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Kathie,

I thought I was weird for feeling things in my legs. I get muscle

twitches all the time, and I don't know if you would call them

electrical buzzes, but I get these sharp jab like pains in my legs.

It would happen just out of the blue. Like as if someone was poking me

with something sharp. Another symptom I have noticed are muscle cramps.

Boy, do they hurt!!!

Anne

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Anne Marie wrote:

>

> From: Anne Marie <amrhodes@...>

>

> Kathie,

>

> I thought I was weird for feeling things in my legs. I get muscle

> twitches all the time, and I don't know if you would call them

> electrical buzzes, but I get these sharp jab like pains in my legs.

> It would happen just out of the blue. Like as if someone was poking me

> with something sharp. Another symptom I have noticed are muscle cramps.

> Boy, do they hurt!!!

>

> Anne

>

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> i get the same exact thing....wow.....how long have you had lyme disease?

with so many of us having the same symptoms, it blows my mind that any

dr. can look us straight in the eye and say " i don't think you have lyme

disease? " what a load of crap!!

thanks for your reply....it means so much!!

kathie

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  • 5 years later...

----- Original Message -----

From: " K a r e n P " <karlynn17@...>

> does anyone else chronically experience this ? I was up much of

last night

> b/c of a twitch I've had for several days right above my knee. I

also had

> one around my shoulder blade. Is this related to hypothyroidism or

could it

> be something else? thanks.

Hi,

I have been lurking on this list for awhile but I had to answer this.

I get this muscle twitching all the time. My doc refuses to diagnose

me hypothyroid (even though I know better) he has diagnosed me either

cfs or fibromyalgia. Do you have a lot of muscle pain as well as the

twitching?

Lynda

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  • 2 years later...
Guest guest

I had muscle twitching. Just got my implants out last week and the huge

twitch in my latissimus dorsi on the right -- made my whole arm pull

down at the shoulder -- has reduced to about 1/4 of what it used to do.

I had a lot of other smaller twitches. They have reduced, but changed

body parts. I still get them.

When consulting with Dr. Kolb, she said it was biotoxin.

Dawn

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In a message dated 7/18/2006 4:43:55 PM Eastern Standard Time, margiehoran@... writes:

Hi everyone again. Now just wondering if anyone is having muscle twitching, its a new symptom. I can watch my upper arm twitch several times a day. Also, does anyone get strange sore throats, its just come and goes with no illness with it. Thanks Margie

Yes to both here.

I've had both symptoms for years. My spasms are more so muscle spasms in legs and arms, as well as my shoulder blade into my neck. My doc has never seen them as a concern. About all they seem to want to do is put me on muscle relaxers for complaints like that.

I get chronic sore throats, which are a symptom that goes along with Chronic Fatigue Syndrome that I've been diagnosed with. If you have that, it will cause your throat to get sore any time you're feeling fatigued. I can get a sore throat by either talking on the phone, or being in a social situation over 20-30 min, or I can get one by not talking at all, but just being fatigued. Mine especially come on after I've been grocery shopping or ran a lot of errands in one day, and on holidays when I see family for extended periods. (That's the extent of my social life!)

Try to find a pattern when the sore throat comes... Is it happening at the end of the day or after you've done something tiresome?

Anyway, just confirming symptom comparisons! Nothing amazes me anymore after talking to all you gals! Nothing is coincidental...

Brigite :)

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Dawn, The twitching just started this week, in my upper right arm. That is the side which had the rupture last year. Did the doctor say it should go away? Thanks Margie

From: Dawnsusan <dawnsusan@...>Reply- To: Subject: Re: muscle twitchingDate: Tue, 18 Jul 2006 19:09:05 -0400

I had muscle twitching. Just got my implants out last week and the huge twitch in my latissimus dorsi on the right -- made my whole arm pull down at the shoulder -- has reduced to about 1/4 of what it used to do. I had a lot of other smaller twitches. They have reduced, but changed body parts. I still get them.When consulting with Dr. Kolb, she said it was biotoxin.Dawn

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Wow, Just when you think you can't come up with anymore strange symptoms...Its seems to never end. Thanks Margie

From: KissofSadness@...Reply- To: Subject: Re: muscle twitchingDate: Wed, 19 Jul 2006 01:57:59 EDT

In a message dated 7/18/2006 4:43:55 PM Eastern Standard Time, margiehoran@... writes:

Hi everyone again. Now just wondering if anyone is having muscle twitching, its a new symptom. I can watch my upper arm twitch several times a day. Also, does anyone get strange sore throats, its just come and goes with no illness with it. Thanks Margie

Yes to both here.

