Guest guest Posted July 28, 2008 Report Share Posted July 28, 2008 In today's lead story in the SAR: Taking The Kids: Some Families Must Pack Extra Patience it says: " Bell, executive vice president at the advocacy organization Autism Speaks (www.autismspeaks.org), and parent of an autistic teen, says some families don't go anywhere, not even out to dinner while others, like his family, opt " not to let autism rule our lives. " Bell adds that his family of five has successfully navigated national parks, cross-country car trips, theme parks, ski resorts and Hawaii. " Does it tick anyone else off that this guy makes enough money at AS to take his family to all of those places? And probably with a helper or 2! I couldn't go to Hawaii with my family of 4 if I saved for the rest of my life. I'm sure he doesn't spend his family's money on biomed like I do, imagine what I could do if I let go of that expense! I will NEVER take money from my family to give to HIS family EVER! AS can kiss my you-know-what! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2008 Report Share Posted July 28, 2008 Kim, funny you should write this. I thought the same thing when i read it. Maurine Subject: Today's lead story on SARTo: EOHarm Date: Monday, July 28, 2008, 8:35 AM In today's lead story in the SAR: Taking The Kids:Some Families Must Pack Extra Patience it says:" Bell, executive vice president at the advocacy organizationAutism Speaks (www.autismspeaks. org), and parent of an autistic teen,says some families don't go anywhere, not even out to dinner whileothers, like his family, opt "not to let autism rule our lives." Belladds that his family of five has successfully navigated nationalparks, cross-country car trips, theme parks, ski resorts and Hawaii."Does it tick anyone else off that this guy makes enough money at AS totake his family to all of those places? And probably with a helper or2! I couldn't go to Hawaii with my family of 4 if I saved for therest of my life. I'm sure he doesn't spend his family's money onbiomed like I do, imagine what I could do if I let go of that expense!I will NEVER take money from my family to give to HIS family EVER! AS can kiss my you-know-what! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2008 Report Share Posted July 28, 2008 Hi, I stopped giving to Autism Speaks (I forget what it used to be called) after a series of personal emails between myself and Bell. I wrote to them in 2005 after the Kennedy article. I wanted the organization to put up a warning on its website regarding vaccinations. Not anything that said we think that there is a connection, just something that would warn parents that we don’t have enough information to say that the vaccines are safe. After a couple of emails I asked him, knowing that he had an autistic son. If he had it to do all over again would he still vaccinate his son? I thought that it was just a hypothetical question. I was floored when he wrote back that he had a daughter that he decided NOT to vaccinate. I just thought it was very hypocrical of him. On the one hand he doesn’t warn others, but he would not vaccinate. Maureen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2008 Report Share Posted July 28, 2008 > > In today's lead story in the SAR: Taking The Kids: > Some Families Must Pack Extra Patience it says: > > Does it tick anyone else off that this guy makes enough money at AS to > take his family to all of those places? Remember, Bell " was " a marketing person for Ritalin. I'm sure he made good money doing so. Quote Link to comment Share on other sites More sharing options...
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