Guest guest Posted September 11, 2007 Report Share Posted September 11, 2007 Hi , I went to the F & F Center for a year. I was on a heavy amount of supplements, antibiotics, antvirals, heparin injections, hormones, etc. When I started heparin treatment it flushed my veins and I got really sick (migraine and throwing up). Then, when various antibiotics were started, I again went through a horrendous bout of illness. I did have periods of feeling better and thought the program was working. I finally gave it up after being on antibiotics for 8 months and developing major candida, which I still can't seem to cure. Their program works for some people. My body was just too sensitive for all the meds. It took my belly about 6 months to heal from the heparin injections. One thing I did like about it was that they were the first place to find out exactly what was going on with my health. They do extensive bloodwork (over 30 vials) and you get tons of information from that. Their premise is that fibro is infection based.....and I had and probably still have lots of infections. Good luck with your treatment. New Here Hi, I'm new here and just wanted to say hello, and to say that I look forward to getting to know all of you and learn from you too. I'm also wondering if any of you have been to the Fibromyalgia and Fatigue Center? If so, I am wondering what your experience was? Are they really as good as they say they are, or is it just another hoax? Thanks so much for your input. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2007 Report Share Posted September 11, 2007 Hi , Thanks so much for your reply. My goodness, I'm sorry to hear about your experience. I'm surprised they kept you on antibiotics for so long; I would think they would have been concerned about the candida too. I'm sorry but I don't know what heparin injections are and what they are for. What did they do for your candida? I know I've had major problems with candida too for some reason.....can't seem to get rid of mine either. If you have all those infections, then is the immune system responsible for them??? Did they test that? I'm really sensitive to meds too, so not sure that would work for me either. Do you mind my asking what you're doing for your health problems now? Did the suppliments help any? Again, my thanks for your reply. I was just wondering about them and if their claims were really true. When I talked to the guy here, they said they had a 91% success rate, which I doubt. If it was that good, I'd think we'd be hearing more about them. > > Hi , > > I went to the F & F Center for a year. I was on a heavy amount of supplements, antibiotics, antvirals, heparin injections, hormones, etc. When I started heparin treatment it flushed my veins and I got really sick (migraine and throwing up). Then, when various antibiotics were started, I again went through a horrendous bout of illness. I did have periods of feeling better and thought the program was working. I finally gave it up after being on antibiotics for 8 months and developing major candida, which I still can't seem to cure. > >> > ----- Original Message ----- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2007 Report Share Posted September 13, 2007 Hi , I'm glad some of that is helping. It sounds like you've really looked into things and that you have a pretty good doc too. Again, I haven't heard of some of the things you mentioned like the Ozone and the Gerson Therapy so looks like I need to do some research. I go to a doc who says he alternative medicine, but he's not really. He's basically a traditional doc that has things like a chiro., naturopath, accupuncturist, etc in his office. He's very nice and good at what he does, but he believes more in various kinds of pills than he does this other type stuff and it's really not helping. Thanks so much for your help, . I look forward to learning more in the future. > > > Some of your current treatments I'm familiar with......other's I am not, > > like ozone thereapy. Is what you're doing now helping? I know you said > > the green juice is, but is the rest of it? WHat kind of things do you > > use in your green drink? > > > > Thanks again. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2007 Report Share Posted October 2, 2007 -hi im phyllis, where can I get more info. on the F & F center. where is it? thanks, -- In fibromyalgiacured , " peachynga " wrote: > > Hi , > > I went to the F & F Center for a year. I was on a heavy amount of supplements, antibiotics, antvirals, heparin injections, hormones, etc. When I started heparin treatment it flushed my veins and I got really sick (migraine and throwing up). Then, when various antibiotics were started, I again went through a horrendous bout of ihworking. I finally gave it up after being on antibiotics for 8 months and developing major candida, which I still can't seem to cure. > > Their program works for some people. My body was just too sensitive for all the meds. It took my belly about 6 months to heal from the heparin injections. One thing I did like about it was that they were the first place to find out exactly what was going on with my health. They do extensive bloodwork (over 30 vials) and you get tons of information from that. Their premise is that fibro is infection based.....and I had and probably still have lots of infections. > > Good luck with your treatment. > > > > New Here > > > > Hi, > > I'm new here and just wanted to say hello, and to say that I look > forward to getting to know all of you and learn from you too. > > I'm also wondering if any of you have been to the Fibromyalgia and > Fatigue Center? If so, I am wondering what your experience was? Are > they really as good as they say they are, or is it just another hoax? > > Thanks so much for your input. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2008 Report Share Posted October 22, 2008 Hi all, I just wanted to introduce myself. I am Hael. My husband is Fish. I am NT, I suppose, and I am guessing that my husband is AS, although there has been no diagnosis, and he would be quite dismayed to know that I think he is. We have been married for just a little over a year. We dated for about 8 months before he proposed, and then we were engaged for a year. Here are the several reasons I believe he is AS: -- his son from his first marriage (my step-son), who is 8, has been identified by his physician as possibly AS, high-functioning, but definitely somewhere on that spectrum. -- Fish and his son are like mirror images of each other when it comes to AS-like behavior. -- Fish is very socially awkward and uncomfortable, and has been on anxiety medications in the past for his social discomfort. Not only is he highly uncomfortable in crowds or with other people, he has very odd conversational ... peculiarities. If caught up in conversation with one or several other people, Fish will typically avoid any interaction, unless the subject pertains directly to him. He comes across as rude or disinterested, usually staring off at some point across the room. Sometimes he will absentmindedly nod or vaguely smile as if to appear he is paying attention, but he is out of the conversation. He never asks anyone about themselves or something they are interested in. If given the opportunity, or if asked, he will talk about his own pet projects or obsessions at length, without any sign of stopping, in great detail, and almost in a professorial / lecturing way, even if the question or the setting is more conducive to a simple or basic explanation, or if the question was asked mainly out of politeness. It has been very embarrassing several times when I can read the body language of the other party, and they are clearly saying, " ok, enough. " I get the sense that people want to make an excuse to get away from Fish when he is on one of his rambles, and it is all i can do to try and interrupt him by asking the other person about themselves, or by saying to him, " Fish, let's let so-and-so get on the road, I'm sure they've got a long drive, " or something like that. I will tell you that I have seen relief come over the faces of more than one person when I've jumped in this way. -- Fish has one or two very serious obsessions; one is growing things, and the other, I would say, is one particular computer role-playing game. The growing things component is one we have managed to turn into a fairly profitable, viable small business. He plays the game of growing things like a strategy game, fascinated and obsessed with all the variables and challenges. It's all he talks about. God forbid you get him started talking about it. The other obsession is his computer game, but because I know many people become addicted to the same game, I don't know how indiciative it is of AS. I should also say that he is obsessed with and fascinated with weather; he got his masters in an obscure area of climatology, and taught climate and physical geography briefly at the university level. If, god forbid, anyone in any setting makes any comment about weather in earshot of him, he will get all " teacher-y " about it. Granted, I have learned a lot about our physical environment from him, but it's beyond just, " Hey, you want to know something interesting? " No, he will give you a full lecture on rayleigh scattering or some other weather-related or atmospheric topic. -- When he was younger, from his middle school years up through college, Fish was obsessed with fishing. He talks about it now, about how all-consuming fishing was for him back then, but he just shrugs, and doesn't find anything all that unusual about it. He nearly didn't graduate from school, because he spent all his time out in a boat fishing. In those years, he also devised and created this very elaborate fishing strategy game, dealing with all kinds of variables, such as fish migrations, weather patterns, and other issues that affect fishing. He was very proud of this game, and showed it to me a year or so ago; he wanted to play it with me, but I realized immediately that what he considered a " game " would be, for me, and for most others, a very tedious, long-lasting exercise in minute attention to detail. I tried to be enthusiastic, saying how much fun it would be to create a computer version of the game, with images of all the different fish, and options to build different types of boats and stuff. He said he preferred to play it with " no flash, " with just the basic strategies. it looked like a tricky game, a long-lasting strategy game that, frankly, seemed like it was over my head. -- Fish has trouble with emotions. He has trouble expressing emotions and he definitely has trouble reading or appreciating or empathizing with emotions in others. He has very little tolerance for other people, and does not cultivate or maintain anything close to " friendships. " He has some business partnerships, and of course, he has me; I know without a doubt I am his one and only friend, confidante, " person. " Friendships are very foreign to him, and when we have associations with other people, I am always nervous that he is going to get perturbed by something about the other people, and write them off. It has been tricky for me, as I am a somewhat social person; I have few friends, but those I have I consider very fine people, and I want to keep them in my life. -- I used to think he was just a picky eater, but I have come to learn that Fish has an incredibly sensitive (oversensitive) palate and oversensitive sense of smell. He can smell things well before anyone else can. He is a perfect barometer for meat that is just shy of going bad. Even if it smells fine to the rest of us, he will throw it away. He has nearly become a vegetarian, because he rarely finds meat that he finds palatable. He is stuck pretty basically on a few meals, and rarely likes to stray at all. -- Fish wears the same few clothes all the time. It helps that we have a business where clothing doesn't matter, and where function is the most important thing. His skin is very sensitive to anything " scratchy, " which happens to be a lot of things. He can't stand to have anything restrictive, and he abhors wearing pants or shirts that require buttoning. He wears T-shirts -- the same few very soft from wear T-shirts he has worn for years and years -- and stretchy shorts most all year long. In the winter, he will throw on stretchy athletic pants over his shorts and he wears large sweat-shirts. That's about it. This all makes him sound pretty bad, but in fact, Fish is a very good man, and he can be a very sweet person. He's incredibly intelligent, for one thing, and I love that. He's very logical. He doesn't show much emotion for his children, but he cares for his children; they are both very important to him. I am pregnant with our first child together (my first ever), and he is very sweet about it, patting my belly and checking in with the baby every now and then. In a way, I think of Fish as a diamond in the rough; he will always be who he is, and to many people, the outside, awkward part of Fish is hard to get past. To me, his love of growing things, his family-focused, inward nature, his intelligence, and even his willingness to please me (sometimes) make him worth it. My greatest struggles are with Fish's lack of emotion and his difficulty with my emotions -- I am pretty rational, but not all the time, and I've definitely noticed some mood swings with this pregnancy. I've also dealt with depression over the years, and currently I take medication for it. It's not severe, but if I go without my medication for awhile, it definitely affects my functioning. Also, I grew up in a very affectionate family, and it can be hard to have to ASK him for a hug or for a show of affection. Fish no longer takes anti-anxiety medication; we think a lot of his anxiety was brought on by his ex-wife, who I really think would have had no awareness that his " quirks " could be related to the same thing her son is dealing with. However, she was one of the first to point out, after the doctor mentioned that her son is possibly AS, that, " Hey, that might be what's wrong with Fish. " Of course, I don't see it as anything " wrong " with him; just different, and I know that my personality meshes better with his, AS or no, than hers did. The other thing that makes this really hard is that Fish hasn't been diagnosed, and he probably won't ever be. He blew it off when it was suggested that his boy has it, and he blows off any suggestion that he could be AS. Anyone else out there who has experienced that with a spouse? Denial about being AS? What did you do? Well, I know this is long. I just wanted to put it out there and introduce myself and my AS spouse. Thanks for reading. Hael Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2008 Report Share Posted October 28, 2008 Hello Jim My husband is a quiet self conscious man, he's always felt awkward and out of place in public, hates talking on the telephone and simply will not socialise. He has always felt he was a waste of a human life and a failure in others eyes, he is convinced people see him as an idiot, his self degradation has hindered his whole life. Since discovering he 'may' be Aspergers he has learnt to accept himself as a lovely human being who just has a different outlook on life and is not abnormal for not sharing the opinions of those around him, he accepts he is allowed to make mistakes and will not be banished to hell for doing so. We have done a lot of research and soul searching together over the last few years and since discovering he most definitely 'is' Asperger's he is beginning to realise he does belong on this earth, he has a right to be on this earth. I will have to hold my hands up here, but i too thought he had narcissistic tendencies, he is always looking at himself in the mirror, works out almost everyday to keep his body the way it is, he spends so much time concentrating on himself there is no time left for anyone else, if you were to see him you too i'm sure would think he was vain and wonder why someone like him would need to spend so much time grooming. He is gorgeous looking, has a body to put 'jean Claude van dam' to shame, has a smile so big and white it could light up a country lane at night, he's 44 but looks at least 20 years younger. He is not vain, he is not narcissistic, nor a show off. He spends so much time grooming cause it is one thing about him he can control, looking good is his mask, how he looks on the outside