I've had both symptoms for years. My spasms are more so muscle spasms in legs and arms, as well as my shoulder blade into my neck. My doc has never seen them as a concern. About all they seem to want to do is put me on muscle relaxers for complaints like that.

I get chronic sore throats, which are a symptom that goes along with Chronic Fatigue Syndrome that I've been diagnosed with. If you have that, it will cause your throat to get sore any time you're feeling fatigued. I can get a sore throat by either talking on the phone, or being in a social situation over 20-30 min, or I can get one by not talking at all, but just being fatigued. Mine especially come on after I've been grocery shopping or ran a lot of errands in one day, and on holidays when I see family for extended periods. (That's the extent of my social life!)

Try to find a pattern when the sore throat comes... Is it happening at the end of the day or after you've done something tiresome?

Anyway, just confirming symptom comparisons! Nothing amazes me anymore after talking to all you gals! Nothing is coincidental...

Brigite :)

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Guest guest

>I am new here as well, only my situation was a little different. I had

silicone implants for 18 years. The symptom that freaked me out was

the muscle twitching. It started a couple of years ago in my chest. I

thought it was my heart! Just little twitches but I could see them

happening. Then they traveled to larger muscle groups...my shoulders

and back...then eventually my legs. One night I was watching the Jerry

telethon(Labor Day Sept2005) and had this sudden fear that maybe

I was coming down with ALS or something as one of the patients on the

telethon was talking about one of his first symptoms was how his legs

started twitching. Long story (sorry) I spent that night on the

internet ruling out this and that and by some nagging idea I googled

the phrase " muscle twitches and breast implants " that was the beginning

to the end of my implant nightmare. It all fit together...and that is

how I found Dr Kolb. I am sooooo lucky to live in Atlanta, 30 minutes

from her office! Our first visit she spent 3 hours on a Friday night

talking to me, knowing that everything I had been experiencing over the

past 6 or 7 years is real. She even mentioned symptoms I forgot to tell

her, " has your hair started falling out yet " My jaw dropped...she got

it. She knew! I got my implants out 3 weeks later. TO ANSWER YOUR

QUESTION...The twitches got worse at first for a couple of weeks then

slowly started to settle down. I would say now...9 months post

explant...they are 95% gone! I know now for sure what was causing

them.

Hugs to all of you girls....I had no idea that there were so many

saline sisters out there that were as sick as I was.

Marsha

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Guest guest

I am a silicone sister, post-mastectomy for cancer, and these saline

women get just as sick as we do from silicone, and sometimes they

have even worse fungal problems.

Lynda

At 08:06 AM 7/19/2006, you wrote:

> >I am new here as well, only my situation was a little different. I had

>silicone implants for 18 years. The symptom that freaked me out was

>the muscle twitching. It started a couple of years ago in my chest. I

>thought it was my heart! Just little twitches but I could see them

>happening. Then they traveled to larger muscle groups...my shoulders

>and back...then eventually my legs. One night I was watching the Jerry

> telethon(Labor Day Sept2005) and had this sudden fear that maybe

>I was coming down with ALS or something as one of the patients on the

>telethon was talking about one of his first symptoms was how his legs

>started twitching. Long story (sorry) I spent that night on the

>internet ruling out this and that and by some nagging idea I googled

>the phrase " muscle twitches and breast implants " that was the beginning

>to the end of my implant nightmare. It all fit together...and that is

>how I found Dr Kolb. I am sooooo lucky to live in Atlanta, 30 minutes

>from her office! Our first visit she spent 3 hours on a Friday night

>talking to me, knowing that everything I had been experiencing over the

>past 6 or 7 years is real. She even mentioned symptoms I forgot to tell

>her, " has your hair started falling out yet " My jaw dropped...she got

>it. She knew! I got my implants out 3 weeks later. TO ANSWER YOUR

>QUESTION...The twitches got worse at first for a couple of weeks then

>slowly started to settle down. I would say now...9 months post

>explant...they are 95% gone! I know now for sure what was causing

>them.

