Re: What's worst with CMT?

[Guest guest]

Hi Beata,

I feel your frustration. There are so many things I can't do as easily as I used

to be able to do because of my CMT. I was diagnosed just over a year ago and it

is astonishing how quickly things seem to be getting harder. And how easily I

get so tired. I try to remember to be thankful for the things I can still do and

for the things I was once able to do but that's not always easy. But, my motto

is " this can slow me down but it can't stop me " so I keep going even with all

the frustrations. Keep going as long as you can!

Lynn

 

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[Guest guest]

I feel using negative words in my life only creates depression and more

negativity.

Wanting to do things you " can't ? " You are only limited by your thoughts.

There is nothing I " can't " do that I want to do or have done. I stopped

listening to what others (doctors, family, friends, etc) said I can't do and

started doing what wanted to do. When my attitude accepted this paradigm shift,

I soared.

Examples: a 2 week pack trip through the Tetons from to Briggs. River

rafting several class 3 or 4 trips. Hiking down the Grand Canyon, hiking back a

week later after exploring the canyon. That's a sample of the physical stuff.

Last winter I went skiing for the first time - exhiliarating!

Mentally, I returned to school, received both an MA and PHD in my field, with

honors while being a mother to 4 children.

Spiritually, I developed an interior life which allowed complete acceptance of

CMT, and was enhanced my life coach's inspirational words.

A positive outlook on CMT and focusing on what I can do is extremely important

to my overall health, while being realistic at the same time. I teach my

children there is nothing they can't do, that they are just limited by their

thoughts. We're are all very active, busy, and well adusted, even with AFOs and

surgery.

I like this group for the positive sharing and the research news posts.

BevS

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[Guest guest]

I feel this question is answered as a frame of mind. I have a good friend in a

wheelchair with MS. She is unable to eat, dress, bathe, or feed herself but she

says she happy almost everyday of her life.

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