Guest guest Posted December 4, 2009 Report Share Posted December 4, 2009 Hello and welcome Ray, I also have a CMT 2 diagnosis, ever since childhood. Several things have made a difference for me: being physically active (horsebackriding, hiking, swimming, at times physical therapy for stretching, teaching me 'how to fall', balance training,) good diet/nutrition regimen, meditation, and living one day at a time, or even 5 minutes at a time if needed. The hard part was acceptance, which took about 17 years from diagnosis. You'll get there. Stick with the winners at . Emotional issues with can become too complex. There's nothing you did to 'cause' CMT, your genetic code is unique to you. Take off that 'blame/shame hat', and focus on all that you can do and do well. Learn all you can about CMT and how we're all affected - differently as it is. You may be interested in joining a support group near you to meet others with CMT face to face. Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2009 Report Share Posted December 5, 2009 Hi Ray and Welcome.. Believe me you will like this group... Please remember you are not a freak... We just have certain disabilities and it affects us all different. My balance is awful too. I wear one AFO on the left foot for foot drop and also use a cane sometimes. My left hand is affected more than the right and I say I have a dead thumb, cause I drop thick things to pick up easy. It has taken me awhile to come to terms with this disease, but I have. Most of the time. I have joined a womens gym, and like going there 3 times a week to do what I can do and gain, and or not loose any strength that I do have. Use this site alot and you'll get alot of encouragement from everyone. Elaine in Florida Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2009 Report Share Posted December 5, 2009 I so hear you Ray..you came to the right place. Blessings, Geri .....Minnesota Quote Link to comment Share on other sites More sharing options...
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