date: Thursday, 2 June, 2011, 10:08 AM

Hello, my name is Kathy. My son is Payton and he will be turning 5 next week. He has spastic quadraplegic cerebral palsy. I was introduced to the Masgutova method by his OT in ECI and after he graduated ECI we raised the money to go to a camp in Minnesota. I have avoided going to an orthopedic doctor all these years because I didn't want to get someone that wanted to perform surgery after surgery or just give him a bunch of medicine. However he is getting older so I felt like I needed to go to orthopedic doctor to atleast get xrays of hips and spine to make sure they look ok...turns out they do look good...he was mostly concerned about the tone in his legs, particularly his hamstrings. He felt like his heel cords were good, but we do the foot tendon guard excercises 2xs a day along with range of motion in ankle,knee, and hip 3xs down and 3xs up twice a day, and we do (I think it's leg cross flexion-extension?)where you bend one leg at the knee and

have the heel of that leg over the knee of the other leg while you are causing a little traction from the hip and from knee and then you pull the leg down to the floor...we do that one 2xs a day..the orthopedic doctor was strongly recommending botox injections which I have been very scared to try and really don't want to! I am writing to see if there is something I could work on to help his tight hamstrings...such as the foot tendon guard excercises for his heel cords. We also do long legged sitting to try to stretch them. Also has anyone heard of or had any experience with SPML? (selective percutaneous muscle/tendon lengthening? From my research it is supposed to be minimally invasive,outpatient type procedure where they just go in through the skin with very small opening to lengthen the tendons so there is no/little scar tissue. Any information yall have will be greatly appreciated. Just a little information about Payton so you can have a picture of

his physical abilities: he can roll and scoot in the floor. He can sit indian style for 1 to 2 minutes and then loses balance. He can sit on child potty seat by himself for up to 10 minutes without falling. He can walk in a gait trainer but he comes up on his tip toes so I limit the amount of time he spends in it, I basically just want to make sure he is getting weight bearing in his legs. He doesn't have contractures. Thank you, Kathy

[Guest guest]

Thanks for your response..yes they did assign babinsky and core tendon guard. Thanks a lot, KathySent via DROID on Verizon Wireless Re: Tight hamstrings Where do you live?  I have a 13-year old with spastic quad and might be able to offer some guidance.IrisSent from my iPhoneOn Jun 2, 2011, at 12:38 AM, " kathyfeagin " <forevermine05@...> wrote: Hello, my name is Kathy. My son is Payton and he will be turning 5 next week. He has spastic quadraplegic cerebral palsy. I was introduced to the Masgutova method by his OT in ECI and after he graduated ECI we raised the money to go to a camp in Minnesota. I have avoided going to an orthopedic doctor all these years because I didn't want to get someone that wanted to perform surgery after surgery or just give him a bunch of medicine. However he is getting older so I felt like I needed to go to orthopedic doctor to atleast get xrays of hips and spine to make sure they look ok...turns out they do look good...he was mostly concerned about the tone in his legs, particularly his hamstrings. He felt like his heel cords were good, but we do the foot tendon guard excercises 2xs a day along with range of motion in ankle,knee, and hip 3xs down and 3xs up twice a day, and we do (I think it's leg cross flexion-extension?)where you bend one leg at the kneeand have the heel of that leg over the knee of the other leg while you are causing a little traction from the hip and from knee and then you pull the leg down to the floor...we do that one 2xs a day..the orthopedic doctor was strongly recommending botox injections which I have been very scared to try and really don't want to! I am writing to see if there is something I could work on to help his tight hamstrings...such as the foot tendon guard excercises for his heel cords. We also do long legged sitting to try to stretch them. Also has anyone heard of or had any experience with SPML? (selective percutaneous muscle/tendon lengthening? From my research it is supposed to be minimally invasive,outpatient type procedure where they just go in through the skin with very small opening to lengthen the tendons so there is no/little scar tissue. Any information yall have will be greatly appreciated. Just a little information about Payton so you can have a pictureof his physical abilities: he can roll and scoot in the floor. He can sit indian style for 1 to 2 minutes and then loses balance. He can sit on child potty seat by himself for up to 10 minutes without falling. He can walk in a gait trainer but he comes up on his tip toes so I limit the amount of time he spends in it, I basically just want to make sure he is getting weight bearing in his legs. He doesn't have contractures. Thank you, Kathy-- Donna BatemanNeurodevelopmental Specialistwww.parentswithpurpose.comNatural Moms Talk Radio Interview Podcast:  http://is.gd/4WwibMom to 26, Katy Kartchner 24 , Preston 22, Annie 20, Kent 18, Callie 15 (cured from dyslexia), Carson 13, Dawson 11 (brain injured--was severe now mild!)

[Guest guest]

Hi Kathy,Sounds like you are doing a great job with Payton. My son has CP as well (spastic diplegia diagnose, but has systemic spasticity as well). We did traditional therapy with him for one year, where our doctors talked us into Botox one time. We haven't followed their advice since. We embarked on alternative therapy that would address the brain damage and make new neurological connections. We did do SPML with Dr. Nuzzo two years later and were very happy with the results. We did this along with ABM and Feldenkreis. We have now been doing MNRI for almost 2 years and our son is making great strides. I would be happy to talk to you more about out experiences - kolenick@...Hope to hear from you soon, On Jun 1, 2011, at 9:38 PM, "kathyfeagin" <forevermine05@...> wrote:

Hello, my name is Kathy. My son is Payton and he will be turning 5 next week. He has spastic quadraplegic cerebral palsy. I was introduced to the Masgutova method by his OT in ECI and after he graduated ECI we raised the money to go to a camp in Minnesota. I have avoided going to an orthopedic doctor all these years because I didn't want to get someone that wanted to perform surgery after surgery or just give him a bunch of medicine. However he is getting older so I felt like I needed to go to orthopedic doctor to atleast get xrays of hips and spine to make sure they look ok...turns out they do look good...he was mostly concerned about the tone in his legs, particularly his hamstrings. He felt like his heel cords were good, but we do the foot tendon guard excercises 2xs a day along with range of motion in ankle,knee, and hip 3xs down and 3xs up twice a day, and we do (I think it's leg cross flexion-extension?)where you bend one leg at the knee and have the heel of that leg over the knee of the other leg while you are causing a little traction from the hip and from knee and then you pull the leg down to the floor...we do that one 2xs a day..the orthopedic doctor was strongly recommending botox injections which I have been very scared to try and really don't want to! I am writing to see if there is something I could work on to help his tight hamstrings...such as the foot tendon guard excercises for his heel cords. We also do long legged sitting to try to stretch them. Also has anyone heard of or had any experience with SPML? (selective percutaneous muscle/tendon lengthening? From my research it is supposed to be minimally invasive,outpatient type procedure where they just go in through the skin with very small opening to lengthen the tendons so there is no/little scar tissue. Any information yall have will be greatly appreciated. Just a little information about Payton so you can have a picture of his physical abilities: he can roll and scoot in the floor. He can sit indian style for 1 to 2 minutes and then loses balance. He can sit on child potty seat by himself for up to 10 minutes without falling. He can walk in a gait trainer but he comes up on his tip toes so I limit the amount of time he spends in it, I basically just want to make sure he is getting weight bearing in his legs. He doesn't have contractures. Thank you, Kathy