Golden Benefit Charity Golf Classic and Dinner

[Guest guest]

Dear Friends:

You're invited to a very special event.

Special Guest Co-Host Kerrylyn Boettcher - Mrs. New York America 2008, Chelsea

Brumagen - Miss Teen-Ager of New York 2008 and Shana Jaycox - Mrs. New York

America 2007 along with the Golden Benefit Committee will be hosting the Mark

Farruggia 12th Annual Golden Benefit Charity Golf Classic and Dinner, Pride of

NY Wine and Cheese Tasting on July 18, 2009 for the Neuromuscular Disease

Center at the University of Rochester Medical Center & Friends & Families of

Muscular Disorders Foundation at Lima Country Club, Lima, New York.

We would appreciate your participation as a golfer, dinner guest, company

sponsor or gift-in-kind sponsor to raise money for both of these fine groups.

Mark Farrugia started the Golden Benefit Charity Golf Classic because he had his

life altered by Charcot-Marie-Tooth disease and felt there needed to be more

awareness about CMT.

Founders Mark Farruggia,Retsof, New York, Kay Zagorski, Sloan New York and Dan

Starr, Rochester New York formed the non - profit " Friends and Families of

Muscular Disorders Foundation " in honor of those who have a neuromuscular

disorder by raising funds and awareness through unique charitable events and

activities it sponsors.

To grant and award money to medical and educational intuitions for new programs

to help people with Diseases of Peripheral Nerve, Charcot Marie-Tooth Disease,

Mitochondrial Myopathies, Adult Spinal Muscular Atrophy, Amyotrophic Lateral

Sclerosis, Inclusion Body Myositis, Myasthenia Gravis, Motor Neuron Diseases,

Muscular Dystrophies, Neuromuscular Junction Diseases, Lupus, Arthritis,

Parkinson's disease and Cerebral Palsy, Fibromyalgia, Multiple Sclerosis,

Hereditary Neuropathy and to help other groups and individuals who may need a

helping hand in a need of financial difficulties.

By providing these funds the foundation hopes to enhance and enrich the lives of

those with diseases of neuromuscular disorders and hereditary neuropathies.

The Neuromuscular Disease Center at the University of Rochester Medical Center

offers state-of-the-art comprehensive care to over 4,500 patients affected by

neuropathy, ALS, muscular dystrophy, myasthenia gravis, and other neuromusclar

disorders.

The Center strives to provide patients and their families with the tools,

resources, and emotional support they need to understand and meet the challenges

of their diseases so they can live their lives to the fullest. Physicians and

scientists at the Center are actively involved in research to uncover the

mysteries of these neuromuscular disorders and to develop new treatments.

If you have any questions contact us at 585-519-1917 or goldenbenefit@....

On behalf of the hundreds of families that the Neuromuscular Disease Clinic at

the University of Rochester Medical Center serves, thank you for your support..

Sincerely

Mark Farruggia Kay Zagorski Dan Starr

Shana Jaycox Kerrylyn Boettcher Chelsea Brumagen