Guest guest Posted May 6, 2007 Report Share Posted May 6, 2007 Audra, I hurt everyday. I never know from one day to the next. I've been asked to participate in a new study at Vanderbilt University. I'm trying to keep my job but don't know how long I'll be able to. Recently the worst thing has been the fatigue...God it's horrible. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2007 Report Share Posted May 7, 2007 Hi Audra, You are not losing you mind.Fibromyalgia is for real and you got to be really strong to cope without 'losing you mind'or sanity.I know because i have been dealing with it for many years-the pain,stiffness,brain fog,depression,bowel problems etc etc.The sad thing about this condition is that almost everybody will doubt the seriousness of you condition-even your doctors.You really don't look like you are sick-physically.I have tried many many programs ,doctors but nothing helped significantly.I have this appointment with a doctor on the 19th May ($500.00) for a visit.I was told that he's good.I had to make an appointment four months in advance before I can see him -that's how much people are seeing this doctor. I will keep you up to date if I do see any improvement.Take care. --- Audra wrote: > In April 2005, I went to step out of bed and was > frozen. Have had my > tendons cut, been a pharmacy guinea pig, have gained > 45 pounds, lost at > least two years in sleep, the jumpy legs, the > burning skin, the blurry > vision....this doctor to that doctor before I was > diagnosed with > Fibromialgia. A week earlier, my sister was > diagnosed with it. She > went the opposite way though. She's down to a size > one and can no > longer work. I want to be involved with people who > go through the same > thing. I want to know that I'm not losing my mind. > Find out what we > can do about this. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2007 Report Share Posted May 16, 2007 > Hi well i agree its so hard to get people to understand this condition one thing thats is currently present is whenever i go to talk to someone or explain i find my self in tears. Im not sure if this is the condition or the frustration.. I have triend three new products moducare Available on the internet Active Cherry capsuls Available off the internet and Q10. Quite by accident I found doctor on Monday here in manchester UK a pain specialist based at the The ek curative centre Mr ernest King BA(psy) hsychologist,magnetherapist, hynotherapist hydra therpist bio energy therapist grander water ecoflow/bio flow rep he charges £80-00 for a 2 hour session and i ahve decided Im gonna give this a try and will up date after I have been. There is a website www.curative.freewebsitehosting.com or ernie@... Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 Hi, my name is Sheryl. I am a 51 year old primary teacher who has been married to Ian for the past 20 months. I think that Ian has Aspergers which is affecting our relationship. I need advice for supporting Ian and for myself on how to cope with this. I love him very much but his attitude towards me is at times unbearable. Sheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 sherylhare@... wrote: > Hi Cluadia, > I haven't mentioned it to Ian but I have to his daughter who is a > social worker / disabilities nurse. She agrees. Let me explain why I > think this. Ian is an intelligent man who is ill at ease in social > situations. At first I thought that this was shyness. He doesn't .... It is a pity there isn't an FAQ for Aspires. What you describe has been written many times although you put it much better than most. What to do about it is the tough one. I think it goes along the lines of look after yourself where that means find a way to get some emotional support elsewhere, make time to work out what to do next. As far as Ian is concerned, don't push, don't trip problems. Either can be highly counter productive. In my opinion he needs to grow up but that might not mean quite what you think it does. This can be a slow process. If Bill reads this: we need a good text on how to wake up a zombie which has good end result. Can't think of another way to put this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 Tim Channon wrote: > sherylhare@... wrote: >> Hi Cluadia, >> I haven't mentioned it to Ian but I have to his daughter who is a >> social worker / disabilities nurse. She agrees. Let me explain why I >> think this. Ian is an intelligent man who is ill at ease in social >> situations. At first I thought that this was shyness. He doesn't > > ... > > It is a pity there isn't an FAQ for Aspires. What you describe has been > written many times although you put it much better than most. > > What to do about it is the tough one. > > I think it goes along the lines of look after yourself where that means > find a way to get some emotional support elsewhere, make time to work > out what to do next. Yes. > > As far as Ian is concerned, don't push, don't trip problems. Either can > be highly counter productive. Yes. > > In my opinion he needs to grow up but that might not mean quite what you > think it does. This can be a slow process. Yes. > > If Bill reads this: we need a good text on how to wake up a zombie which > has good end result. Can't think of another way to put this. > I'm reading; noting the expressed need... " Real soon now. " <??> Adding to Tim's wise words -- It's been said here over and over and over, ...and over: HE has to " buy into " the notion that he's " on the spectrum " . *And* he has to _buy into_ the fact(!) that he's NOT mentally ill. He, and me, ...and Tim, and , and Ron, and Greg, and , and Jennie and all the other Real Live AS on this list simply have a different way of thinking than do you. He has, *we* have, a cognitive style different from yours. A somewhat different view of the world; a different slant on what goes on in it; and a different way of handling conflict. He *must* learn to accept that, ...to *embrace* it. He has to learn how to use its strength and compensate for its difference. And so do you! If he can learn to do that, and you can learn a little of how he's doing it, the two of you CAN make it. It's *as though* you come from very different cultural backgrounds, when in fact probably you don't. But you're the gay and voluble French lady; he's the phlegmatic but volatile Russian male. That's going to take a bit of work. Remember: It *always* takes " Two to Tango " . Neither of you can do it alone. *Both* of you must bend your best effort to the task(s). Practical advice: He's *male*. ALL males have fragile egos! *AS male* egos are more fragile than others'. Protect his ego; don't attack it. He's not your enemy, and doesn't *want* to be. - Bill, older, dx AS; ...40-odd years married (2nd time 'round). -- WD " Bill " Loughman - Berkeley, California USA http://home.earthlink.net/~wdloughman/wdl.htm Quote Link to comment Share on other sites More sharing options...
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