does not reflect how he feels on the inside. He is showing more confidence just lately, he actually has a spring in his step but i think this is due to the change in me and how i communicate with him which he is responding to in a positive way, for quite a few years prior to finding this group i was nothing short of ignorant to his feelings and how my negativity reflected on him and made him feel. After all that waffle what i can say for sure is he does accept he is Asperger's although he was in denial for a while, i 'worked' on him for months showing him why i and our sons psych thought so, he is learning to feel comfortable in his skin, to accept himself for a man with a brain that works differently to others and that it does not mean he is thick, stupid, an idiot, or a failure. In fact he has actually said the words "so i'm not a failure after all then" now how heart breaking is it to hear a grown man say that? shame on the NT mental health authority for not picking up on his 'label'. The biggest step forward for him was when our son was punching himself in the head saying "i don't want to be Autistic, i want to get it out of my head, you don't know what it feels like" my husband replied "i do know what it feels like, cause i have it too and i have had it longer than you". He still feels awkward about himself but now will ask me for my opinion rather than suffer in silence. It has made a difference by way of we are both more accepting of each others ways of doing things and its not a case of who is right, we understand that we may do the same thing but take a different approach it does not mean either approach is wrong cause the outcome is the same, we understand we are allowed to be different, we no longer argue about silly insignificant things and accept each others differences. Hope i have not babbled on so much you don't get the 'gist' of what am trying to explain. Elaine To: aspires-relationships Sent: Monday, 27 October, 2008 21:28:13Subject: Re: New here Elaine, Can you expand on how your Husband accepting your AS dx, has made a difference in your relationship. Thanks. Jim From: Elaine <alexhoey1961@ yahoo.co. uk>To: aspires-relationshi psyahoogroups (DOT) comSent: Thursday, October 23, 2008 12:30:07 AMSubject: Re: [aspires-relationsh ips] New here Hello Hael My husband is also UN diagnosed AS, our son 13 is diagnosed AS. When we were told our son was on the spectrum i researched as much as i could, it was then that i discovered that my husband, sister in law, father in law was on the spectrum also. My husband was in denial about our son and himself for a couple of years, he disagreed with our sons psychologist and her diagnosis at first, he just refused to acknowledge anything she said, he has always had a need for perfection and being diagnosed with a disorder to him was not perfect. I hired every book the library had on the subject and without ramming it down his throat too much kept reading the odd passage, the list of traits, and comparing our sons characteristics with what was in the books. He did learn to accept the diagnosis but it took quite a while. Once he had accepted this i then would read a passage or something off the various lists and say "that's just like you", or "blimey sounds like they are describing you here", he would always want to know what i meant by that, so this is how he listened and learnt, the result after over a year, was he did accept he could possibly be on the spectrum himself and we both went to see our doctor to start the ball rolling... Unfortunately the doctor was dismissive, cold, be little ling, and made an enemy out of my husband with his ridicule like bedside manner. After being observed for sometime by our sons psychologist and having my/our suspicions confirmed my husband has now accepted he has AS, he seems more accepting of himself and not so quick to put himself down and refere to himself as stupid or an idiot, he has lived a life of negativity, felt he was a failure as a man, and so spent many many years previous in the mental health care system. I can relate all that you have said on the subject of emotions, things got so bad we were hours away from a break up, then i found this group. I 'woke' up simple as that, wont go into details as iv'e said it all before but you will be ok, if you get as much as i do from this group, there's nothing you will feel you can't overcome. Looking forward to hearing more from you. PS Have you read anything by Lawson? her life is so much like my husbands, Take care Elaine [aspires-relationsh ips] New here Hi all,I just wanted to introduce myself. I am Hael. My husband is Fish. Iam NT, I suppose, and I am guessing that my husband is AS, althoughthere has been no diagnosis, and he would be quite dismayed to knowthat I think he is.We have been married for just a little over a year. We dated for about8 months before he proposed, and then we were engaged for a year.Here are the several reasons I believe he is AS:-- his son from his first marriage (my step-son), who is 8, has beenidentified by his physician as possibly AS, high-functioning, butdefinitely somewhere on that spectrum.-- Fish and his son are like mirror images of each other when it comesto AS-like behavior.-- Fish is very socially awkward and uncomfortable, and has been onanxiety medications in the past for his social discomfort. Not onlyis he highly uncomfortable in crowds or with other people, he has veryodd conversational ... peculiarities. If caught up in conversationwith one or several other people, Fish will typically avoid anyinteraction, unless the subject pertains directly to him. He comesacross as rude or disinterested, usually staring off at some pointacross the room. Sometimes he will absentmindedly nod or vaguelysmile as if to appear he is paying attention, but he is out of theconversation. He never asks anyone about themselves or something theyare interested in. If given the opportunity, or if asked, he willtalk about his own pet projects or obsessions at length, without anysign of stopping, in great detail, and almost in a professorial /lecturing way, even if the question or the setting is more conduciveto a simple or basic explanation, or if the question was asked mainlyout of politeness. It has been very embarrassing several times when Ican read the body language of the other party, and they are clearlysaying, "ok, enough." I get the sense that people want to make anexcuse to get away from Fish when he is on one of his rambles, and itis all i can do to try and interrupt him by asking the other personabout themselves, or by saying to him, "Fish, let's let so-and-so geton the road, I'm sure they've got a long drive," or something likethat. I will tell you that I have seen relief come over the faces ofmore than one person when I've jumped in this way.-- Fish has one or two very serious obsessions; one is growing things,and the other, I would say, is one particular computer role-playinggame. The growing things component is one we have managed to turninto a fairly profitable, viable small business. He plays the game ofgrowing things like a strategy game, fascinated and obsessed with allthe variables and challenges. It's all he talks about. God forbidyou get him started talking about it. The other obsession is hiscomputer game, but because I know many people become addicted to thesame game, I don't know how indiciative it is of AS. I should alsosay that he is obsessed with and fascinated with weather; he got hismasters in an obscure area of climatology, and taught climate andphysical geography briefly at the university level. If, god forbid,anyone in any setting makes any comment about weather in earshot ofhim, he will get all "teacher-y" about it. Granted, I have learned alot about our physical environment from him, but it's beyond just,"Hey, you want to know something interesting? " No, he will give you afull lecture on rayleigh scattering or some other weather-related oratmospheric topic.-- When he was younger, from his middle school years up throughcollege, Fish was obsessed with fishing. He talks about it now, abouthow all-consuming fishing was for him back then, but he just shrugs,and doesn't find anything all that unusual about it. He nearly didn'tgraduate from school, because he spent all his time out in a boatfishing. In those years, he also devised and created this veryelaborate fishing strategy game, dealing with all kinds of variables,such as fish migrations, weather patterns, and other issues thataffect fishing. He was very proud of this game, and showed it to me ayear or so ago; he wanted to play it with me, but I realizedimmediately that what he considered a "game" would be, for me, and formost others, a very tedious, long-lasting exercise in minute attentionto detail. I tried to be enthusiastic, saying how much fun it wouldbe to create a computer version of the game, with images of all thedifferent fish, and options to build different types of boats andstuff. He said he preferred to play it with "no flash," with just thebasic strategies. it looked like a tricky game, a long-lastingstrategy game that, frankly, seemed like it was over my head.-- Fish has trouble with emotions. He has trouble expressing emotionsand he definitely has trouble reading or appreciating or empathizingwith emotions in others. He has very little tolerance for otherpeople, and does not cultivate or maintain anything close to"friendships. " He has some business partnerships, and of course, hehas me; I know without a doubt I am his one and only friend,confidante, "person." Friendships are very foreign to him, and whenwe have associations with other people, I am always nervous that he isgoing to get perturbed by something about the other people, and writethem off. It has been tricky for me, as I am a somewhat socialperson; I have few friends, but those I have I consider very finepeople, and I want to keep them in my life.-- I used to think he was just a picky eater, but I have come to learnthat Fish has an incredibly sensitive (oversensitive) palate andoversensitive sense of smell. He can smell things well before anyoneelse can. He is a perfect barometer for meat that is just shy ofgoing bad. Even if it smells fine to the rest of us, he will throw itaway. He has nearly become a vegetarian, because he rarely finds meatthat he finds palatable. He is stuck pretty basically on a few meals,and rarely likes to stray at all.-- Fish wears the same few clothes all the time. It helps that wehave a business where clothing doesn't matter, and where function isthe most important thing. His skin is very sensitive to anything"scratchy," which happens to be a lot of things. He can't stand tohave anything restrictive, and he abhors wearing pants or shirts thatrequire buttoning. He wears T-shirts -- the same few very soft fromwear T-shirts he has worn for years and years -- and stretchy shortsmost all year long. In the winter, he will throw on stretchy athleticpants over his shorts and he wears large sweat-shirts. That's aboutit.This all makes him sound pretty bad, but in fact, Fish is a very goodman, and he can be a very sweet person. He's incredibly intelligent,for one thing, and I love that. He's very logical. He doesn't showmuch emotion for his children, but he cares for his children; they areboth very important to him. I am pregnant with our first childtogether (my first ever), and he is very sweet about it, patting mybelly and checking in with the baby every now and then. In a way, Ithink of Fish as a diamond in the rough; he will always be who he is,and to many people, the outside, awkward part of Fish is hard to getpast. To me, his love of growing things, his family-focused, inwardnature, his intelligence, and even his willingness to please me(sometimes) make him worth it.My greatest struggles are with Fish's lack of emotion and hisdifficulty with my emotions -- I am pretty rational, but not all thetime, and I've definitely noticed some mood swings with thispregnancy. I've also dealt with depression over the years, andcurrently I take medication for it. It's not severe, but if I gowithout my medication for awhile, it definitely affects myfunctioning. Also, I grew up in a very affectionate family, and itcan be hard to have to ASK him for a hug or for a show of affection.Fish no longer takes anti-anxiety medication; we think a lot of hisanxiety was brought on by his ex-wife, who I really think would havehad no awareness that his "quirks" could be related to the same thingher son is dealing with. However, she was one of the first to pointout, after the doctor mentioned that her son is possibly AS, that,"Hey, that might be what's wrong with Fish." Of course, I don't seeit as anything "wrong" with him; just different, and I know that mypersonality meshes better with his, AS or no, than hers did.The other thing that makes this really hard is that Fish hasn't beendiagnosed, and he probably won't ever be. He blew it off when it wassuggested that his boy has it, and he blows off any suggestion that hecould be AS.Anyone else out there who has experienced that with a spouse? Denialabout being AS? What did you do?Well, I know this is long. I just wanted to put it out there andintroduce myself and my AS spouse. Thanks for reading.Hael Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2008 Report Share Posted October 28, 2008 Elaine and everyone, That's interesting because I had been thinking that if she (my wife) accepts that she has AS, it may lead her to try to adapt like your husband is doing. I see the "AS label" as potentially playing a vital role in sparking improvement. In my wife and in my life, the traits of low self-confidence and arguing are only 2 of many impossible traits. For example, she never touches or gives positive feedback. I'm afraid that, at best, improvement, if any, will be contrived and possibly temporary. I'd appreciate your and others feedback. Jim To: aspires-relationships Sent: Tuesday, October 28, 2008 3:08:32 AMSubject: Re: New here Hello Jim My husband is a quiet self conscious man, he's always felt awkward and out of place in public, hates talking on the telephone and simply will not socialise. He has always felt he was a waste of a human life and a failure in others eyes, he is convinced people see him as an idiot, his self degradation has hindered his whole life. Since discovering he 'may' be Aspergers he has learnt to accept himself as a lovely human being who just has a different outlook on life and is not abnormal for not sharing the opinions of those around him, he accepts he is allowed to make mistakes and will not be banished to hell for doing so. We have done a lot of research and soul searching together over the last few years and since discovering he most definitely 'is' Asperger's he is beginning to realise he does belong on this earth, he has a right to be on this earth. I will have to hold my hands up here, but i too thought he had narcissistic tendencies, he is always looking at himself in the mirror, works out almost everyday to keep his body the way it is, he spends so much time concentrating on himself there is no time left for anyone else, if you were to see him you too i'm sure would think he was vain and wonder why someone like him would need to spend so much time grooming. He is gorgeous looking, has a body to put 'jean Claude van dam' to shame, has a smile so big and white it could light up a country lane at night, he's 44 but looks at least 20 years younger. He is not vain, he is not narcissistic, nor a show off. He spends so much time grooming cause it is one thing about him he can control, looking good is his mask, how he looks on the outside does not reflect how he feels on the inside. He is showing more confidence just lately, he actually has a spring in his step but i think this is due to the change in me and how i communicate with him which he is responding to in a positive way, for quite a few years prior to finding this group i was nothing short of ignorant to his feelings and how my negativity reflected on him and made him feel. After all that waffle what i can say for sure is he does accept he is Asperger's although he was in denial for a while, i 'worked' on him for months showing him why i and our sons psych thought so, he is learning to feel comfortable in his skin, to accept himself for a man with a brain that works differently to others and that it does not mean he is thick, stupid, an idiot, or a failure. In fact he has actually said the words "so i'm not a failure after all then" now how heart breaking is it to hear a grown man say that? shame on the NT mental health authority for not picking up on his 'label'. The biggest step forward for him was when our son was punching himself in the head saying "i don't want to be Autistic, i want to get it out of my head, you don't know what it feels like" my husband replied "i do know what it feels like, cause i have it too and i have had it longer than you". He still feels awkward about himself but now will ask me for my opinion rather than suffer in silence. It has made a difference by way of we are both more accepting of each others ways of doing things and its not a case of who is right, we understand that we may do the same thing but take a different approach it does not mean either approach is wrong cause the outcome is the same, we understand we are allowed to be different, we no longer argue about silly insignificant things and accept each others differences. Hope i have not babbled on so much you don't get the 'gist' of what am trying to explain. Elaine From: Jim <jim7000rocketmail (DOT) com>To: aspires-relationshi psyahoogroups (DOT) comSent: Monday, 27 October, 2008 21:28:13Subject: Re: [aspires-relationsh ips] New here Elaine, Can you expand on how your Husband accepting your AS dx, has made a difference in your relationship. Thanks. Jim From: Elaine <alexhoey1961@ yahoo.co. uk>To: aspires-relationshi psyahoogroups (DOT) comSent: Thursday, October 23, 2008 12:30:07 AMSubject: Re: [aspires-relationsh ips] New here Hello Hael My husband is also UN diagnosed AS, our son 13 is diagnosed AS. When we were told our son was on the spectrum i researched as much as i could, it was then that i discovered that my husband, sister in law, father in law was on the spectrum also. My husband was in denial about our son and himself for a couple of years, he disagreed with our sons psychologist and her diagnosis at first, he just refused to acknowledge anything she said, he has always had a need for perfection and being diagnosed with a disorder to him was not perfect. I hired every book the library had on the subject and without ramming it down his throat too much kept reading the odd passage, the list of traits, and comparing our sons characteristics with what was in the books. He did learn to accept the diagnosis but it took quite a while. Once he had accepted this i then would read a passage or something off the various lists and say "that's just like you", or "blimey sounds like they are describing you here", he would always want to know what i meant by that, so this is how he listened and learnt, the result after over a year, was he did accept he could possibly be on the spectrum himself and we both went to see our doctor to start the ball rolling... Unfortunately the doctor was dismissive, cold, be little ling, and made an enemy out of my husband with his ridicule like bedside manner. After being observed for sometime by our sons psychologist and having my/our suspicions confirmed my husband has now accepted he has AS, he seems more accepting of himself and not so quick to put himself down and refere to himself as stupid or an idiot, he has lived a life of negativity, felt he was a failure as a man, and so spent many many years previous in the mental health care system. I can relate all that you have said on the subject of emotions, things got so bad we were hours away from a break up, then i found this group. I 'woke' up simple as that, wont go into details as iv'e said it all before but you will be ok, if you get as much as i do from this group, there's nothing you will feel you can't overcome. Looking forward to hearing more from you. PS Have you read anything by Lawson? her life is so much like my husbands, Take care Elaine [aspires-relationsh ips] New here Hi all,I just wanted to introduce myself. I am Hael. My husband is Fish. Iam NT, I suppose, and I am guessing that my husband is AS, althoughthere has been no diagnosis, and he would be quite dismayed to knowthat I think he is.We have been married for just a little over a year. We dated for about8 months before he proposed, and then we were engaged for a year.Here are the several reasons I believe he is AS:-- his son from his first marriage (my step-son), who is 8, has beenidentified by his physician as possibly AS, high-functioning, butdefinitely somewhere on that spectrum.-- Fish and his son are like mirror images of each other when it comesto AS-like behavior.-- Fish is very socially awkward and uncomfortable, and has been onanxiety medications in the past for his social discomfort. Not onlyis he highly uncomfortable in crowds or with other people, he has veryodd conversational ... peculiarities. If caught up in conversationwith one or several other people, Fish will typically avoid anyinteraction, unless the subject pertains directly to him. He comesacross as rude or disinterested, usually staring off at some pointacross the room. Sometimes he will absentmindedly nod or vaguelysmile as if to appear he is paying attention, but he is out of theconversation. He never asks anyone about themselves or something theyare interested in. If given the opportunity, or if asked, he willtalk about his own pet projects or obsessions at length, without anysign of stopping, in great detail, and almost in a professorial /lecturing way, even if the question or the setting is more conduciveto a simple or basic explanation, or if the question was asked mainlyout of politeness. It has been very embarrassing several times when Ican read the body language of the other party, and they are clearlysaying, "ok, enough." I get the sense that people want to make anexcuse to get away from Fish when he is on one of his rambles, and itis all i can do to try and interrupt him by asking the other personabout themselves, or by saying to him, "Fish, let's let so-and-so geton the road, I'm sure they've got a long drive," or something likethat. I will tell you that I have seen relief come over the faces ofmore than one person when I've jumped in this way.-- Fish has one or two very serious obsessions; one is growing things,and the other, I would say, is one particular computer role-playinggame. The growing things component is one we have managed to turninto a fairly profitable, viable small business. He plays the game ofgrowing things like a strategy game, fascinated and obsessed with allthe variables and challenges. It's all he talks about. God forbidyou get him started talking about it. The other obsession is hiscomputer game, but because I know many people become addicted to thesame game, I don't know how indiciative it is of AS. I should alsosay that he is obsessed with and fascinated with weather; he got hismasters in an obscure area of climatology, and taught climate andphysical geography briefly at the university level. If, god forbid,anyone in any setting makes any comment about weather in earshot ofhim, he will get all "teacher-y" about it. Granted, I have learned alot about our physical environment from him, but it's beyond just,"Hey, you want to know something interesting? " No, he will give you afull lecture on rayleigh scattering or some other weather-related oratmospheric topic.-- When he was younger, from his middle school years up throughcollege, Fish was obsessed with fishing. He talks about it now, abouthow all-consuming fishing was for him back then, but he just shrugs,and doesn't find anything all that unusual about it. He nearly didn'tgraduate from school, because he spent all his time out in a boatfishing. In those years, he also devised and created this veryelaborate fishing strategy game, dealing with all kinds of variables,such as fish migrations, weather patterns, and other issues thataffect fishing. He was very proud of this game, and showed it to me ayear or so ago; he wanted to play it with me, but I realizedimmediately that what he considered a "game" would be, for me, and formost others, a very tedious, long-lasting exercise in minute attentionto detail. I tried to be enthusiastic, saying how much fun it wouldbe to create a computer version of the game, with images of all thedifferent fish, and options to build different types of boats andstuff. He said he preferred to play it with "no flash," with just thebasic strategies. it looked like a tricky game, a long-lastingstrategy game that, frankly, seemed like it was over my head.-- Fish has trouble with emotions. He has trouble expressing emotionsand he definitely has trouble reading or appreciating or empathizingwith emotions in others. He has very little tolerance for otherpeople, and does not cultivate or maintain anything close to"friendships. " He has some business partnerships, and of course, hehas me; I know without a doubt I am his one and only friend,confidante, "person." Friendships are very foreign to him, and whenwe have associations with other people, I am always nervous that he isgoing to get perturbed by something about the other people, and writethem off. It has been tricky for me, as I am a somewhat socialperson; I have few friends, but those I have I consider very finepeople, and I want to keep them in my life.-- I used to think he was just a picky eater, but I have come to learnthat Fish has an incredibly sensitive (oversensitive) palate andoversensitive sense of smell. He can smell things well before anyoneelse can. He is a perfect barometer for meat that is just shy ofgoing bad. Even if it smells fine to the rest of us, he will throw itaway. He has nearly become a vegetarian, because he rarely finds meatthat he finds palatable. He is stuck pretty basically on a few meals,and rarely likes to stray at all.-- Fish wears the same few clothes all the time. It helps that wehave a business where clothing doesn't matter, and where function isthe most important thing. His skin is very sensitive to anything"scratchy," which happens to be a lot of things. He can't stand tohave anything restrictive, and he abhors wearing pants or shirts thatrequire buttoning. He wears T-shirts -- the same few very soft fromwear T-shirts he has worn for years and years -- and stretchy shortsmost all year long. In the winter, he will throw on stretchy athleticpants over his shorts and he wears large sweat-shirts. That's aboutit.This all makes him sound pretty bad, but in fact, Fish is a very goodman, and he can be a very sweet person. He's incredibly intelligent,for one thing, and I love that. He's very logical. He doesn't showmuch emotion for his children, but he cares for his children; they areboth very important to him. I am pregnant with our first childtogether (my first ever), and he is very sweet about it, patting mybelly and checking in with the baby every now and then. In a way, Ithink of Fish as a diamond in the rough; he will always be who he is,and to many people, the outside, awkward part of Fish is hard to getpast. To me, his love of growing things, his family-focused, inwardnature, his intelligence, and even his willingness to please me(sometimes) make him worth it.My greatest struggles are with Fish's lack of emotion and hisdifficulty with my emotions -- I am pretty rational, but not all thetime, and I've definitely noticed some mood swings with thispregnancy. I've also dealt with depression over the years, andcurrently I take medication for it. It's not severe, but if I gowithout my medication for awhile, it definitely affects myfunctioning. Also, I grew up in a very affectionate family, and itcan be hard to have to ASK him for a hug or for a show of affection.Fish no longer takes anti-anxiety medication; we think a lot of hisanxiety was brought on by his ex-wife, who I really think would havehad no awareness that his "quirks" could be related to the same thingher son is dealing with. However, she was one of the first to pointout, after the doctor mentioned that her son is possibly AS, that,"Hey, that might be what's wrong with Fish." Of course, I don't seeit as anything "wrong" with him; just different, and I know that mypersonality meshes better with his, AS or no, than hers did.The other thing that makes this really hard is that Fish hasn't beendiagnosed, and he probably won't ever be. He blew it off when it wassuggested that his boy has it, and he blows off any suggestion that hecould be AS.Anyone else out there who has experienced that with a spouse? Denialabout being AS? What did you do?Well, I know this is long. I just wanted to put it out there andintroduce myself and my AS spouse. Thanks for reading.Hael Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2008 Report Share Posted October 28, 2008 Hi Jim My husband is not very touchy feely either, in fact i can count on both hands the amount of times he has spontaneously hugged/cuddled me in 21 years. It took him 11 and 1/2 years to tell me he loved me and it was when i was about to have major surgery and thought i would not survive, him saying he loved me at that (to me)inappropriate time convinced me that i would not survive, i was sure he had a sixth sense (ha ha) Even in bed he will sleep with his back to me and if i happen to 'snuggle' up to him he will move closer to the edge of the bed. I used to get so upset over this but he has always been like this, it's not something he has suddenly changed, i accept it now, it doesn't bother me anymore, it's just what he prefers. Our son also does not like to be touched, he likes to keep at least a few inches space between himself and who ever is sitting next to him. If i have ever done something good and worth celebrating like pass my driving test he seems to not even acknowledge my achievement, i have to admit this does tick me off cause everyone needs a pat on the back from time to time, however it's not worth challenging him over it cause his explanation always leaves me feeling guilty or small to ever doubt he is happy for me, he does does not show it. If i am out and someone phones to speak to me but leaves a message with him to pass on, i will get the message sometimes weeks later if at all. My husband has always had good and bad periods, he seems 'normal' (whatever that is) for a while but something will trigger a regression and hes lost in his own world again. It's not a comfortable place for him to be, he does not like it and it gets him down, i have to remind myself of that so i don't put undue pressure on him. As time goes by you will realise your wife is who she is, she may not ever change but may improve for a while till another set back crops up, lap up the good times and be supportive in the bad times, it can be hard but she obviously trusts you and that just has to make you feel good, it does me. Knowledge is power, if you can get her to realise this she may become more accepting of the idea of having an AS diagnosis, formal or informal. You both can then learn together how to become closer as a couple and what works for you. Take care ElainePS are you in the UK? i ask because i know a little about the diagnosis process for an adult. To: aspires-relationships Sent: Tuesday, 28 October, 2008 16:49:07Subject: Re: New here Elaine and everyone, That's interesting because I had been thinking that if she (my wife) accepts that she has AS, it may lead her to try to adapt like your husband is doing. I see the "AS label" as potentially playing a vital role in sparking improvement. In my wife and in my life, the traits of low self-confidence and arguing are only 2 of many impossible traits. For example, she never touches or gives positive feedback. I'm afraid that, at best, improvement, if any, will be contrived and possibly temporary. I'd appreciate your and others feedback. Jim From: Elaine <alexhoey1961@ yahoo.co. uk>To: aspires-relationshi psyahoogroups (DOT) comSent: Tuesday, October 28, 2008 3:08:32 AMSubject: Re: [aspires-relationsh ips] New here Hello Jim My husband is a quiet self conscious man, he's always felt awkward and out of place in public, hates talking on the telephone and simply will not socialise. He has always felt he was a waste of a human life and a failure in others eyes, he is convinced people see him as an idiot, his self degradation has hindered his whole life. Since discovering he 'may' be Aspergers he has learnt to accept himself as a lovely human being who just has a different outlook on life and is not abnormal for not sharing the opinions of those around him, he accepts he is allowed to make mistakes and will not be banished to hell for doing so. We have done a lot of research and soul