Welcome Ray

[Guest guest]

Hello and welcome Ray,

I also have a CMT 2 diagnosis, ever since childhood. Several things have made a

difference for me: being physically active (horsebackriding, hiking, swimming,

at times physical therapy for stretching, teaching me 'how to fall', balance

training,) good diet/nutrition regimen, meditation, and living one day at a

time, or even 5 minutes at a time if needed. The hard part was acceptance, which

took about 17 years from diagnosis. You'll get there. Stick with the winners at

.

Emotional issues with can become too complex. There's nothing you did to

'cause' CMT, your genetic code is unique to you. Take off that 'blame/shame

hat', and focus on all that you can do and do well. Learn all you can about CMT

and how we're all affected - differently as it is.

You may be interested in joining a support group near you to meet others with

CMT face to face.

Gretchen

[Guest guest]

Hi Ray and Welcome.. Believe me you will like this group...

Please remember you are not a freak... We just have certain disabilities and it

affects us all different.

My balance is awful too.  I wear one AFO on the left foot for foot drop and also

use a cane sometimes.  My left hand is affected more than the right and I say I

have a dead thumb, cause I drop thick things to pick up easy.  It has taken me

awhile to come to terms with this disease, but I have.  Most of the time.

I have joined a womens gym, and like going there 3 times a week to do what I can

do and gain, and or not loose any strength that I do have. Use this site alot

and you'll get alot of encouragement from everyone.

Elaine in Florida 

[Guest guest]

I so hear you Ray..you came to the right place.

Blessings,

Geri .....Minnesota