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courage to live with CMT

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Thank you ,

I don't see a lot of posts re: emotional issues/CMT, I believe that is b/c of

some of the reasons you've mentionned. We grieve silently and in private so as

to not annoy,distress,concern others and b/c we ourselves fear what our future

w/CMT portends.

My CMT roared 12/08, prior to that I had only minor problems(very high arches

and finding shoes),I had been walking daily but one day woke up and my legs were

stiff,numb,and wouldn't bear weight,right out of the blue. My legs recovered to

a large degree so I am able to motate but then my hands went numb and that has

not resolved.

You are so very right about the grieving,I feel vulnerable w/limited hand use

and ashamed about my dexterity. I fumble often, and drop just about everything.

I don't know if I have the courage to live with CMT progression.

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