searching together over the last few years and since discovering he most definitely 'is' Asperger's he is beginning to realise he does belong on this earth, he has a right to be on this earth. I will have to hold my hands up here, but i too thought he had narcissistic tendencies, he is always looking at himself in the mirror, works out almost everyday to keep his body the way it is, he spends so much time concentrating on himself there is no time left for anyone else, if you were to see him you too i'm sure would think he was vain and wonder why someone like him would need to spend so much time grooming. He is gorgeous looking, has a body to put 'jean Claude van dam' to shame, has a smile so big and white it could light up a country lane at night, he's 44 but looks at least 20 years younger. He is not vain, he is not narcissistic, nor a show off. He spends so much time grooming cause it is one thing about him he can control, looking good is his mask, how he looks on the outside does not reflect how he feels on the inside. He is showing more confidence just lately, he actually has a spring in his step but i think this is due to the change in me and how i communicate with him which he is responding to in a positive way, for quite a few years prior to finding this group i was nothing short of ignorant to his feelings and how my negativity reflected on him and made him feel. After all that waffle what i can say for sure is he does accept he is Asperger's although he was in denial for a while, i 'worked' on him for months showing him why i and our sons psych thought so, he is learning to feel comfortable in his skin, to accept himself for a man with a brain that works differently to others and that it does not mean he is thick, stupid, an idiot, or a failure. In fact he has actually said the words "so i'm not a failure after all then" now how heart breaking is it to hear a grown man say that? shame on the NT mental health authority for not picking up on his 'label'. The biggest step forward for him was when our son was punching himself in the head saying "i don't want to be Autistic, i want to get it out of my head, you don't know what it feels like" my husband replied "i do know what it feels like, cause i have it too and i have had it longer than you". He still feels awkward about himself but now will ask me for my opinion rather than suffer in silence. It has made a difference by way of we are both more accepting of each others ways of doing things and its not a case of who is right, we understand that we may do the same thing but take a different approach it does not mean either approach is wrong cause the outcome is the same, we understand we are allowed to be different, we no longer argue about silly insignificant things and accept each others differences. Hope i have not babbled on so much you don't get the 'gist' of what am trying to explain. Elaine From: Jim <jim7000rocketmail (DOT) com>To: aspires-relationshi psyahoogroups (DOT) comSent: Monday, 27 October, 2008 21:28:13Subject: Re: [aspires-relationsh ips] New here Elaine, Can you expand on how your Husband accepting your AS dx, has made a difference in your relationship. Thanks. Jim From: Elaine <alexhoey1961@ yahoo.co. uk>To: aspires-relationshi psyahoogroups (DOT) comSent: Thursday, October 23, 2008 12:30:07 AMSubject: Re: [aspires-relationsh ips] New here Hello Hael My husband is also UN diagnosed AS, our son 13 is diagnosed AS. When we were told our son was on the spectrum i researched as much as i could, it was then that i discovered that my husband, sister in law, father in law was on the spectrum also. My husband was in denial about our son and himself for a couple of years, he disagreed with our sons psychologist and her diagnosis at first, he just refused to acknowledge anything she said, he has always had a need for perfection and being diagnosed with a disorder to him was not perfect. I hired every book the library had on the subject and without ramming it down his throat too much kept reading the odd passage, the list of traits, and comparing our sons characteristics with what was in the books. He did learn to accept the diagnosis but it took quite a while. Once he had accepted this i then would read a passage or something off the various lists and say "that's just like you", or "blimey sounds like they are describing you here", he would always want to know what i meant by that, so this is how he listened and learnt, the result after over a year, was he did accept he could possibly be on the spectrum himself and we both went to see our doctor to start the ball rolling.... Unfortunately the doctor was dismissive, cold, be little ling, and made an enemy out of my husband with his ridicule like bedside manner. After being observed for sometime by our sons psychologist and having my/our suspicions confirmed my husband has now accepted he has AS, he seems more accepting of himself and not so quick to put himself down and refere to himself as stupid or an idiot, he has lived a life of negativity, felt he was a failure as a man, and so spent many many years previous in the mental health care system. I can relate all that you have said on the subject of emotions, things got so bad we were hours away from a break up, then i found this group. I 'woke' up simple as that, wont go into details as iv'e said it all before but you will be ok, if you get as much as i do from this group, there's nothing you will feel you can't overcome. Looking forward to hearing more from you. PS Have you read anything by Lawson? her life is so much like my husbands, Take care Elaine [aspires-relationsh ips] New here Hi all,I just wanted to introduce myself. I am Hael. My husband is Fish. Iam NT, I suppose, and I am guessing that my husband is AS, althoughthere has been no diagnosis, and he would be quite dismayed to knowthat I think he is.We have been married for just a little over a year. We dated for about8 months before he proposed, and then we were engaged for a year.Here are the several reasons I believe he is AS:-- his son from his first marriage (my step-son), who is 8, has beenidentified by his physician as possibly AS, high-functioning, butdefinitely somewhere on that spectrum.-- Fish and his son are like mirror images of each other when it comesto AS-like behavior.-- Fish is very socially awkward and uncomfortable, and has been onanxiety medications in the past for his social discomfort. Not onlyis he highly uncomfortable in crowds or with other people, he has veryodd conversational ... peculiarities. If caught up in conversationwith one or several other people, Fish will typically avoid anyinteraction, unless the subject pertains directly to him. He comesacross as rude or disinterested, usually staring off at some pointacross the room. Sometimes he will absentmindedly nod or vaguelysmile as if to appear he is paying attention, but he is out of theconversation. He never asks anyone about themselves or something theyare interested in. If given the opportunity, or if asked, he willtalk about his own pet projects or obsessions at length, without anysign of stopping, in great detail, and almost in a professorial /lecturing way, even if the question or the setting is more conduciveto a simple or basic explanation, or if the question was asked mainlyout of politeness. It has been very embarrassing several times when Ican read the body language of the other party, and they are clearlysaying, "ok, enough." I get the sense that people want to make anexcuse to get away from Fish when he is on one of his rambles, and itis all i can do to try and interrupt him by asking the other personabout themselves, or by saying to him, "Fish, let's let so-and-so geton the road, I'm sure they've got a long drive," or something likethat. I will tell you that I have seen relief come over the faces ofmore than one person when I've jumped in this way.-- Fish has one or two very serious obsessions; one is growing things,and the other, I would say, is one particular computer role-playinggame. The growing things component is one we have managed to turninto a fairly profitable, viable small business. He plays the game ofgrowing things like a strategy game, fascinated and obsessed with allthe variables and challenges. It's all he talks about. God forbidyou get him started talking about it. The other obsession is hiscomputer game, but because I know many people become addicted to thesame game, I don't know how indiciative it is of AS. I should alsosay that he is obsessed with and fascinated with weather; he got hismasters in an obscure area of climatology, and taught climate andphysical geography briefly at the university level. If, god forbid,anyone in any setting makes any comment about weather in earshot ofhim, he will get all "teacher-y" about it. Granted, I have learned alot about our physical environment from him, but it's beyond just,"Hey, you want to know something interesting? " No, he will give you afull lecture on rayleigh scattering or some other weather-related oratmospheric topic.-- When he was younger, from his middle school years up throughcollege, Fish was obsessed with fishing. He talks about it now, abouthow all-consuming fishing was for him back then, but he just shrugs,and doesn't find anything all that unusual about it. He nearly didn'tgraduate from school, because he spent all his time out in a boatfishing. In those years, he also devised and created this veryelaborate fishing strategy game, dealing with all kinds of variables,such as fish migrations, weather patterns, and other issues thataffect fishing. He was very proud of this game, and showed it to me ayear or so ago; he wanted to play it with me, but I realizedimmediately that what he considered a "game" would be, for me, and formost others, a very tedious, long-lasting exercise in minute attentionto detail. I tried to be enthusiastic, saying how much fun it wouldbe to create a computer version of the game, with images of all thedifferent fish, and options to build different types of boats andstuff. He said he preferred to play it with "no flash," with just thebasic strategies. it looked like a tricky game, a long-lastingstrategy game that, frankly, seemed like it was over my head.-- Fish has trouble with emotions. He has trouble expressing emotionsand he definitely has trouble reading or appreciating or empathizingwith emotions in others. He has very little tolerance for otherpeople, and does not cultivate or maintain anything close to"friendships. " He has some business partnerships, and of course, hehas me; I know without a doubt I am his one and only friend,confidante, "person." Friendships are very foreign to him, and whenwe have associations with other people, I am always nervous that he isgoing to get perturbed by something about the other people, and writethem off. It has been tricky for me, as I am a somewhat socialperson; I have few friends, but those I have I consider very finepeople, and I want to keep them in my life.-- I used to think he was just a picky eater, but I have come to learnthat Fish has an incredibly sensitive (oversensitive) palate andoversensitive sense of smell. He can smell things well before anyoneelse can. He is a perfect barometer for meat that is just shy ofgoing bad. Even if it smells fine to the rest of us, he will throw itaway. He has nearly become a vegetarian, because he rarely finds meatthat he finds palatable. He is stuck pretty basically on a few meals,and rarely likes to stray at all.-- Fish wears the same few clothes all the time. It helps that wehave a business where clothing doesn't matter, and where function isthe most important thing. His skin is very sensitive to anything"scratchy," which happens to be a lot of things. He can't stand tohave anything restrictive, and he abhors wearing pants or shirts thatrequire buttoning. He wears T-shirts -- the same few very soft fromwear T-shirts he has worn for years and years -- and stretchy shortsmost all year long. In the winter, he will throw on stretchy athleticpants over his shorts and he wears large sweat-shirts. That's aboutit.This all makes him sound pretty bad, but in fact, Fish is a very goodman, and he can be a very sweet person. He's incredibly intelligent,for one thing, and I love that. He's very logical. He doesn't showmuch emotion for his children, but he cares for his children; they areboth very important to him. I am pregnant with our first childtogether (my first ever), and he is very sweet about it, patting mybelly and checking in with the baby every now and then. In a way, Ithink of Fish as a diamond in the rough; he will always be who he is,and to many people, the outside, awkward part of Fish is hard to getpast. To me, his love of growing things, his family-focused, inwardnature, his intelligence, and even his willingness to please me(sometimes) make him worth it.My greatest struggles are with Fish's lack of emotion and hisdifficulty with my emotions -- I am pretty rational, but not all thetime, and I've definitely noticed some mood swings with thispregnancy. I've also dealt with depression over the years, andcurrently I take medication for it. It's not severe, but if I gowithout my medication for awhile, it definitely affects myfunctioning. Also, I grew up in a very affectionate family, and itcan be hard to have to ASK him for a hug or for a show of affection.Fish no longer takes anti-anxiety medication; we think a lot of hisanxiety was brought on by his ex-wife, who I really think would havehad no awareness that his "quirks" could be related to the same thingher son is dealing with. However, she was one of the first to pointout, after the doctor mentioned that her son is possibly AS, that,"Hey, that might be what's wrong with Fish." Of course, I don't seeit as anything "wrong" with him; just different, and I know that mypersonality meshes better with his, AS or no, than hers did.The other thing that makes this really hard is that Fish hasn't beendiagnosed, and he probably won't ever be. He blew it off when it wassuggested that his boy has it, and he blows off any suggestion that hecould be AS.Anyone else out there who has experienced that with a spouse? Denialabout being AS? What did you do?Well, I know this is long. I just wanted to put it out there andintroduce myself and my AS spouse. Thanks for reading.Hael Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2008 Report Share Posted October 28, 2008 Elaine and Everyone, I appreciate your feedback. It sounds like our spouses have very similar traits. You seem to take it all in stride. I haven't been able to accept it. Far from it. And, even after knowing about AS, I still feel the severe emotional deprivation of it all. Since identifying AS, if I'm near her, I get extremely agitated knowing she'll never touch me. That's on top of the absence of positive feedback and all the other traits. I can't endure it as Bill pointed out earlier is necessary. That's why it's important for me to understand the degree of "adapting" to my needs that can reasonably be expected. It doesn't sound promising according to everything I've read and all the feedback I've gotten. Jim To: aspires-relationships Sent: Tuesday, October 28, 2008 12:48:12 PMSubject: Re: New here Hi Jim My husband is not very touchy feely either, in fact i can count on both hands the amount of times he has spontaneously hugged/cuddled me in 21 years. It took him 11 and 1/2 years to tell me he loved me and it was when i was about to have major surgery and thought i would not survive, him saying he loved me at that (to me)inappropriate time convinced me that i would not survive, i was sure he had a sixth sense (ha ha) Even in bed he will sleep with his back to me and if i happen to 'snuggle' up to him he will move closer to the edge of the bed. I used to get so upset over this but he has always been like this, it's not something he has suddenly changed, i accept it now, it doesn't bother me anymore, it's just what he prefers. Our son also does not like to be touched, he likes to keep at least a few inches space between himself and who ever is sitting next to him. If i have ever done something good and worth celebrating like pass my driving test he seems to not even acknowledge my achievement, i have to admit this does tick me off cause everyone needs a pat on the back from time to time, however it's not worth challenging him over it cause his explanation always leaves me feeling guilty or small to ever doubt he is happy for me, he does does