Guest guest Posted December 8, 2009 Report Share Posted December 8, 2009 Barb, I have not been there but would like to hear about your experience. I am fairly new to Florida so have not been to MDA here. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2009 Report Share Posted December 12, 2009 Jackie, I will definitely post after my visit with Dr. Sherbert(MDA). I'm looking forward to seeing him. My daughter saw her neurologist and we have symptoms of at least 3 different types. I'm needing the blood test done. Had it done in 2004 and came back neg for CMT....basically type 1. Now they test for about 12 other types. Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2009 Report Share Posted December 12, 2009 Barb, I had blood workdone twice and both times negative. EMG shows axonal. Would love to know types so I can follow that specific research. Jackie Quote Link to comment Share on other sites More sharing options...
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