>Hugs to all of you girls....I had no idea that there were so many

>saline sisters out there that were as sick as I was.

>Marsha

>

>

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Guest guest

Hi Marsha, Welcome to our group! Your input will be valuable, and I am really glad to hear you got your implants out! Dr. Kolb is very understanding and very knowledgeable about breast implant issues, so I am sure you are making a great recovery. What other symptoms did you have that have gone away in the 9 months since you've been explanted? What have you been doing to get better? I would assume that Dr. Kolb has you on some sort of protocol for healing. Just wondering what you thought has been the most effective for you? Thanks again for joining us. We hope you will share more of your positive healing experiences. It really helps us to stick together through this and see how others are doing...it is great encouragement to see women getting better and better! Pattykbellsmama

<frenchi21@...> wrote: >I am new here as well, only my situation was a little different. I had silicone implants for 18 years. The symptom that freaked me out was the muscle twitching. It started a couple of years ago in my chest. I thought it was my heart! Just little twitches but I could see them happening. Then they traveled to larger muscle groups...my shoulders and back...then eventually my legs. One night I was watching the Jerry telethon(Labor Day Sept2005) and had this sudden fear that maybe I was

coming down with ALS or something as one of the patients on the telethon was talking about one of his first symptoms was how his legs started twitching. Long story (sorry) I spent that night on the internet ruling out this and that and by some nagging idea I googled the phrase "muscle twitches and breast implants" that was the beginning to the end of my implant nightmare. It all fit together...and that is how I found Dr Kolb. I am sooooo lucky to live in Atlanta, 30 minutes from her office! Our first visit she spent 3 hours on a Friday night talking to me, knowing that everything I had been experiencing over the past 6 or 7 years is real. She even mentioned symptoms I forgot to tell her, "has your hair started falling out yet" My jaw dropped...she got it. She knew! I got my implants out 3 weeks later. TO ANSWER YOUR QUESTION...The twitches got worse at first for a couple of weeks then slowly started to settle down. I

would say now...9 months post explant...they are 95% gone! I know now for sure what was causing them. Hugs to all of you girls....I had no idea that there were so many saline sisters out there that were as sick as I was.Marsha

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Guest guest

Well, I didn't end up using Dr. Kolb. I went to another doctor. Dr.

Kolb did tell me that it was a " biotoxin " reaction when we spoke on the

phone, and she was not at all suprised to hear it.

If you take out the implants and treat for biotoxin, it seems like it

should abate, no?

I mentioned my muscle twitches to my doc, Dr. Melmed, and I did it as a

longish list of symptoms.....he said everything should go away, with

time, esp. since I didn't have them in that long.

I had them everywhere -- arms, fingers, face, back, legs, under my eye.

It seemed like one would hang out and twitch on and off for a few weeks

or a month, then switch to another part of my body. The one that stuck

was that one in my right lat. It fired off a time or two today, the way

it always did -- with one large jump, not that fast repeated twitching

that I had elsewhere. The jump was a lot smaller, and has been since

explant.

Hope that helps.

Dawn

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Guest guest

Dawn, WOW I keep getting amazed at the same symptoms that I thought I had only. My twitching is like yours all different places, eyes, right arm, legs stomach. The stomach ones are like the fluttering that you get when you first feel your baby move. So I know that I had this fibro while I was pregnant. The doctor said it was too eearly to feel the baby move when I was about 4 months pregnant. Only about 6 years later did I feel that fluttering again when I wasn't pregnant that I figured out it was muscle spasms in the stomach. Sometimes they are sharp pains that shoot through Like electrical shocks in the head. Any way then it seems to concentrate like you said on one area, right arm all day long. Very strange. Terri P Dawnsusan <dawnsusan@...> wrote: Well, I didn't end up using Dr. Kolb. I went to another doctor. Dr. Kolb did tell me that it was a "biotoxin" reaction when we spoke on the phone, and she was not at all suprised to hear it.If you take out the implants and treat for biotoxin, it seems like it should abate, no?I mentioned my muscle twitches to my doc, Dr. Melmed, and I did it as a longish list of symptoms.....he said everything should go away, with time, esp. since I didn't have them in that long.I had them everywhere -- arms, fingers, face, back, legs, under my eye. It seemed like one would hang out and twitch on and off for a few weeks or a month, then switch to another

part of my body. The one that stuck was that one in my right lat. It fired off a time or two today, the way it always did -- with one large jump, not that fast repeated twitching that I had elsewhere. The jump was a lot smaller, and has been since explant. Hope that helps.Dawn __________________________________________________

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Guest guest

I had constant twitching below my right eye for at least 6 months,

maybe more. It's gone now, thankfully.