not show it. If i am out and someone phones to speak to me but leaves a message with him to pass on, i will get the message sometimes weeks later if at all. My husband has always had good and bad periods, he seems 'normal' (whatever that is) for a while but something will trigger a regression and hes lost in his own world again. It's not a comfortable place for him to be, he does not like it and it gets him down, i have to remind myself of that so i don't put undue pressure on him. As time goes by you will realise your wife is who she is, she may not ever change but may improve for a while till another set back crops up, lap up the good times and be supportive in the bad times, it can be hard but she obviously trusts you and that just has to make you feel good, it does me. Knowledge is power, if you can get her to realise this she may become more accepting of the idea of having an AS diagnosis, formal or informal. You both can then learn together how to become closer as a couple and what works for you. Take care ElainePS are you in the UK? i ask because i know a little about the diagnosis process for an adult. From: Jim <jim7000rocketmail (DOT) com>To: aspires-relationshi psyahoogroups (DOT) comSent: Tuesday, 28 October, 2008 16:49:07Subject: Re: [aspires-relationsh ips] New here Elaine and everyone, That's interesting because I had been thinking that if she (my wife) accepts that she has AS, it may lead her to try to adapt like your husband is doing. I see the "AS label" as potentially playing a vital role in sparking improvement. In my wife and in my life, the traits of low self-confidence and arguing are only 2 of many impossible traits. For example, she never touches or gives positive feedback. I'm afraid that, at best, improvement, if any, will be contrived and possibly temporary. I'd appreciate your and others feedback. Jim From: Elaine <alexhoey1961@ yahoo.co. uk>To: aspires-relationshi psyahoogroups (DOT) comSent: Tuesday, October 28, 2008 3:08:32 AMSubject: Re: [aspires-relationsh ips] New here Hello Jim My husband is a quiet self conscious man, he's always felt awkward and out of place in public, hates talking on the telephone and simply will not socialise. He has always felt he was a waste of a human life and a failure in others eyes, he is convinced people see him as an idiot, his self degradation has hindered his whole life. Since discovering he 'may' be Aspergers he has learnt to accept himself as a lovely human being who just has a different outlook on life and is not abnormal for not sharing the opinions of those around him, he accepts he is allowed to make mistakes and will not be banished to hell for doing so. We have done a lot of research and soul searching together over the last few years and since discovering he most definitely 'is' Asperger's he is beginning to realise he does belong on this earth, he has a right to be on this earth. I will have to hold my hands up here, but i too thought he had narcissistic tendencies, he is always looking at himself in the mirror, works out almost everyday to keep his body the way it is, he spends so much time concentrating on himself there is no time left for anyone else, if you were to see him you too i'm sure would think he was vain and wonder why someone like him would need to spend so much time grooming. He is gorgeous looking, has a body to put 'jean Claude van dam' to shame, has a smile so big and white it could light up a country lane at night, he's 44 but looks at least 20 years younger. He is not vain, he is not narcissistic, nor a show off. He spends so much time grooming cause it is one thing about him he can control, looking good is his mask, how he looks on the outside does not reflect how he feels on the inside. He is showing more confidence just lately, he actually has a spring in his step but i think this is due to the change in me and how i communicate with him which he is responding to in a positive way, for quite a few years prior to finding this group i was nothing short of ignorant to his feelings and how my negativity reflected on him and made him feel. After all that waffle what i can say for sure is he does accept he is Asperger's although he was in denial for a while, i 'worked' on him for months showing him why i and our sons psych thought so, he is learning to feel comfortable in his skin, to accept himself for a man with a brain that works differently to others and that it does not mean he is thick, stupid, an idiot, or a failure. In fact he has actually said the words "so i'm not a failure after all then" now how heart breaking is it to hear a grown man say that? shame on the NT mental health authority for not picking up on his 'label'. The biggest step forward for him was when our son was punching himself in the head saying "i don't want to be Autistic, i want to get it out of my head, you don't know what it feels like" my husband replied "i do know what it feels like, cause i have it too and i have had it longer than you". He still feels awkward about himself but now will ask me for my opinion rather than suffer in silence. It has made a difference by way of we are both more accepting of each others ways of doing things and its not a case of who is right, we understand that we may do the same thing but take a different approach it does not mean either approach is wrong cause the outcome is the same, we understand we are allowed to be different, we no longer argue about silly insignificant things and accept each others differences. Hope i have not babbled on so much you don't get the 'gist' of what am trying to explain. Elaine From: Jim <jim7000rocketmail (DOT) com>To: aspires-relationshi psyahoogroups (DOT) comSent: Monday, 27 October, 2008 21:28:13Subject: Re: [aspires-relationsh ips] New here Elaine, Can you expand on how your Husband accepting your AS dx, has made a difference in your relationship. Thanks. Jim From: Elaine <alexhoey1961@ yahoo.co. uk>To: aspires-relationshi psyahoogroups (DOT) comSent: Thursday, October 23, 2008 12:30:07 AMSubject: Re: [aspires-relationsh ips] New here Hello Hael My husband is also UN diagnosed AS, our son 13 is diagnosed AS. When we were told our son was on the spectrum i researched as much as i could, it was then that i discovered that my husband, sister in law, father in law was on the spectrum also. My husband was in denial about our son and himself for a couple of years, he disagreed with our sons psychologist and her diagnosis at first, he just refused to acknowledge anything she said, he has always had a need for perfection and being diagnosed with a disorder to him was not perfect. I hired every book the library had on the subject and without ramming it down his throat too much kept reading the odd passage, the list of traits, and comparing our sons characteristics with what was in the books. He did learn to accept the diagnosis but it took quite a while. Once he had accepted this i then would read a passage or something off the various lists and say "that's just like you", or "blimey sounds like they are describing you here", he would always want to know what i meant by that, so this is how he listened and learnt, the result after over a year, was he did accept he could possibly be on the spectrum himself and we both went to see our doctor to start the ball rolling.... Unfortunately the doctor was dismissive, cold, be little ling, and made an enemy out of my husband with his ridicule like bedside manner. After being observed for sometime by our sons psychologist and having my/our suspicions confirmed my husband has now accepted he has AS, he seems more accepting of himself and not so quick to put himself down and refere to himself as stupid or an idiot, he has lived a life of negativity, felt he was a failure as a man, and so spent many many years previous in the mental health care system. I can relate all that you have said on the subject of emotions, things got so bad we were hours away from a break up, then i found this group. I 'woke' up simple as that, wont go into details as iv'e said it all before but you will be ok, if you get as much as i do from this group, there's nothing you will feel you can't overcome. Looking forward to hearing more from you. PS Have you read anything by Lawson? her life is so much like my husbands, Take care Elaine [aspires-relationsh ips] New here Hi all,I just wanted to introduce myself. I am Hael. My husband is Fish. Iam NT, I suppose, and I am guessing that my husband is AS, althoughthere has been no diagnosis, and he would be quite dismayed to knowthat I think he is.We have been married for just a little over a year. We dated for about8 months before he proposed, and then we were engaged for a year.Here are the several reasons I believe he is AS:-- his son from his first marriage (my step-son), who is 8, has beenidentified by his physician as possibly AS, high-functioning, butdefinitely somewhere on that spectrum.-- Fish and his son are like mirror images of each other when it comesto AS-like behavior.-- Fish is very socially awkward and uncomfortable, and has been onanxiety medications in the past for his social discomfort. Not onlyis he highly uncomfortable in crowds or with other people, he has veryodd conversational ... peculiarities. If caught up in conversationwith one or several other people, Fish will typically avoid anyinteraction, unless the subject pertains directly to him. He comesacross as rude or disinterested, usually staring off at some pointacross the room. Sometimes he will absentmindedly nod or vaguelysmile as if to appear he is paying attention, but he is out of theconversation. He never asks anyone about themselves or something theyare interested in. If given the opportunity, or if asked, he willtalk about his own pet projects or obsessions at length, without anysign of stopping, in great detail, and almost in a professorial /lecturing way, even if the question or the setting is more conduciveto a simple or basic explanation, or if the question was asked mainlyout of politeness. It has been very embarrassing several times when Ican read the body language of the other party, and they are clearlysaying, "ok, enough." I get the sense that people want to make anexcuse to get away from Fish when he is on one of his rambles, and itis all i can do to try and interrupt him by asking the other personabout themselves, or by saying to him, "Fish, let's let so-and-so geton the road, I'm sure they've got a long drive," or something likethat. I will tell you that I have seen relief come over the faces ofmore than one person when I've jumped in this way.-- Fish has one or two very serious obsessions; one is growing things,and the other, I would say, is one particular computer role-playinggame. The growing things component is one we have managed to turninto a fairly profitable, viable small business. He plays the game ofgrowing things like a strategy game, fascinated and obsessed with allthe variables and challenges. It's all he talks about. God forbidyou get him started talking about it. The other obsession is hiscomputer game, but because I know many people become addicted to thesame game, I don't know how indiciative it is of AS. I should alsosay that he is obsessed with and fascinated with weather; he got hismasters in an obscure area of climatology, and taught climate andphysical geography briefly at the university level. If, god forbid,anyone in any setting makes any comment about weather in earshot ofhim, he will get all "teacher-y" about it. Granted, I have learned alot about our physical environment from him, but it's beyond just,"Hey, you want to know something interesting? " No, he will give you afull lecture on rayleigh scattering or some other weather-related oratmospheric topic.-- When he was younger, from his middle school years up throughcollege, Fish was obsessed with fishing. He talks about it now, abouthow all-consuming fishing was for him back then, but he just shrugs,and doesn't find anything all that unusual about it. He nearly didn'tgraduate from school, because he spent all his time out in a boatfishing. In those years, he also devised and created this veryelaborate fishing strategy game, dealing with all kinds of variables,such as fish migrations, weather patterns, and other issues thataffect fishing. He was very proud of this game, and showed it to me ayear or so ago; he wanted to play it with me, but I realizedimmediately that what he considered a "game" would be, for me, and formost others, a very tedious, long-lasting exercise in minute attentionto detail. I tried to be enthusiastic, saying how much fun it wouldbe to create a computer version of the game, with images of all thedifferent fish, and options to build different types of boats andstuff. He said he preferred to play it with "no flash," with just thebasic strategies. it looked like a tricky game, a long-lastingstrategy game that, frankly, seemed like it was over my head.-- Fish has trouble with emotions. He has trouble expressing emotionsand he definitely has trouble reading or appreciating or empathizingwith emotions in others. He has very little tolerance for otherpeople, and does not cultivate or maintain anything close to"friendships. " He has some business partnerships, and of course, hehas me; I know without a doubt I am his one and only friend,confidante, "person." Friendships are very foreign to him, and whenwe have associations with other people, I am always nervous that he isgoing to get perturbed by something about the other people, and writethem off. It has been tricky for me, as I am a somewhat socialperson; I have few friends, but those I have I consider very finepeople, and I want to keep them in my life.-- I used to think he was just a picky eater, but I have come to learnthat Fish has an incredibly sensitive (oversensitive) palate andoversensitive sense of smell. He can smell things well before anyoneelse can. He is a perfect barometer for meat that is just shy ofgoing bad. Even if it smells fine to the rest of us, he will throw itaway. He has nearly become a vegetarian, because he rarely finds meatthat he finds palatable. He is stuck pretty basically on a few meals,and rarely likes to stray at all.-- Fish wears the same few clothes all the time. It helps that wehave a business where clothing doesn't matter, and where function isthe most important thing. His skin is very sensitive to anything"scratchy," which happens to be a lot of things. He can't stand tohave anything restrictive, and he abhors wearing pants or shirts thatrequire buttoning. He wears T-shirts -- the same few very soft fromwear T-shirts he has worn for years and years -- and stretchy shortsmost all year long. In the winter, he will throw on stretchy athleticpants over his shorts and he wears large sweat-shirts. That's aboutit.This all makes him sound pretty bad, but in fact, Fish is a very goodman, and he can be a very sweet person. He's incredibly intelligent,for one thing, and I love that. He's very logical. He doesn't showmuch emotion for his children, but he cares for his children; they areboth very important to him. I am pregnant with our first childtogether (my first ever), and he is very sweet about it, patting mybelly and checking in with the baby every now and then. In a way, Ithink of Fish as a diamond in the rough; he will always be who he is,and to many people, the outside, awkward part of Fish is hard to getpast. To me, his love of growing things, his family-focused, inwardnature, his intelligence, and even his willingness to please me(sometimes) make him worth it.My greatest struggles are with Fish's lack of emotion and hisdifficulty with my emotions -- I am pretty rational, but not all thetime, and I've definitely noticed some mood swings with thispregnancy. I've also dealt with depression over the years, andcurrently I take medication for it. It's not severe, but if I gowithout my medication for awhile, it definitely affects myfunctioning. Also, I grew up in a very affectionate family, and itcan be hard to have to ASK him for a hug or for a show of affection.Fish no longer takes anti-anxiety medication; we think a lot of hisanxiety was brought on by his ex-wife, who I really think would havehad no awareness that his "quirks" could be related to the same thingher son is dealing with. However, she was one of the first to pointout, after the doctor mentioned that her son is possibly AS, that,"Hey, that might be what's wrong with Fish." Of course, I don't seeit as anything "wrong" with him; just different, and I know that mypersonality meshes better with his, AS or no, than hers did.The other thing that makes this really hard is that Fish hasn't beendiagnosed, and he probably won't ever be. He blew it off when it wassuggested that his boy has it, and he blows off any suggestion that hecould be AS.Anyone else out there who has experienced that with a spouse? Denialabout being AS? What did you do?Well, I know this is long. I just wanted to put it out there andintroduce myself and my AS spouse. Thanks for reading.Hael Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2008 Report Share Posted October 28, 2008 e here. It's funny because I am the one who does not like to be touched in our relationship. I especially do not like to be touched when I am trying to go to sleep. It makes me feel claustrophobic for someone to "snuggle" me at night. This is not new to my marriage. I have always been this way. Usarian, who is AS, loves being touched and touching. He is very affectionate physically affectionate with our boys too. It is easier for me to snuggle with the boys but I think that is just a "mommy" thing. I thought it was funny that me the "NT" in our relationship does the exact thing your AS husband does. If my hubby touches me when I am asleep it will wake me up instantly and I'll move further to the edge of the bed. If it was up to me we would do the fifties TV thing with two single beds in the same room (just joking honey if your reading this) LOL Krisitine From: Elaine Sent: Tuesday, October 28, 2008 2:48 PM To: aspires-relationships Subject: Re: New here Hi Jim My husband is not very touchy feely either, in fact i can count on both hands the amount of times he has spontaneously hugged/cuddled me in 21 years. It took him 11 and 1/2 years to tell me he loved me and it was when i was about to have major surgery and thought i would not survive, him saying he loved me at that (to me)inappropriate time convinced me that i would not survive, i was sure he had a sixth sense (ha ha) Even in bed he will sleep with his back to me and if i happen to 'snuggle' up to him he will move closer to the edge of the bed. I used to get so upset over this but he has always been like this, it's not something he has suddenly changed, i accept it now, it doesn't bother me anymore, it's just what he prefers. Our son also does not like to be touched, he likes to keep at least a few inches space between himself and who ever is sitting next to him. If i have ever done something good and worth celebrating like pass my driving test he seems to not even acknowledge my achievement, i have to admit this does tick me off cause everyone needs a pat on the back from time to time, however it's not worth challenging him over it cause his explanation always leaves me feeling guilty or small to ever doubt he is happy for me, he does does not show it. If i am out and someone phones to speak to me but leaves a message with him to pass on, i will get the message sometimes weeks later if at all. My husband has always had good and bad periods, he seems 'normal' (whatever that is) for a while but something will trigger a regression and hes lost in his own world again. It's not a comfortable place for him to be, he does not like it and it gets him down, i have to remind myself of that so i don't put undue pressure on him. As time goes by you will realise your wife is who she is, she may not ever change but may improve for a while till another set back crops up, lap up the good times and be supportive in the bad times, it can be hard but she obviously trusts you and that just has to make you feel good, it does me. Knowledge is power, if you can get her to realise this she may become more accepting of the idea of having an AS diagnosis, formal or informal. You both can then learn together how to become closer as a couple and what works for you. Take care ElainePS are you in the UK? i ask because i know a little about the diagnosis process for an adult. From: Jim <jim7000rocketmail>To: aspires-relationships Sent: Tuesday, 28 October, 2008 16:49:07Subject: Re: New here Elaine and everyone, That's interesting because I had been thinking that if she (my wife) accepts that she has AS, it may lead her to try to adapt like your husband is doing. I see the "AS label" as potentially playing a vital role in sparking improvement. In my wife and in my life, the traits of low self-confidence and arguing are only 2 of many impossible traits. For example, she never touches or gives positive feedback. I'm afraid that, at best, improvement, if any, will be contrived and possibly temporary. I'd appreciate your and others feedback. Jim From: Elaine <alexhoey1961@ yahoo.co. uk>To: aspires-relationshi psyahoogroups (DOT) comSent: Tuesday, October 28, 2008 3:08:32 AMSubject: Re: [aspires-relationsh ips] New here Hello Jim My husband is a quiet self conscious man, he's always felt awkward and out of place in public, hates talking on the telephone and simply will not socialise. He has always felt he was a waste of a human life and a failure in others eyes, he is convinced people see him as an idiot, his self degradation has hindered his whole life. Since discovering he 'may' be Aspergers he has learnt to accept himself as a lovely human being who just has a different outlook on life and is not abnormal for not sharing the opinions of those around him, he accepts he is allowed to make mistakes and will not be banished to hell for doing so. We have done a lot of research and soul searching together over the last few years and since discovering he most definitely 'is' Asperger's he is beginning to realise he does belong on this earth, he has a right to be on this earth. I will have to hold my hands up here, but i too thought he had narcissistic tendencies, he is always looking at himself in the mirror, works out almost everyday to keep his body the way it is, he spends so much time concentrating on himself there is no time left for anyone else, if you were to see him you too i'm sure would think he was vain and wonder why someone like him would need to spend so much time grooming. He is gorgeous looking, has a body to put 'jean Claude van dam' to shame, has a smile so big and white it could light up a country lane at night, he's 44 but looks at least 20 years younger. He is not vain, he is not narcissistic, nor a show off. He spends so much time grooming cause it is one thing about him he can control, looking good is his mask, how he looks on the outside does not reflect how he feels on the inside. He is showing more confidence just lately, he actually has a spring in his step but i think this is due to the change in me and how i communicate with him which he is responding to in a positive way, for quite a few years prior to finding this group i was nothing short of ignorant to his feelings and how my negativity reflected on him and made him feel. After all that waffle what i can say for sure is he does accept he is Asperger's although he was in denial for a while, i 'worked' on him for months showing him why i and our sons psych thought so, he is learning to feel comfortable in his skin, to accept himself for a man with a brain that works differently to others and that it does not mean he is thick, stupid, an idiot, or a failure. In fact he has actually said the words "so i'm not a failure after all then" now how heart breaking is it to hear a grown man say that? shame on the NT mental health authority for not picking up on his 'label'. The biggest step forward for him was when our son was punching himself in the head saying "i don't want to be Autistic, i want to get it out of my head, you don't know what it feels like" my husband replied "i do know what it feels like, cause i have it too and i have had it longer than you". He still feels awkward about himself but now will ask me for my opinion rather than suffer in silence. It has made a difference by way of we are both more accepting of each others ways of doing things and its not a case of who is right, we understand that we may do the same thing but take a different approach it does not mean either approach is wrong cause the outcome is the same, we understand we are allowed to be different, we no longer argue about silly insignificant things and accept each others differences. Hope i have not babbled on so much you don't get the 'gist' of what am trying to explain. Elaine From: Jim <jim7000rocketmail (DOT) com>To: aspires-relationshi psyahoogroups (DOT) comSent: Monday, 27 October, 2008 21:28:13Subject: Re: [aspires-relationsh ips] New here Elaine, Can you expand on how your Husband accepting your AS dx, has made a difference in your relationship. Thanks. Jim From: Elaine <alexhoey1961@ yahoo.co. uk>To: aspires-relationshi psyahoogroups (DOT) comSent: Thursday, October 23, 2008 12:30:07 AMSubject: Re: [aspires-relationsh ips] New here Hello Hael My husband is also UN diagnosed AS, our son 13 is diagnosed AS. When we were told our son was on the spectrum i researched as much as i could, it was then that i discovered that my husband, sister in law, father in law was on the spectrum also. My husband was in denial about our son and himself for a couple of years, he disagreed with our sons psychologist and her diagnosis at first, he just refused to acknowledge anything she said, he has always had a need for perfection and being diagnosed with a disorder to him was not perfect. I hired every book the library had on the subject and without ramming it down his throat too much kept reading the odd passage, the list of traits, and comparing our sons characteristics with what was in the books. He did learn to accept the diagnosis but it took quite a while. Once he had accepted this i then would read a passage or something off the various lists and say "that's just like you", or "blimey sounds like they are describing you here", he would always want to know what i meant by that, so this is how he listened and learnt, the result after over a year, was he did accept he could possibly be on the spectrum himself and we both went to see our doctor to start the ball rolling.... Unfortunately the doctor was dismissive, cold, be little ling, and made an enemy out of my husband with his ridicule like bedside manner. After being observed for sometime by our sons psychologist and having my/our suspicions confirmed my husband has now accepted he has AS, he seems more accepting of himself and not so quick to put himself down and refere to himself as stupid or an idiot, he has lived a life of negativity, felt he was a failure as a man, and so spent many many years previous in the mental health care system. I can relate all that you have said on the subject of emotions, things got so bad we were hours away from a break up, then i found this group. I 'woke' up simple as that, wont go into details as iv'e said it all before but you will be ok, if you get as much as i do from this group, there's nothing you will feel you can't overcome. Looking forward to hearing more from you. PS Have you read anything by Lawson? her life is so much like my husbands, Take care Elaine [aspires-relationsh ips] New here Hi all,I just wanted to introduce myself. I am Hael. My husband is Fish. Iam NT, I suppose, and I am guessing that my husband is AS, althoughthere has been no diagnosis, and he would be quite dismayed to knowthat I think he is.We have been married for just a little over a year. We dated for about8 months before he proposed, and then we were engaged for a year.Here are the several reasons I believe he is AS:-- his son from his first marriage (my step-son), who is 8, has beenidentified by his physician as possibly AS, high-functioning, butdefinitely somewhere on that spectrum.-- Fish and his son are like mirror images of each other when it comesto AS-like behavior.-- Fish is very socially awkward and uncomfortable, and has been onanxiety medications in the past for his social discomfort. Not onlyis he highly uncomfortable in crowds or with other people, he has veryodd conversational ... peculiarities. If caught up in conversationwith one or several other people, Fish will typically avoid anyinteraction, unless the subject pertains directly to him. He comesacross as rude or disinterested, usually staring off at some pointacross the room. Sometimes he will absentmindedly nod or vaguelysmile as if to appear he is paying attention, but he is out of theconversation. He never asks anyone about themselves or something theyare interested in. If given the opportunity, or if asked, he willtalk about his own pet projects or obsessions at length, without anysign of stopping, in great detail, and almost in a professorial /lecturing way, even if the question or the setting is more conduciveto a simple or basic explanation, or if the question was asked mainlyout of politeness. It has been very embarrassing several times when Ican read the body language of the other party, and they are clearlysaying, "ok, enough." I get the sense that people want to make anexcuse to get away from Fish when he is on one of his rambles, and itis all i can do to try and interrupt him by asking the other personabout themselves, or by saying to him, "Fish, let's let so-and-so geton the road, I'm sure they've got a long drive," or something likethat. I will tell you that I have seen relief come over the faces ofmore than one person when I've jumped in this way.-- Fish has one or two very serious obsessions; one is growing things,and the other, I would say, is one particular computer role-playinggame. The growing things component is one we have managed to turninto a fairly profitable, viable small business. He plays the game ofgrowing things like a strategy game, fascinated and obsessed with allthe variables and challenges. It's all he talks about. God forbidyou get him started talking about it. The other obsession is hiscomputer game, but because I know many people become addicted to thesame game, I don't know how indiciative it is of AS. I should alsosay that he is obsessed with and fascinated with weather; he got hismasters in an obscure area of climatology, and taught climate andphysical geography briefly at the university level. If, god forbid,anyone in any setting makes any comment about weather in earshot ofhim, he will get all "teacher-y" about it. Granted, I have learned alot about our physical environment from him, but it's beyond just,"Hey, you want to know something interesting? " No, he will give you afull lecture on rayleigh scattering or some other weather-related oratmospheric topic.-- When he was younger, from his middle school years up throughcollege, Fish was obsessed with fishing. He talks about it now, abouthow all-consuming fishing was for him back then, but he just shrugs,and doesn't find anything all that unusual about it. He nearly didn'tgraduate from school, because he spent all his time out in a boatfishing. In those years, he also devised and created this veryelaborate fishing strategy game, dealing with all kinds of variables,such as fish migrations, weather patterns, and other issues thataffect fishing. He was very proud of this game, and showed it to me ayear or so ago; he wanted to play it with me, but I realizedimmediately that what he considered a "game" would be, for me, and formost others, a very tedious, long-lasting exercise in minute attentionto detail. I tried to be enthusiastic, saying how much fun it wouldbe to create a computer version of the game, with images of all thedifferent fish, and options to build different types of boats andstuff. He said he preferred to play it with "no flash," with just thebasic strategies. it looked like a tricky game, a long-lastingstrategy game that, frankly, seemed like it was over my head.-- Fish has trouble with emotions. He has trouble expressing emotionsand he definitely has trouble reading or appreciating or empathizingwith emotions in others. He has very little tolerance for otherpeople, and does not cultivate or maintain anything close to"friendships. " He has some business partnerships, and of course, hehas me; I know without a doubt I am his one and only friend,confidante, "person." Friendships are very foreign to him, and whenwe have associations with other people, I am always nervous that he isgoing to get perturbed by something about the other people, and writethem off. It has been tricky for me, as I am a somewhat socialperson; I have few friends, but those I have I consider very finepeople, and I want to keep them in my life.