Sis

> Well, I didn't end up using Dr. Kolb. I went to another

doctor. Dr.

> Kolb did tell me that it was a " biotoxin " reaction when we spoke

on the

> phone, and she was not at all suprised to hear it.

>

> If you take out the implants and treat for biotoxin, it seems like

it

> should abate, no?

>

> I mentioned my muscle twitches to my doc, Dr. Melmed, and I did it

as a

> longish list of symptoms.....he said everything should go away,

with

> time, esp. since I didn't have them in that long.

>

> I had them everywhere -- arms, fingers, face, back, legs, under my

eye.

> It seemed like one would hang out and twitch on and off for a few

weeks

> or a month, then switch to another part of my body. The one that

stuck

> was that one in my right lat. It fired off a time or two today,

the way

> it always did -- with one large jump, not that fast repeated

twitching

> that I had elsewhere. The jump was a lot smaller, and has been

since

> explant.

>

> Hope that helps.

>

> Dawn

>

>

>

>

> __________________________________________________

>

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  • 3 years later...

Hi Sharon,

Dead Sea salt might help quickly (KCl.MgCl2) Potassium Magnesium Chloride.

It is fairly cheap and can be rubbed on the skin (1-2gm neat with water)....

Alternately used in the bath, but don't use too much and then go to sleep in the bath ! Epsom Salt is as likely to be effective in moderation but without thepotassium (again in the bath ~ a bit too much as a drink in water ~ is too laxative )

Dead Sea salt should be used as a bath additive unless very small amounts (less than 0.25gram) are needed (in extremis)....

Low sodium salt is a better source for low level potassium (kidneys being competent)....

Costs and risks are relative (ask big pharma)...

best wishes

Bob

>> Hi,> > Just a question about muscle twitching,as mentioned in the Magnificent Magnesium questionnaire.I do suffer from muscle twitching in many places and am actually getting muscle twitch as I speak in my right butt cheek! Anyone else get it there?> > Best wishes Sharon>

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  • 3 weeks later...

I am going to the neuro in a few weeks, but I thought I would run this by you

guys too while I wait for my appointment date. I have muscle twitching that is

persistent. We are talking on and off for a month but pretty much every day. It

freaks me out because I have read things about ALS and MS. The twitches start in

my shoulderblade area (both sides) and then sometimes travel down my arms. Has

anyone else experienced this. And then my related arm starts to ache. I am just

wondering if it is somehow related to my CMT. It is neuromuscular in nature but

the location seems all wrong.

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I get spasms pretty frequently and never knew why. Then I had the Athena

labs test which determined I don't have true CMT (duplication of the pp22

gene) but actually have HNPP (heriditary neuropathy w/pressure palsies)which

is an ABSENCE of the pp22 gene. MDA considers it a sub--catagory of CMT,

my neuro thought I had CMT until this test, it has symptoms as CMT. Bottom

line, you may have something similar, which would explain the spasms.

Jeanne

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  • 2 years later...

Hi Lynne

Instead of your GP putting the blame for this on your thyroid

function, I would ask him instead to test the following nutrients and most particularly

magnesium: iron, transferrin saturation%, ferritin, vitamin B12, vitamin

D3, folate, magnesium, copper and zinc.

Muscle

twitching is called fasciculation and can be caused through inadequate

magnesium intake, especially after a magnesium loss due to severe 'dire rear'.

Over-exertion is another risk factor for magnesium loss. As 70-80% of the adult

population does not consume the recommended daily amount of magnesium, inadequate

intake may also be a common cause. Treatment consists of increased intake of

magnesium, such as nuts (especially almonds) and bananas. Magnesium supplements

may also be taken, however too much magnesium may cause 'dire rear', causing

dehydration and nutrient loss (including magnesium). So it is very important

that your GP tests your levels.

Luv - Sheila

Just wondered if anyone else gets this? I have

this throughout most of my body now - used to be just my legs. My GP says its

the thyroid most likely causing the problem.

Lynne (Happy and Healthy New Year everyone!)

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