-- I used to think he was just a picky eater, but I have come to learnthat Fish has an incredibly sensitive (oversensitive) palate andoversensitive sense of smell. He can smell things well before anyoneelse can. He is a perfect barometer for meat that is just shy ofgoing bad. Even if it smells fine to the rest of us, he will throw itaway. He has nearly become a vegetarian, because he rarely finds meatthat he finds palatable. He is stuck pretty basically on a few meals,and rarely likes to stray at all.-- Fish wears the same few clothes all the time. It helps that wehave a business where clothing doesn't matter, and where function isthe most important thing. His skin is very sensitive to anything"scratchy," which happens to be a lot of things. He can't stand tohave anything restrictive, and he abhors wearing pants or shirts thatrequire buttoning. He wears T-shirts -- the same few very soft fromwear T-shirts he has worn for years and years -- and stretchy shortsmost all year long. In the winter, he will throw on stretchy athleticpants over his shorts and he wears large sweat-shirts. That's aboutit.This all makes him sound pretty bad, but in fact, Fish is a very goodman, and he can be a very sweet person. He's incredibly intelligent,for one thing, and I love that. He's very logical. He doesn't showmuch emotion for his children, but he cares for his children; they areboth very important to him. I am pregnant with our first childtogether (my first ever), and he is very sweet about it, patting mybelly and checking in with the baby every now and then. In a way, Ithink of Fish as a diamond in the rough; he will always be who he is,and to many people, the outside, awkward part of Fish is hard to getpast. To me, his love of growing things, his family-focused, inwardnature, his intelligence, and even his willingness to please me(sometimes) make him worth it.My greatest struggles are with Fish's lack of emotion and hisdifficulty with my emotions -- I am pretty rational, but not all thetime, and I've definitely noticed some mood swings with thispregnancy. I've also dealt with depression over the years, andcurrently I take medication for it. It's not severe, but if I gowithout my medication for awhile, it definitely affects myfunctioning. Also, I grew up in a very affectionate family, and itcan be hard to have to ASK him for a hug or for a show of affection.Fish no longer takes anti-anxiety medication; we think a lot of hisanxiety was brought on by his ex-wife, who I really think would havehad no awareness that his "quirks" could be related to the same thingher son is dealing with. However, she was one of the first to pointout, after the doctor mentioned that her son is possibly AS, that,"Hey, that might be what's wrong with Fish." Of course, I don't seeit as anything "wrong" with him; just different, and I know that mypersonality meshes better with his, AS or no, than hers did.The other thing that makes this really hard is that Fish hasn't beendiagnosed, and he probably won't ever be. He blew it off when it wassuggested that his boy has it, and he blows off any suggestion that hecould be AS.Anyone else out there who has experienced that with a spouse? Denialabout being AS? What did you do?Well, I know this is long. I just wanted to put it out there andintroduce myself and my AS spouse. Thanks for reading.Hael Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2008 Report Share Posted October 28, 2008 >My husband is not very touchy feely either, in fact i can count on >both hands the amount of times he has spontaneously > hugged/cuddled me in 21 years. It took him 11 and 1/2 years to >tell me he loved me and it was when i was about to have major >surgery and thought i would not survive, him saying he loved me >at that (to me)inappropriate time convinced me that i would not >survive, i was sure he had a sixth sense (ha ha) Even in bed he >will sleep with his back to me and if i happen to 'snuggle' up to >him he will move closer to the edge of the bed. I used to get so >upset over this but he has always been like this, it's not >something he has suddenly changed, i accept it now, it doesn't >bother me anymore, it's just what he prefers. Our son also does >not like to be touched, he likes to keep at least a few inches >space between himself and who ever is sitting next to him. e is like this. She detests being hugged or kissed (especially on the lips) and has only two times initiated either since we got married. I am waaay over affectionate and touchy. Having kids has helped us in alot of ways since I have five little guys running around all craving to be picked up and hugged, etc.. Can kind of spread the wealth a bit. My AS son, however, is like me.. very very excessive. If you are conversing with him he will lean against you or be in physical contact in some way without usually looking at you. Before she reads this and gets mad at me, I should say that since we have been on Aspires her whole personality toward me has changed completely. More than just " trying harder " , she seems to have changed inside deeply somehow.. she seems more genuine and relaxed.. she laughs and sings more than I've heard her in years, and she seems to want to spend time with me instead of being indifferent or " busy " . I have to say, you all are a fantastic group of people, and I have been and continue to enjoy all of your perspectives and experiences, and sharing our struggles here feels, to me at least, like it's helping us grow together as a couple. Thank you all! Usarian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2008 Report Share Posted October 28, 2008 Quoting Jim : > Elaine and Everyone, > > I appreciate your feedback.  It sounds like our spouses have very > similar traits.  You seem to take it all in stride.  I haven't been > able to accept it.  Far from it. And, even after knowing about AS, > I still feel the severe emotional deprivation of it all.   > > Since identifying AS, if I'm near her, I get extremely agitated > knowing she'll never touch me.  That's on top of the absence of > positive feedback and all the other traits. I can't endure it as > Bill pointed out earlier is necessary.  That's why it's important > for me to understand the degree of " adapting " to my needs that can > reasonably be expected. It doesn't sound promising according to > everything I've read and all the feedback I've gotten.  >          > Jim Whoops.. perhaps my last message was sent at a less than opportune moment... I should have read a little further down.. my sincerest apologies -Usarian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2008 Report Share Posted October 28, 2008 e and others, I just wonder how NT you are or I am? What are the chances that someone with AS would marry a complete NT partner? Some of the traits that are on the spectrum are exhibited by supposedly NT partners as I learn more about this, wouldn’t you say? For instance, I am sound sensitive, I do web design, always hated those work lunches out to celebrate birthdays, and favor cotton clothes over something scratchy. Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2008 Report Share Posted October 29, 2008 Lori D. Cole wrote: > e and others, > > I just wonder how NT you are or I am? What are the chances that someone > with AS would marry a complete NT partner? Some of the traits that are on > the spectrum are exhibited by supposedly NT partners as I learn more about > this, wouldn't you say? For instance, I am sound sensitive, I do web > design, always hated those work lunches out to celebrate birthdays, and > favor cotton clothes over something scratchy. These things are over rated as much to do with spectrum. There are items I do not like, so what, there are things my wife doesn't like. Celebrate. Not even sure what the word really means. Hand waving kind of word. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2008 Report Share Posted October 29, 2008 Hi Jim I have found that as Ian isnt able to find ways to adapt to our life together, to the extent that I can. Therefore I am always the first to make amendments to my actions to make our lives easier, and the result is that he is able to relax. A consequence of that is that he moves a little closer to me as he now trusts me more, he always used to think that I was hauranging him to be different to the way he is. I dont think that he can adapt first, or would even have the will to do so. I do try asking for some changes; a suggestion that he gives me a hug when I get home from work has become a ritual for him so he likes to do this, even if I dont remember myself! It might sound too trite, but it works for us. He feels good about it; and he knows it pleases me. Its not much, buts its about all he stand in terms of closeness at any one time. I feel hurt even now when he suddenly tells me to get away from being near him, and stand a few feet away. He hates people being too close to him, and I come into the category of people. We make a joke of it now, but its still galling. I can only get close to Ian when he says its OK. Sometimes I say its not OK, and that he has to compromise to me, too. Knowing when to connect and when to give space to someone with AS is an art form, but worth it, as when you get the formula right, you do get sincerity. The hardest part is to accept that you wont get the spontaneity that you need, and that there wont be a gushing of demonstrative love at any time, no way. I, and others I have read of here, get our caring spontaneity from friends and family. In terms of not expressing feelings, it may be a fear on the AS person's part that they will fail horribly, get it wrong, or get into a situation they dont understand. Ian, like other AS people, is terrified: he rehearses social responses (usually in front of a mirror, so he can see how others see him) or copies the responses of others, because he just doesnt get how to interact. Often these responses fail because they are rehearsed, used in the wrong context, or sound false. Ian suffered a lot of rejections from people as a child and as a teenager. Even now his confidence drops several notches when he is with new people. Its even taken him years not to behave stiltingly with me. So there is a wall there. He spent his childhood trying to get a loving response from his mum and dad, so he retreated from them as he was always getting it wrong; they were on the spectrum too so it was a horrid mess. So its taken him a long, long while to appreciate the two way reciprocation of a loving couple. It will never, ever, be the same as if he didnt have AS, but we make the most of what Ian is able to express. I know that if he shows love that he means it, even if it doesnt come in huge swathes. He is still somewhat rehearsed - he will use a phrase to me that he has heard on a TV show that 'worked' for that character - but he does now use his own words more often, and his own personality comes through. Its hard to make all the sacrifices at first but the trust will come, and that brings its own reward. Judy B, Scotland, in the coldest October since whenever Quoting Jim <jim7000rocketmail (DOT) com>:> Elaine and Everyone,> > I appreciate your feedback. It sounds like our spouses have very> similar traits. You seem to take it all in stride. I haven't been> able to accept it. Far from it. And, even after knowing about AS,> I still feel the severe emotional deprivatio n of it all. > > Since identifying AS, if I'm near her, I get extremely agitated> knowing she'll never touch me. That's on top of the absence of> positive feedback and all the other traits. I can't endure it as> Bill pointed out earlier is necessary. That' s why it's important> for me to understand the degree of "adapting" to my needs that can> reasonably be expected. It doesn't sound promising according to> everything I've read and all the feedback I've gotten. > > Jim .. .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2008 Report Share Posted October 29, 2008 Jim I never said is was easy, far from it, i have in the past described my marriage as the loneliest place on earth, and it still is. I do love my husband and i have always been the one to show physical affection not getting much in return. I have always felt like 'the one who wears the trousers' in our relationship, i often have to endure my husbands jealousy over this, he so badly wants to do for us but he simply can't, so someone has to and that someone is me, i don't get thanked for it or appreciated for what i do just a cold shoulder at times cause i seem to be coping too well, it makes him feel useless. I often play the 'damsel in distress' and let him believe i can't do something and i NEED his help, i do my best to make him feel needed and wanted and often tell him he is the head of this family and needs to accept it, he's not living at home with his parents and under the thumb anymore. He will not spontaneously hug me so i will hug him and that's when he will hug me back, if we are out i like to hold hand, he will do this for a short while then let go to fidget in his pocket so i wait till he's finished and grab his hand again. He doesn't get agitated by this so i will continue to get 'my' physical affection from him whenever i can, he's just aware that i need the physical side of things cause he doesn't. Don't get agitated knowing she will not touch you, make the first move, teach her how to give and receive affection, it's not a conscious effort on her side just something she is used too, it takes hard work to make or break a habit but it can be done. All the best Elaine To: aspires-relationships Sent: Tuesday, 28 October, 2008 20:40:40Subject: Re: New here Elaine and Everyone, I appreciate your feedback. It sounds like our spouses have very similar traits. You seem to take it all in stride. I haven't been able to accept it. Far from it. And, even after knowing about AS, I still feel the severe emotional deprivation of it all. Since identifying AS, if I'm near her, I get extremely agitated knowing she'll never touch me. That's on top of the absence of positive feedback and all the other traits. I can't endure it as Bill pointed out earlier is necessary. That's why it's important for me to understand the degree of "adapting" to my needs that can reasonably be expected. It doesn't sound promising according to everything I've read and all the feedback I've gotten. Jim From: Elaine <alexhoey1961@ yahoo.co. uk>To: aspires-relationshi psyahoogroups (DOT) comSent: Tuesday, October 28, 2008 12:48:12 PMSubject: Re: [aspires-relationsh ips] New here Hi Jim My husband is not very touchy feely either, in fact i can count on both hands the amount of times he has spontaneously hugged/cuddled me in 21 years. It took him 11 and 1/2 years to tell me he loved me and it was when i was about to have major surgery and thought i would not survive, him saying he loved me at that (to me)inappropriate time convinced me that i would not survive, i was sure he had a sixth sense (ha ha) Even in bed he will sleep with his back to me and if i happen to 'snuggle' up to him he will move closer to the edge of the bed. I used to get so upset over this but he has always been like this, it's not something he has suddenly changed, i accept it now, it doesn't bother me anymore, it's just what he prefers. Our son also does not like to be touched, he likes to keep at least a few inches space between himself and who ever is sitting next to him. If i have ever done something good and worth celebrating like pass my driving test he seems to not even acknowledge my achievement, i have to admit this does tick me off cause everyone needs a pat on the back from time to time, however it's not worth challenging him over it cause his explanation always leaves me feeling guilty or small to ever doubt he is happy for me, he does does not show it. If i am out and someone phones to speak to me but leaves a message with him to pass on, i will get the message sometimes weeks later if at all. My husband has always had good and bad periods, he seems 'normal' (whatever that is) for a while but something will trigger a regression and hes lost in his own world again. It's not a comfortable place for him to be, he does not like it and it gets him down, i have to remind myself of that so i don't put undue pressure on him. As time goes by you will realise your wife is who she is, she may not ever change but may improve for a while till another set back crops up, lap up the good times and be supportive in the bad times, it can be hard but she obviously trusts you and that just has to make you feel good, it does me. Knowledge is power, if you can get her to realise this she may become more accepting of the idea of having an AS diagnosis, formal or informal. You both can then learn together how to become closer as a couple and what works for you. Take care ElainePS are you in the UK? i ask because i know a little about the diagnosis process for an adult. From: Jim <jim7000rocketmail (DOT) com>To: aspires-relationshi psyahoogroups (DOT) comSent: Tuesday, 28 October, 2008 16:49:07Subject: Re: [aspires-relationsh ips] New here Elaine and everyone, That's interesting because I had been thinking that if she (my wife) accepts that she has AS, it may lead her to try to adapt like your husband is doing. I see the "AS label" as potentially playing a vital role in sparking improvement. In my wife and in my life, the traits of low self-confidence and arguing are only 2 of many impossible traits. For example, she never touches or gives positive feedback. I'm afraid that, at best, improvement, if any, will be contrived and possibly temporary. I'd appreciate your and others feedback. Jim From: Elaine <alexhoey1961@ yahoo.co. uk>To: aspires-relationshi psyahoogroups (DOT) comSent: Tuesday, October 28, 2008 3:08:32 AMSubject: Re: [aspires-relationsh ips] New here Hello Jim My husband is a quiet self conscious man, he's always felt awkward and out of place in public, hates talking on the telephone and simply will not socialise. He has always felt he was a waste of a human life and a failure in others eyes, he is convinced people see him as an idiot, his self degradation has hindered his whole life. Since discovering he 'may' be Aspergers he has learnt to accept himself as a lovely human being who just has a different outlook on life and is not abnormal for not sharing the opinions of those around him, he accepts he is allowed to make mistakes and will not be banished to hell for doing so. We have done a lot of research and soul searching together over the last few years and since discovering he most definitely 'is' Asperger's he is beginning to realise he does belong on this earth, he has a right to be on this earth. I will have to hold my hands up here, but i too thought he had narcissistic tendencies, he is always looking at himself in the mirror, works out almost everyday to keep his body the way it is, he spends so much time concentrating on himself there is no time left for anyone else, if you were to see him you too i'm sure would think he was vain and wonder why someone like him would need to spend so much time grooming. He is gorgeous looking, has a body to put 'jean Claude van dam' to shame, has a smile so big and white it could light up a country lane at night, he's 44 but looks at least 20 years younger. He is not vain, he is not narcissistic, nor a show off. He spends so much time grooming cause it is one thing about him he can control, looking good is his mask, how he looks on the outside does not reflect how he feels on the inside. He is showing more confidence just lately, he actually has a spring in his step but i think this is due to the change in me and how i communicate with him which he is responding to in a positive way, for quite a few years prior to finding this group i was nothing short of ignorant to his feelings and how my negativity reflected on him and made him feel. After all that waffle what i can say for sure is he does accept he is Asperger's although he was in denial for a while, i 'worked' on him for months showing him why i and our sons psych thought so, he is learning to feel comfortable in his skin, to accept himself for a man with a brain that works differently to others and that it does not mean he is thick, stupid, an idiot, or a failure. In fact he has actually said the words "so i'm not a failure after all then" now how heart breaking is it to hear a grown man say that? shame on the NT mental health authority for not picking up on his 'label'. The biggest step forward for him was when our son was punching himself in the head saying "i don't want to be Autistic, i want to get it out of my head, you don't know what it feels like" my husband replied "i do know what it feels like, cause i have it too and i have had it longer than you". He still feels awkward about himself but now will ask me for my opinion rather than suffer in silence. It has made a difference by way of we are both more accepting of each others ways of doing things and its not a case of who is right, we understand that we may do the same thing but take a different approach it does not mean either approach is wrong cause the outcome is the same, we understand we are allowed to be different, we no longer argue about silly insignificant things and accept each others differences. Hope i have not babbled on so much you don't get the 'gist' of what am trying to explain. Elaine From: Jim <jim7000rocketmail (DOT) com>To: aspires-relationshi psyahoogroups (DOT) comSent: Monday, 27 October, 2008 21:28:13Subject: Re: [aspires-relationsh ips] New here Elaine, Can you expand on how your Husband accepting your AS dx, has made a difference in your relationship. Thanks. Jim From: Elaine <alexhoey1961@ yahoo.co. uk>To: aspires-relationshi psyahoogroups (DOT) comSent: Thursday, October 23, 2008 12:30:07 AMSubject: Re: [aspires-relationsh ips] New here Hello Hael My husband is also UN diagnosed AS, our son 13 is diagnosed AS. When we were told our son was on the spectrum i researched as much as i could, it was then that i discovered that my husband, sister in law, father in law was on the spectrum also. My husband was in denial about our son and himself for a couple of years, he disagreed with our sons psychologist and her diagnosis at first, he just refused to acknowledge anything she said, he has always had a need for perfection and being diagnosed with a disorder to him was not perfect. I hired every book the library had on the subject and without ramming it down his throat too much kept reading the odd passage, the list of traits, and comparing our sons characteristics with what was in the books. He did learn to accept the diagnosis but it took quite a while. Once he had accepted this i then would read a passage or something off the various lists and say "that's just like you", or "blimey sounds like they are describing you here", he would always want to know what i meant by that, so this is how he listened and learnt, the result after over a year, was he did accept he could possibly be on the spectrum himself and we both went to see our doctor to start the ball rolling..... Unfortunately the doctor was dismissive, cold, be little ling, and made an enemy out of my husband with his ridicule like bedside manner. After being observed for sometime by our sons psychologist and having my/our suspicions confirmed my husband has now accepted he has AS, he seems more accepting of himself and not so quick to put himself down and refere to himself as stupid or an idiot, he has lived a life of negativity, felt he was a failure as a man, and so spent many many years previous in the mental health care system. I can relate all that you have said on the subject of emotions, things got so bad we were hours away from a break up, then i found this group. I 'woke' up simple as that, wont go into details as iv'e said it all before but you will be ok, if you get as much as i do from this group, there's nothing you will feel you can't overcome. Looking forward to hearing more from you. PS Have you read anything by Lawson? her life is so much like my husbands, Take care Elaine [aspires-relationsh ips] New here Hi all,I just wanted to introduce myself. I am Hael. My husband is Fish. Iam NT, I suppose, and I am guessing that my husband is AS, althoughthere has been no diagnosis, and he would be quite dismayed to knowthat I think he is.We have been married for just a little over a year. We dated for about8 months before he proposed, and then we were engaged for a year.Here are the several reasons I believe he is AS:-- his son from his first marriage (my step-son), who is 8, has beenidentified by his physician as possibly AS, high-functioning, butdefinitely somewhere on that spectrum.-- Fish and his son are like mirror images of each other when it comesto AS-like behavior.-- Fish is very socially awkward and uncomfortable, and has been onanxiety medications in the past for his social discomfort. Not onlyis he highly uncomfortable in crowds or with other people, he has veryodd conversational ... peculiarities. If caught up in conversationwith one or several other people, Fish will typically avoid anyinteraction, unless the subject pertains directly to him. He comesacross as rude or disinterested, usually staring off at some pointacross the room. Sometimes he will absentmindedly nod or vaguelysmile as if to appear he is paying attention, but he is out of theconversation. He never asks anyone about themselves or something theyare interested in. If given the opportunity, or if asked, he willtalk about his own pet projects or obsessions at length, without anysign of stopping, in great detail, and almost in a professorial /lecturing way, even if the question or the setting is more conduciveto a simple or basic explanation, or if the question was asked mainlyout of politeness. It has been very embarrassing several times when Ican read the body language of the other party, and they are clearlysaying, "ok, enough." I get the sense that people want to make anexcuse to get away from Fish when he is on one of his rambles, and itis all i can do to try and interrupt him by asking the other personabout themselves, or by saying to him, "Fish, let's let so-and-so geton the road, I'm sure they've got a long drive," or something likethat. I will tell you that I have seen relief come over the faces ofmore than one person when I've jumped in this way.-- Fish has one or two very serious obsessions; one is growing things,and the other, I would say, is one particular computer role-playinggame. The growing things component is one we have managed to turninto a fairly profitable, viable small business. He plays the game ofgrowing things like a strategy game, fascinated and obsessed with allthe variables and challenges. It's all he talks about. God forbidyou get him started talking about it. The other obsession is hiscomputer game, but because I know many people become addicted to thesame game, I don't know how indiciative it is of AS. I should alsosay that he is obsessed with and fascinated with weather; he got hismasters in an obscure area of climatology, and taught climate andphysical geography briefly at the university level. If, god forbid,anyone in any setting makes any comment about weather in earshot ofhim, he will get all "teacher-y" about it. Granted, I have learned alot about our physical environment from him, but it's beyond just,"Hey, you want to know something interesting? " No, he will give you afull lecture on rayleigh scattering or some other weather-related oratmospheric topic.-- When he was younger, from his middle school years up throughcollege, Fish was obsessed with fishing. He talks about it now, abouthow all-consuming fishing was for him back then, but he just shrugs,and doesn't find anything all that unusual about it. He nearly didn'tgraduate from school, because he spent all his time out in a boatfishing. In those years, he also devised and created this veryelaborate fishing strategy game, dealing with all kinds of variables,such as fish migrations, weather patterns, and other issues thataffect fishing. He was very proud of this game, and showed it to me ayear or so ago; he wanted to play it with me, but I realizedimmediately that what he considered a "game" would be, for me, and formost others, a very tedious, long-lasting exercise in minute attentionto detail. I tried to be enthusiastic, saying how much fun it wouldbe to create a computer version of the game, with images of all thedifferent fish, and options to build different types of boats andstuff. He said he preferred to play it with "no flash," with just thebasic strategies. it looked like a tricky game, a long-lastingstrategy game that, frankly, seemed like it was over my head.-- Fish has trouble with emotions. He has trouble expressing emotionsand he definitely has trouble reading or appreciating or empathizingwith emotions in others. He has very little tolerance for otherpeople, and does not cultivate or maintain anything close to"friendships. " He has some business partnerships, and of course, hehas me; I know without a doubt I am his one and only friend,confidante, "person." Friendships are very foreign to him, and whenwe have associations with other people, I am always nervous that he isgoing to get perturbed by something about the other people, and writethem off. It has been tricky for me, as I am a somewhat socialperson; I have few friends, but those I have I consider very finepeople, and I want to keep them in my life.-- I used to think he was just a picky eater, but I have come to learnthat Fish has an incredibly sensitive (oversensitive) palate andoversensitive sense of smell. He can smell things well before anyoneelse can. He is a perfect barometer for meat that is just shy ofgoing bad. Even if it smells fine to the rest of us, he will throw itaway. He has nearly become a vegetarian, because he rarely finds meatthat he finds palatable. He is stuck pretty basically on a few meals,and rarely likes to stray at all.-- Fish wears the same few clothes all the time. It helps that wehave a business where clothing doesn't matter, and where function isthe most important thing. His skin is very sensitive to anything"scratchy," which happens to be a lot of things. He can't stand tohave anything restrictive, and he abhors wearing pants or shirts thatrequire buttoning. He wears T-shirts -- the same few very soft fromwear T-shirts he has worn for years and years -- and stretchy shortsmost all year long. In the winter, he will throw on stretchy athleticpants over his shorts and he wears large sweat-shirts. That's aboutit.This all makes him sound pretty bad, but in fact, Fish is a very goodman, and he can be a very sweet person. He's incredibly intelligent,for one thing, and I love that. He's very logical. He doesn't showmuch emotion for his children, but he cares for his children; they areboth very important to him. I am pregnant with our first childtogether (my first ever), and he is very sweet about it, patting mybelly and checking in with the baby every now and then. In a way, Ithink of Fish as a diamond in the rough; he will always be who he is,and to many people, the outside, awkward part of Fish is hard to getpast. To me, his love of growing things, his family-focused, inwardnature, his intelligence, and even his willingness to please me(sometimes) make him worth it.My greatest struggles are with Fish's lack of emotion and hisdifficulty with my emotions -- I am pretty rational, but not all thetime, and I've definitely noticed some mood swings with thispregnancy. I've also dealt with depression over the years, andcurrently I take medication for it. It's not severe, but if I gowithout my medication for awhile, it definitely affects myfunctioning. Also, I grew up in a very affectionate family, and itcan be hard to have to ASK him for a hug or for a show of affection.Fish no longer takes anti-anxiety medication; we think a lot of hisanxiety was brought on by his ex-wife, who I really think would havehad no awareness that his "quirks" could be related to the same thingher son is dealing with. However, she was one of the first to pointout, after the doctor mentioned that her son is possibly AS, that,"Hey, that might be what's wrong with Fish." Of course, I don't seeit as anything "wrong" with him; just different, and I know that mypersonality meshes better with his, AS or no, than hers did.The other thing that makes this really hard is that Fish hasn't beendiagnosed, and he probably won't ever be. He blew it off when it wassuggested that his boy has it, and he blows off any suggestion that hecould be AS.Anyone else out there who has experienced that with a spouse? Denialabout being AS? What did you do?Well, I know this is long. I just wanted to put it out there andintroduce myself and my AS spouse. Thanks for reading.Hael Quote Link to comment Share on other sites More sharing options...
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